Lori-S Crow71 LouSwift
Kim
Comments
-
Hi Kim, unfortunately,
Hi Kim, unfortunately, Roger, crow71, passed away in July 2011.
Take care,
Cynthia0 -
YesLivinginNH said:Hi Kim, unfortunately,
Hi Kim, unfortunately, Roger, crow71, passed away in July 2011.
Take care,
Cynthia
Thought so, because I'd been trying to find old posts. Sometimes the older posts just get lost amoung the many that we have. Do you know anything about the others? Sometimes people just tend to drop off the board or I've missed the reason why.
Kim0 -
your an angel kimAnnabelle41415 said:Yes
Thought so, because I'd been trying to find old posts. Sometimes the older posts just get lost amoung the many that we have. Do you know anything about the others? Sometimes people just tend to drop off the board or I've missed the reason why.
Kim
i know lou said he was having a break, but he was still going ok i think the last post i saw. but i have been off and on a bit lately here myself.
our friends that pass, well its just nice to see their names pop up.
godbless them all.
hugs,
Pete0 -
your an angel kimAnnabelle41415 said:Yes
Thought so, because I'd been trying to find old posts. Sometimes the older posts just get lost amoung the many that we have. Do you know anything about the others? Sometimes people just tend to drop off the board or I've missed the reason why.
Kim
i know lou said he was having a break, but he was still going ok i think the last post i saw. but i have been off and on a bit lately here myself.
our friends that pass, well its just nice to see their names pop up.
godbless them all.
hugs,
Pete0 -
Update
I saw a reply to a post from LouSwift just in the last couple of weeks and started a thread to him, but he didn't reply.
Lori moved to California, found work and the last I heard was doing ok.
Marie who loves kitties0 -
I thought Lori was alreadyLovekitties said:Update
I saw a reply to a post from LouSwift just in the last couple of weeks and started a thread to him, but he didn't reply.
Lori moved to California, found work and the last I heard was doing ok.
Marie who loves kitties
I thought Lori was already in Cali (maybe its another one Im thinking of. Her son had died) Havent heard from her in a long time.0 -
Hi Kim ! How you do?Kenny H. said:I thought Lori was already
I thought Lori was already in Cali (maybe its another one Im thinking of. Her son had died) Havent heard from her in a long time.
as Marie said Lori is doing great we are in contact via FB , so everything under control !
Hugs dear Kim!0 -
Howdypepebcn said:Hi Kim ! How you do?
as Marie said Lori is doing great we are in contact via FB , so everything under control !
Hugs dear Kim!
Doing good but have been very busy. Hope you are doing well. Love to see that you go to your beach house all the time - wishing you well dear friend.
Kim0 -
Thankspete43lost_at_sea said:your an angel kim
i know lou said he was having a break, but he was still going ok i think the last post i saw. but i have been off and on a bit lately here myself.
our friends that pass, well its just nice to see their names pop up.
godbless them all.
hugs,
Pete
Thank you for the update. Sometimes people just stay away for awhile so it's good to know that others are keeping up with them. I'm not a FB person so I'm usually out of the loop. Thanks dear.
Kim0 -
Hi Anabelle and everyone!
Anabelle, thank you for asking. HUGS!!!!
Everyone else, I apologize for my long absence. I do read the boards on a semi-regular basis and pray for all, miss many and do follow along.
Since my son died it has been difficult of course. I moved back to Cali. I got a job and work a lot of long hours and have been fortunate to have a decent job in this day and age. My 20 year old dog (my son, Anthony who died, grew up with her) was diagnosed with lymphoma and I am preparing to lose her soon. It brings my son and his death back up so it is especially difficult for me. And, she's just been the best dog I've ever had. The dog of my life! I am going to miss her so very much when she dies.
I feel that I've never really gotten over the chemo and still suffer the side effects. I'm sure a lot of that is due to the fact that I was highly allergic to the Oxi. My neuropathy is nearly unbearable at the end of the day, I worry about the long drive home and my feet and legs being so painful and the shooting and electrical pains and I can hardly walk the 5 steps to the door when I get out of the car at home but, I'm so grateful to have a job and a life that I just bear it. I am exhausted all the time (feel at about 40% of what I did before chemo), never feel rested, sleep almost the whole day on my days off and just basically work, eat, sleep and take tons and tons of supplements, juice and fast regularly. No matter what, I will never do chemo again. That's not to say that I'm anti chemo ... it's just chemo is not for me and I think that everyone has the right and should decide for themselves how they want to approach their treatment. How's that for diplomacy????
Also, my CEA which was down to 3.2 has been rising the last 2 months and is now 7.9 so my oncologist is ordering another colonoscopy, CTs and another CEA. It's disconcerting because at the time of my diagnosis and surgery my CEA was only in the 9's and when the onc started me on chemo it was in the 6's. My current oncologist feels that it is possible that polyps that were removed from my last colonoscopy may not have been completely removed and may have become cancerous since then or that some things that were showing up on the last couple of CTS may be more of a concern than the last doctor thought. I am allergic to contrast and usually have to have my CT without contrast which makes it not quite so reliable so this time they are going to hospitalize me and pre-medicate me so they can use contrast to get a good scan. Along with my CEA some of my liver function tests concern my onc as well but, that could just be the residual damage from chemo. I haven't had insurance for very long so I'm just starting over with all of that and new docs.
I also had to have a biopsy on my breast 2 weeks ago and was told that while it did not come back as cancer, they want to recheck again in 6 months. I haven't made the appointment with the surgeon that is supposed to discuss the results with me yet as I was able to convince the nurse to give me the results over the phone. I have a long family history of both breast and colon cancer. Woo Hoo ... some of us just need a little extra excitement in our lives!
I haven't told anyone about my biopsy or CEA because I just don't want this to come in and take over my life again. I'm working so hard to try and get some sort of normalcy back. I already feel like cancer took over my life, and while it didn't kill me .... my cancer killed my son. The stress of my illness was definitely more than he could handle in his condition. So now I don't want to give cancer a chance to get a hold on my life in any way. I'm just going to live my life and F*** cancer. If it gets me it gets me but, I'm one of those people that still has a lot left to do so I don't think it will be any time soon. I'm not nearly spiritually perfected yet. HA!
Please don't be offended if I seem to disappear again but know that I love you all and read the board semi-regularly because I do care about so many here.
Love and HUGS to all!!0 -
(((Lori)))Lori-S said:Hi Anabelle and everyone!
Anabelle, thank you for asking. HUGS!!!!
Everyone else, I apologize for my long absence. I do read the boards on a semi-regular basis and pray for all, miss many and do follow along.
Since my son died it has been difficult of course. I moved back to Cali. I got a job and work a lot of long hours and have been fortunate to have a decent job in this day and age. My 20 year old dog (my son, Anthony who died, grew up with her) was diagnosed with lymphoma and I am preparing to lose her soon. It brings my son and his death back up so it is especially difficult for me. And, she's just been the best dog I've ever had. The dog of my life! I am going to miss her so very much when she dies.
I feel that I've never really gotten over the chemo and still suffer the side effects. I'm sure a lot of that is due to the fact that I was highly allergic to the Oxi. My neuropathy is nearly unbearable at the end of the day, I worry about the long drive home and my feet and legs being so painful and the shooting and electrical pains and I can hardly walk the 5 steps to the door when I get out of the car at home but, I'm so grateful to have a job and a life that I just bear it. I am exhausted all the time (feel at about 40% of what I did before chemo), never feel rested, sleep almost the whole day on my days off and just basically work, eat, sleep and take tons and tons of supplements, juice and fast regularly. No matter what, I will never do chemo again. That's not to say that I'm anti chemo ... it's just chemo is not for me and I think that everyone has the right and should decide for themselves how they want to approach their treatment. How's that for diplomacy????
Also, my CEA which was down to 3.2 has been rising the last 2 months and is now 7.9 so my oncologist is ordering another colonoscopy, CTs and another CEA. It's disconcerting because at the time of my diagnosis and surgery my CEA was only in the 9's and when the onc started me on chemo it was in the 6's. My current oncologist feels that it is possible that polyps that were removed from my last colonoscopy may not have been completely removed and may have become cancerous since then or that some things that were showing up on the last couple of CTS may be more of a concern than the last doctor thought. I am allergic to contrast and usually have to have my CT without contrast which makes it not quite so reliable so this time they are going to hospitalize me and pre-medicate me so they can use contrast to get a good scan. Along with my CEA some of my liver function tests concern my onc as well but, that could just be the residual damage from chemo. I haven't had insurance for very long so I'm just starting over with all of that and new docs.
I also had to have a biopsy on my breast 2 weeks ago and was told that while it did not come back as cancer, they want to recheck again in 6 months. I haven't made the appointment with the surgeon that is supposed to discuss the results with me yet as I was able to convince the nurse to give me the results over the phone. I have a long family history of both breast and colon cancer. Woo Hoo ... some of us just need a little extra excitement in our lives!
I haven't told anyone about my biopsy or CEA because I just don't want this to come in and take over my life again. I'm working so hard to try and get some sort of normalcy back. I already feel like cancer took over my life, and while it didn't kill me .... my cancer killed my son. The stress of my illness was definitely more than he could handle in his condition. So now I don't want to give cancer a chance to get a hold on my life in any way. I'm just going to live my life and F*** cancer. If it gets me it gets me but, I'm one of those people that still has a lot left to do so I don't think it will be any time soon. I'm not nearly spiritually perfected yet. HA!
Please don't be offended if I seem to disappear again but know that I love you all and read the board semi-regularly because I do care about so many here.
Love and HUGS to all!!
Just nice to see you:)
-Craig0 -
UpdateLori-S said:Hi Anabelle and everyone!
Anabelle, thank you for asking. HUGS!!!!
Everyone else, I apologize for my long absence. I do read the boards on a semi-regular basis and pray for all, miss many and do follow along.
Since my son died it has been difficult of course. I moved back to Cali. I got a job and work a lot of long hours and have been fortunate to have a decent job in this day and age. My 20 year old dog (my son, Anthony who died, grew up with her) was diagnosed with lymphoma and I am preparing to lose her soon. It brings my son and his death back up so it is especially difficult for me. And, she's just been the best dog I've ever had. The dog of my life! I am going to miss her so very much when she dies.
I feel that I've never really gotten over the chemo and still suffer the side effects. I'm sure a lot of that is due to the fact that I was highly allergic to the Oxi. My neuropathy is nearly unbearable at the end of the day, I worry about the long drive home and my feet and legs being so painful and the shooting and electrical pains and I can hardly walk the 5 steps to the door when I get out of the car at home but, I'm so grateful to have a job and a life that I just bear it. I am exhausted all the time (feel at about 40% of what I did before chemo), never feel rested, sleep almost the whole day on my days off and just basically work, eat, sleep and take tons and tons of supplements, juice and fast regularly. No matter what, I will never do chemo again. That's not to say that I'm anti chemo ... it's just chemo is not for me and I think that everyone has the right and should decide for themselves how they want to approach their treatment. How's that for diplomacy????
Also, my CEA which was down to 3.2 has been rising the last 2 months and is now 7.9 so my oncologist is ordering another colonoscopy, CTs and another CEA. It's disconcerting because at the time of my diagnosis and surgery my CEA was only in the 9's and when the onc started me on chemo it was in the 6's. My current oncologist feels that it is possible that polyps that were removed from my last colonoscopy may not have been completely removed and may have become cancerous since then or that some things that were showing up on the last couple of CTS may be more of a concern than the last doctor thought. I am allergic to contrast and usually have to have my CT without contrast which makes it not quite so reliable so this time they are going to hospitalize me and pre-medicate me so they can use contrast to get a good scan. Along with my CEA some of my liver function tests concern my onc as well but, that could just be the residual damage from chemo. I haven't had insurance for very long so I'm just starting over with all of that and new docs.
I also had to have a biopsy on my breast 2 weeks ago and was told that while it did not come back as cancer, they want to recheck again in 6 months. I haven't made the appointment with the surgeon that is supposed to discuss the results with me yet as I was able to convince the nurse to give me the results over the phone. I have a long family history of both breast and colon cancer. Woo Hoo ... some of us just need a little extra excitement in our lives!
I haven't told anyone about my biopsy or CEA because I just don't want this to come in and take over my life again. I'm working so hard to try and get some sort of normalcy back. I already feel like cancer took over my life, and while it didn't kill me .... my cancer killed my son. The stress of my illness was definitely more than he could handle in his condition. So now I don't want to give cancer a chance to get a hold on my life in any way. I'm just going to live my life and F*** cancer. If it gets me it gets me but, I'm one of those people that still has a lot left to do so I don't think it will be any time soon. I'm not nearly spiritually perfected yet. HA!
Please don't be offended if I seem to disappear again but know that I love you all and read the board semi-regularly because I do care about so many here.
Love and HUGS to all!!
Thank you so much for updating us. I'm hoping that your upcoming tests go well for you. It was good to see your post as I've been wondering about you. Glad that you are still following the boards but understand why you want to stay away sometimes.
Kim0 -
a blast from the pastLori-S said:Hi Anabelle and everyone!
Anabelle, thank you for asking. HUGS!!!!
Everyone else, I apologize for my long absence. I do read the boards on a semi-regular basis and pray for all, miss many and do follow along.
Since my son died it has been difficult of course. I moved back to Cali. I got a job and work a lot of long hours and have been fortunate to have a decent job in this day and age. My 20 year old dog (my son, Anthony who died, grew up with her) was diagnosed with lymphoma and I am preparing to lose her soon. It brings my son and his death back up so it is especially difficult for me. And, she's just been the best dog I've ever had. The dog of my life! I am going to miss her so very much when she dies.
I feel that I've never really gotten over the chemo and still suffer the side effects. I'm sure a lot of that is due to the fact that I was highly allergic to the Oxi. My neuropathy is nearly unbearable at the end of the day, I worry about the long drive home and my feet and legs being so painful and the shooting and electrical pains and I can hardly walk the 5 steps to the door when I get out of the car at home but, I'm so grateful to have a job and a life that I just bear it. I am exhausted all the time (feel at about 40% of what I did before chemo), never feel rested, sleep almost the whole day on my days off and just basically work, eat, sleep and take tons and tons of supplements, juice and fast regularly. No matter what, I will never do chemo again. That's not to say that I'm anti chemo ... it's just chemo is not for me and I think that everyone has the right and should decide for themselves how they want to approach their treatment. How's that for diplomacy????
Also, my CEA which was down to 3.2 has been rising the last 2 months and is now 7.9 so my oncologist is ordering another colonoscopy, CTs and another CEA. It's disconcerting because at the time of my diagnosis and surgery my CEA was only in the 9's and when the onc started me on chemo it was in the 6's. My current oncologist feels that it is possible that polyps that were removed from my last colonoscopy may not have been completely removed and may have become cancerous since then or that some things that were showing up on the last couple of CTS may be more of a concern than the last doctor thought. I am allergic to contrast and usually have to have my CT without contrast which makes it not quite so reliable so this time they are going to hospitalize me and pre-medicate me so they can use contrast to get a good scan. Along with my CEA some of my liver function tests concern my onc as well but, that could just be the residual damage from chemo. I haven't had insurance for very long so I'm just starting over with all of that and new docs.
I also had to have a biopsy on my breast 2 weeks ago and was told that while it did not come back as cancer, they want to recheck again in 6 months. I haven't made the appointment with the surgeon that is supposed to discuss the results with me yet as I was able to convince the nurse to give me the results over the phone. I have a long family history of both breast and colon cancer. Woo Hoo ... some of us just need a little extra excitement in our lives!
I haven't told anyone about my biopsy or CEA because I just don't want this to come in and take over my life again. I'm working so hard to try and get some sort of normalcy back. I already feel like cancer took over my life, and while it didn't kill me .... my cancer killed my son. The stress of my illness was definitely more than he could handle in his condition. So now I don't want to give cancer a chance to get a hold on my life in any way. I'm just going to live my life and F*** cancer. If it gets me it gets me but, I'm one of those people that still has a lot left to do so I don't think it will be any time soon. I'm not nearly spiritually perfected yet. HA!
Please don't be offended if I seem to disappear again but know that I love you all and read the board semi-regularly because I do care about so many here.
Love and HUGS to all!!
That rising cea is a bummer.
You were so kind to me when I started here doing my first folfox.
It seems like a long long time ago
Be healthy, checkout the lef protocol. They got me a 20mg melatonin. I sleep like the big baby I am.
If I find a combo of alternatives that lowest, stabilised my rising cea I Will pm you.
Hugs,
Pete
Ps sorry to hear about your neuropathy, just yesterday I realised mine had completely gone. I wad bare footed doing weight training, my trainer made me do situps, he stood on my toes. It hurt, it felt great.
He could not understand why I would be smiling in pain. But my folfox friends do.0 -
Nice hearing from youpete43lost_at_sea said:a blast from the past
That rising cea is a bummer.
You were so kind to me when I started here doing my first folfox.
It seems like a long long time ago
Be healthy, checkout the lef protocol. They got me a 20mg melatonin. I sleep like the big baby I am.
If I find a combo of alternatives that lowest, stabilised my rising cea I Will pm you.
Hugs,
Pete
Ps sorry to hear about your neuropathy, just yesterday I realised mine had completely gone. I wad bare footed doing weight training, my trainer made me do situps, he stood on my toes. It hurt, it felt great.
He could not understand why I would be smiling in pain. But my folfox friends do.
Nice hearing from you Lori.
Great that you are working again. Keep checking in & talk at you later0 -
hi
Kim I did a post last night. Thanks for wondering about me. Some of us long time members at least in my case just get worn down. I'd had hoped that by now after so many years that this board was shut down because a cure had been found and no more hurting and damaged people and their families. I guess I have become so cynical about the medical industry having a vested interrest in a never ending line of money makers-the cancer patient. To them what you go through or death just means start a new file and billing cycle for the next patient. Now I read that chemo may actual encourage cancer growth. Will they cure cancer? Why...an entire mega-industry would collapse overnight. Thus the reason I don't post much anymore It's very difficult for me to be supportive. There was many a time this board and all the smart, experienced, caring people got me through a lot of questions; depression; and pain. I too, tired to do the same for others but now it's better I just stand down. I'll be around and may post for myself but not others. Take care and good health. Love you guys Lou0 -
UpdateLOUSWIFT said:hi
Kim I did a post last night. Thanks for wondering about me. Some of us long time members at least in my case just get worn down. I'd had hoped that by now after so many years that this board was shut down because a cure had been found and no more hurting and damaged people and their families. I guess I have become so cynical about the medical industry having a vested interrest in a never ending line of money makers-the cancer patient. To them what you go through or death just means start a new file and billing cycle for the next patient. Now I read that chemo may actual encourage cancer growth. Will they cure cancer? Why...an entire mega-industry would collapse overnight. Thus the reason I don't post much anymore It's very difficult for me to be supportive. There was many a time this board and all the smart, experienced, caring people got me through a lot of questions; depression; and pain. I too, tired to do the same for others but now it's better I just stand down. I'll be around and may post for myself but not others. Take care and good health. Love you guys Lou
Saw your other post and glad you updated us. Would also like to say that I'm glad you found yourself some new doctors. Hoping for the best of you and I'm sorry for all that you have been through. Seems your previous doctors were very neglegent. Good luck on Monday and please let us know how it goes.
Kim0 -
LoriLori-S said:Hi Anabelle and everyone!
Anabelle, thank you for asking. HUGS!!!!
Everyone else, I apologize for my long absence. I do read the boards on a semi-regular basis and pray for all, miss many and do follow along.
Since my son died it has been difficult of course. I moved back to Cali. I got a job and work a lot of long hours and have been fortunate to have a decent job in this day and age. My 20 year old dog (my son, Anthony who died, grew up with her) was diagnosed with lymphoma and I am preparing to lose her soon. It brings my son and his death back up so it is especially difficult for me. And, she's just been the best dog I've ever had. The dog of my life! I am going to miss her so very much when she dies.
I feel that I've never really gotten over the chemo and still suffer the side effects. I'm sure a lot of that is due to the fact that I was highly allergic to the Oxi. My neuropathy is nearly unbearable at the end of the day, I worry about the long drive home and my feet and legs being so painful and the shooting and electrical pains and I can hardly walk the 5 steps to the door when I get out of the car at home but, I'm so grateful to have a job and a life that I just bear it. I am exhausted all the time (feel at about 40% of what I did before chemo), never feel rested, sleep almost the whole day on my days off and just basically work, eat, sleep and take tons and tons of supplements, juice and fast regularly. No matter what, I will never do chemo again. That's not to say that I'm anti chemo ... it's just chemo is not for me and I think that everyone has the right and should decide for themselves how they want to approach their treatment. How's that for diplomacy????
Also, my CEA which was down to 3.2 has been rising the last 2 months and is now 7.9 so my oncologist is ordering another colonoscopy, CTs and another CEA. It's disconcerting because at the time of my diagnosis and surgery my CEA was only in the 9's and when the onc started me on chemo it was in the 6's. My current oncologist feels that it is possible that polyps that were removed from my last colonoscopy may not have been completely removed and may have become cancerous since then or that some things that were showing up on the last couple of CTS may be more of a concern than the last doctor thought. I am allergic to contrast and usually have to have my CT without contrast which makes it not quite so reliable so this time they are going to hospitalize me and pre-medicate me so they can use contrast to get a good scan. Along with my CEA some of my liver function tests concern my onc as well but, that could just be the residual damage from chemo. I haven't had insurance for very long so I'm just starting over with all of that and new docs.
I also had to have a biopsy on my breast 2 weeks ago and was told that while it did not come back as cancer, they want to recheck again in 6 months. I haven't made the appointment with the surgeon that is supposed to discuss the results with me yet as I was able to convince the nurse to give me the results over the phone. I have a long family history of both breast and colon cancer. Woo Hoo ... some of us just need a little extra excitement in our lives!
I haven't told anyone about my biopsy or CEA because I just don't want this to come in and take over my life again. I'm working so hard to try and get some sort of normalcy back. I already feel like cancer took over my life, and while it didn't kill me .... my cancer killed my son. The stress of my illness was definitely more than he could handle in his condition. So now I don't want to give cancer a chance to get a hold on my life in any way. I'm just going to live my life and F*** cancer. If it gets me it gets me but, I'm one of those people that still has a lot left to do so I don't think it will be any time soon. I'm not nearly spiritually perfected yet. HA!
Please don't be offended if I seem to disappear again but know that I love you all and read the board semi-regularly because I do care about so many here.
Love and HUGS to all!!
Lori,
It is so good to hear from you. When Annabelle posted I was hoping you'd check in. I think about you and your precious son often. I can only imagine how very much you must miss him. I hope and pray that you get a break and all the tests come out OK.
Please let us know how it goes.
Sending love and prayers.
Aloha,
Kathleen0
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