from JREED in txt - UPDATED 08/11

mrsbotch said:

This news about Don is
This news about Don is unbelievable. I am so very sad for both of them.
These problems with their medical facility are so terrible. Reading this I feel like I am back at Emory with Vince dealing with his drs incompetant office manager.

Judy you are in my thoughts. We as caregivers know how you feel. HELPLESS.
I am so very sorry.


Love

Barbara

Sending you all the best wishes
and positive thoughts I can Judy and Don. I am so incredibly sad to hear this.

Freida said:

Judy posted this today on
Judy posted this today on Don's facebook page
"They do not have for sure answers of what is going on and thanks to a major screw up yesterday the PET scan which tell them which way to proceed may not be done now until Thursday. I am at my wits end with the whole f'g medical staff and even had to fire one nurse. Don is not getting better at all this point. I am requesting that no visitors or calls at this time. Don is very weak and talking just weakens him to the point it takes his breathaway"
It is similar to what we already know except now they are saying no PET scan until thursday and it sounds like Don is not doing well at all. I am so angry for her and Don, they have done everything right and been so proactive with trying to sort out the pain he was having. It sounds like their medical staff have dropped the ball big time.

How awful!
I will be sending extra prayers Judy and Don's way today. Also, prayers for the staff that obviously needs to pull it together to get Don back on track. Thank you for the update!

~Jayme

Praying
I just said a huge prayer for you.

Hi all. A friend of Judy and
Hi all. A friend of Judy and Don posted this on Don's facebook page yesterday.
"Don continues to be in considerable pain and remains very weak and nauseated. His primary Oncologist has now taken the lead with his continued care. Don will be moved to the Oncology wing as soon as a bed is available. A pick line has been put in as of this evening that will allow Don to begin receiving nourishment via IV. CT brain scan will be done tonight to rule out any cancer involvement within the brain. Full body PET scan is still scheduled for Thursday. Pain meds have been increased over the last 24 hours though the Morphine has been discontinued to see if that has been causing the increased nausea and breathing problems. Don & Judy both remain very thankful for everyone's concern and continued prayers but at this time ask that everyone refrain from visiting or calling until his condition improves."
Judy later posted that Don has at last been moved to the oncology ward which she is relieved about. I posted a message to let them know that they are receiving a ton of love and support from this site. I have not communicated directly with Judy in a couple of days as she has asked people to await updates that a close local friend will post on her behalf. I will keep updating whenever I hear any news.
Hugs to everyone.
Freida
Wife of Bill, diagnosed 11/8/2011 T3N2Mx, not a candidate for surgery due to other comorbidities, 2 months induction chemo (bi weekly carboplatin and taxol by infusion and 5FU by continuous 48 hour pump) followed by 6 weeks chemo/radiation (bi weekly carboplatin and taxol by infusion and weekly 5FU by continuous 5 day pump concurrent with radiation). 1st 3 month check up August 2012 good. Living life until 2nd 3 month check up in November.