the past two weeks from hell

AnneBehymer
AnneBehymer Member Posts: 738 Member
in Ovarian Cancer #1
The past few weeks have been really hard on me and now we are talking about a group home I am not ready to be in one but my mom and dad are afried they are not doing enough for me. I am only eating one meal a day and not much then and I ended up in the hospital two times in the past two weeks. when I do eat I lose m bowel no worning just all over me. I so don't want to move out but i don't want to put them through to much. So a lot of cring and a lot of fear right now please keep me in your prayers

Anne
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Comments

  • garden gal
    garden gal Member Posts: 212 Member
    #2
    sorry to to hear all this
    I myself will probably be edmitted today into the hospital, it all depends on the kidney numbers. Crosssing my finegers the numbers come down. The thought of a group home scares me, maybe betrween the DR's and you they come up with something that will work at home. Your in my prays. Do they know what causing the loose bowel movement? seems like the should be able to control that. What we have to go through. Does want you to just scream or cry. hang in there. Kathy
  • Mwee
    Mwee Member Posts: 1,338
    #3
    (((ANNE)))
    I'm so sorry to hear that you're having such a rough time. Have the docs been able to come up with any meds, etc. that would allow you to get the nutriton you need?
    ((((HUGS))) Maria
  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    #4
    Anne it hurts me to see you
    Anne it hurts me to see you in such turmoil. How far into treatments are you? Do the drs say this will subside once treatments are over. Aren't you taking cisplatin? Funny how it affects us all differently. I was constipated for days with that stuff. I wish and pray for better days for you!
    Shawnna
  • kikz
    kikz Member Posts: 1,345 Member
    #5
    2timothy1 7 said:

    Anne it hurts me to see you
    Anne it hurts me to see you in such turmoil. How far into treatments are you? Do the drs say this will subside once treatments are over. Aren't you taking cisplatin? Funny how it affects us all differently. I was constipated for days with that stuff. I wish and pray for better days for you!
    Shawnna

    I am so sorry
    for all you are going through Anne. Are you still having chemo? Cisplatin did a number on me as far as bowel control. I had several incidents where I could not make it to the bathroom. I ended up in the hospital with low electrolytes. The doctor arranged for a porta-potty for when I came home. I never used it because I didn't have the last chemo and I got well in the hospital.

    I pray they find the problem and get you feeling better. This is so hard on you and your parents.


    Karen
  • debrajo
    debrajo Member Posts: 1,095 Member
    #6
    Dear Anne, I do wish there
    Dear Anne, I do wish there was something really profound I could say to make all you have been going through make since. I wouldn't want a group home either, but it does sound like your parents have reached their fear level. They are so afraid they will break and make you feel worse. I don't have a solution except to turn the whole thing over to God and let him take the burden off of you. I will keep you in my prayers and in the meantime let go and let God work. Love, debrajo
  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #7
    debrajo said:

    Dear Anne, I do wish there
    Dear Anne, I do wish there was something really profound I could say to make all you have been going through make since. I wouldn't want a group home either, but it does sound like your parents have reached their fear level. They are so afraid they will break and make you feel worse. I don't have a solution except to turn the whole thing over to God and let him take the burden off of you. I will keep you in my prayers and in the meantime let go and let God work. Love, debrajo

    Dear Anne
    I'm praying with all my might that something can be worked out that allows you to stay at home. We're here for you anytime you need support.

    Sending you prayers and lots of big hugs,

    Kelly
  • JoWin615
    JoWin615 Member Posts: 150 Member
    #8
    Oh, wow
    I am so sorry to hear about your dilemma. The thought of having to leave your home has got to be causing you a lot of anguish and stress. Would your insurance be able to cover some kind of intermittent home health care? This might take some of the burden off your parents, and allow you to stay at home.

    Prayers and strength,
    Jo
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #9
    so sorry
    I hope you do not have to leave your home but if it happens could it be just a temporary solution? You have gone thru so much lately there has got to be a break for you soon.
    Colleen
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #10
    2timothy1 7 said:

    Anne it hurts me to see you
    Anne it hurts me to see you in such turmoil. How far into treatments are you? Do the drs say this will subside once treatments are over. Aren't you taking cisplatin? Funny how it affects us all differently. I was constipated for days with that stuff. I wish and pray for better days for you!
    Shawnna

    I have been in chemo for
    I have been in chemo for over a year now with no end in sight now I have an infection in my leg that if it does not get better I will have to go into the hospital on Monday for IV antiboctics. so here is hoping the pill form works.

    Anne
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #11
    lovesanimals said:

    Dear Anne
    I'm praying with all my might that something can be worked out that allows you to stay at home. We're here for you anytime you need support.

    Sending you prayers and lots of big hugs,

    Kelly

    mom thinks dad for the first
    mom thinks dad for the first time saw how sick I really was and that is why he is saying group home. She does not want me in a group home and has told him so but he is afiead that if mom is down sick she is also on disability with migrians and fybromyalga and something happens no will know until he get home. He does not understand what going into a group home will do to me I use to run one and no matter how good the manager is once they go home the workers can be so crule I had to fire several for abusing my clients. So it scares me to go into one.

    Anne
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #12
    JoWin615 said:

    Oh, wow
    I am so sorry to hear about your dilemma. The thought of having to leave your home has got to be causing you a lot of anguish and stress. Would your insurance be able to cover some kind of intermittent home health care? This might take some of the burden off your parents, and allow you to stay at home.

    Prayers and strength,
    Jo

    no I have ahccess and they
    no I have ahccess and they will not cover home health care
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #13
    Cafewoman53 said:

    so sorry
    I hope you do not have to leave your home but if it happens could it be just a temporary solution? You have gone thru so much lately there has got to be a break for you soon.
    Colleen

    thanks colleen I am still
    thanks colleen I am still looking for that break now I have an ifection in my leg that if it is not better by Monday anther stay in the hospital
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #14
    AnneBehymer said:

    thanks colleen I am still
    thanks colleen I am still looking for that break now I have an ifection in my leg that if it is not better by Monday anther stay in the hospital

    Stay home
    Maybe you can get help with home care nurses and nurses aides. Is a group homer like an assisted living home? I hope your legs heals..do have drainage and it need wound care..there is home health care for this also...just a thought my dear girl.....Val
  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    #15
    AnneBehymer said:

    thanks colleen I am still
    thanks colleen I am still looking for that break now I have an ifection in my leg that if it is not better by Monday anther stay in the hospital

    Just wanted you to know I am
    Just wanted you to know I am praying for you tonite. Let us know how your leg is.
    Hugs to you
    Shawnna
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #16
    poopergirl14052 said:

    Stay home
    Maybe you can get help with home care nurses and nurses aides. Is a group homer like an assisted living home? I hope your legs heals..do have drainage and it need wound care..there is home health care for this also...just a thought my dear girl.....Val

    there is not drainage my leg
    there is not drainage my leg just swealled up and I have a red spot near my foot I don't know I got the infection there is no cut or anything. as for home care nurses or nurses aid my insurance will not cover it and I don't have to money to pay for one. I am to healthy for someone to come into the house but sick enough for group home does not make since to me. I am staying home and have my leg up I will know Monday if I have to go into the hospital

    Anne
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #17
    2timothy1 7 said:

    Just wanted you to know I am
    Just wanted you to know I am praying for you tonite. Let us know how your leg is.
    Hugs to you
    Shawnna

    thanks for your prayers

    thanks for your prayers
  • debrajo
    debrajo Member Posts: 1,095 Member
    #18
    AnneBehymer said:

    thanks for your prayers

    thanks for your prayers

    Anne, we have recently been
    Anne, we have recently been made aware of a program called(don;t freak)hospital hospice. My sted-dad went there for three weeks before he went into a skilled living home. At the hospital hospice they gave him a priviate room, snacks, three meals,Ensure, wound treatment, counsiling,chaplan services,aids, nursed(lvn,rn), losts of rest, and tons of petting and being loved and cared for. It is a short-term care that gets you back on your feet and gives everyone a little space and down-time. Whats really nice is Medicare pays for all of it. The one here is called Horbor Hospice Hospital here in Texas. Maybe they could help you get some over-due rest. Just a thought, best, debrajo
  • jbeans888
    jbeans888 Member Posts: 313
    #19
    debrajo said:

    Anne, we have recently been
    Anne, we have recently been made aware of a program called(don;t freak)hospital hospice. My sted-dad went there for three weeks before he went into a skilled living home. At the hospital hospice they gave him a priviate room, snacks, three meals,Ensure, wound treatment, counsiling,chaplan services,aids, nursed(lvn,rn), losts of rest, and tons of petting and being loved and cared for. It is a short-term care that gets you back on your feet and gives everyone a little space and down-time. Whats really nice is Medicare pays for all of it. The one here is called Horbor Hospice Hospital here in Texas. Maybe they could help you get some over-due rest. Just a thought, best, debrajo

    Anne, I just want to let you
    Anne, I just want to let you know I am thinking about you and praying for you. I hope you can find some help that will be beneficial financially, medically and emotionally. I only have Medicaid and it's a pain to get assistance for things. So I know how u feel
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #20
    debrajo said:

    Anne, we have recently been
    Anne, we have recently been made aware of a program called(don;t freak)hospital hospice. My sted-dad went there for three weeks before he went into a skilled living home. At the hospital hospice they gave him a priviate room, snacks, three meals,Ensure, wound treatment, counsiling,chaplan services,aids, nursed(lvn,rn), losts of rest, and tons of petting and being loved and cared for. It is a short-term care that gets you back on your feet and gives everyone a little space and down-time. Whats really nice is Medicare pays for all of it. The one here is called Horbor Hospice Hospital here in Texas. Maybe they could help you get some over-due rest. Just a thought, best, debrajo

    that sound like something I
    that sound like something I would do if I knew I was coming home in three weeks but I dont have Medicare I have to wait two year to apply for it. I have AHCCSS I will have to check and see if they would pay for it.

    Anne
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #21
    debrajo said:

    Anne, we have recently been
    Anne, we have recently been made aware of a program called(don;t freak)hospital hospice. My sted-dad went there for three weeks before he went into a skilled living home. At the hospital hospice they gave him a priviate room, snacks, three meals,Ensure, wound treatment, counsiling,chaplan services,aids, nursed(lvn,rn), losts of rest, and tons of petting and being loved and cared for. It is a short-term care that gets you back on your feet and gives everyone a little space and down-time. Whats really nice is Medicare pays for all of it. The one here is called Horbor Hospice Hospital here in Texas. Maybe they could help you get some over-due rest. Just a thought, best, debrajo

    that sound like something I
    sorry repeat of the message above

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