from JREED in txt - UPDATED 08/11

TerryV
TerryV Member Posts: 887
edited August 2012 in Esophageal Cancer #1
I received this from Judy via phone text this AM....


Just wanted to let you know that our nightmare has started. They are 99% sure this is a recurrence and Don is going downhill very quickly. PET scan will tell the story. His left arm is very swollen this morning. He has not eaten in 4 days. They are going to put in feeding tube today. I am numb.

Requesting positive mojo for a great report. Love to all,

Judy
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Comments

  • ECson
    ECson Member Posts: 26
    #2
    Booooooo
    Not cool. Thoughts go out to them.
  • JanBred
    JanBred Member Posts: 42
    #3
    jreed
    My thoughts and prayers to all. Stay strong.
  • paul61
    paul61 Member Posts: 1,392 Member
    #4
    I am so very sorry to hear this
    Judy,

    I am so very sorry to hear this news. I was so hoping they would find something simple and easily treatable. My thoughts and prayers go out to you and Don.

    With Sadness,

    Paul Adams,
    Grand Blanc, Michigan
  • ritawaite13
    ritawaite13 Member Posts: 236
    #5
    DAMN!
    I'm so very sorry to read this post! I was suspecting this was probably the case but was hoping and praying for better news. Thanks for letting us know Terry.
    FEC! FEC!!
    Rita
  • ShellyMac
    ShellyMac Member Posts: 16
    #6
    So, so, sorry to hear this.
    So, so, sorry to hear this. Please know that I am praying for both of you and sending you all my positive mojo!!

    Love, Shelly
  • bingbing2009
    bingbing2009 Member Posts: 177
    #7
    Hate to hear this!
    I also saw this news at FB, but wanted to post here, too. Thanks for sharing the news. I was wondering how Don was doing in Sturgis. What a disappointment for them. As always, I'll be keeing them in my prayers and sending positive mojo their way!

    Melinda

    DX October 2009: T3N1M0
    November and December 2009: chemo (Cisplatin and 5 FU) and radiation
    February 2010: Ivor Lewis surgery
  • AngieD
    AngieD Member Posts: 493
    #8
    bingbing2009 said:

    Hate to hear this!
    I also saw this news at FB, but wanted to post here, too. Thanks for sharing the news. I was wondering how Don was doing in Sturgis. What a disappointment for them. As always, I'll be keeing them in my prayers and sending positive mojo their way!

    Melinda

    DX October 2009: T3N1M0
    November and December 2009: chemo (Cisplatin and 5 FU) and radiation
    February 2010: Ivor Lewis surgery

    I just felt like I'd been
    I just felt like I'd been kicked in the gut when I read this on FB. Hoping the assumptions are wrong. Sending prayers and good thoughts to Judy and Don.
  • stephikindred
    stephikindred Member Posts: 140
    #9
    UGH!
    It hurts to hear this. My heart goes out to Judy and Don!
  • morley
    morley Member Posts: 24
    #10
    My prayers are with you
    Judy and Don
    I am so sorry to hear this. My thoughts and prayers are with you through these anxious days.
    Dave
  • Bermudagirl
    Bermudagirl Member Posts: 114
    #11
    morley said:

    My prayers are with you
    Judy and Don
    I am so sorry to hear this. My thoughts and prayers are with you through these anxious days.
    Dave

    I'm so sorry to hear this
    OMG this saddens me so. We really do become a "family" here through such a horrific disease. I of course don't know Judy and Don, but just being on this site makes me feel like we are all connected. My thoughts and prayers go out to you both.

    Sandy
  • mmr19
    mmr19 Member Posts: 75
    #12
    Oh no!
    I was hoping to hear of the great time had in Sturgis...not bad news.
    Judy and Don- good thoughts and prayers coming your way.

    Marta
  • oriontj
    oriontj Member Posts: 375
    #13
    Prayers are lifted up
    for your and your family.
  • tb7
    tb7 Member Posts: 52
    #14
    Sending positive thoughts your way . . .
    Hoping the best for you, saddened to hear the news . . . sending hopes and warm wishes your way!

    Trisha
  • tmcjay
    tmcjay Member Posts: 35
    #15
    SO Sorry
    Don and Judy my thoughts and prayers are with you both.
  • Freida
    Freida Member Posts: 182
    #16
    This is such sad news. I had
    This is such sad news. I had been worried because of the pain Don was having but was shocked when I got Judy's text as they had been seeking answers to his pain for so long and kept being told there was no problem. Just a few short weeks ago Judy was so relieved to be told they couldn't find any problem, though Don was understandably frustrated as he knew something was up in his body. I hope they can deal with his pain very quickly. Surely in this day and age there is no reason for that. Hugs and FEC to all.
  • TerryV
    TerryV Member Posts: 887
    #17
    Freida said:

    This is such sad news. I had
    This is such sad news. I had been worried because of the pain Don was having but was shocked when I got Judy's text as they had been seeking answers to his pain for so long and kept being told there was no problem. Just a few short weeks ago Judy was so relieved to be told they couldn't find any problem, though Don was understandably frustrated as he knew something was up in his body. I hope they can deal with his pain very quickly. Surely in this day and age there is no reason for that. Hugs and FEC to all.

    Were they at Sturgis when Judy txt'd?
    Freida,

    I know Judy & Don had planned to RV to Sturgis with friends. Did they go? Was he at Sturgis with all the recent troubles?

    Hope all is well with Bill.

    Terry
  • Freida
    Freida Member Posts: 182
    #18
    TerryV said:

    Were they at Sturgis when Judy txt'd?
    Freida,

    I know Judy & Don had planned to RV to Sturgis with friends. Did they go? Was he at Sturgis with all the recent troubles?

    Hope all is well with Bill.

    Terry

    Hi Terry
    They went to
    Hi Terry
    They went to Sturgis but he was in so much pain that he ended up in the ER twice and then flew back home and went straight to the hospital. I wish they could at least have been allowed that time and some fun before all this.

    Bill just had his 3 month check up (endoscope, PET and CT this time) and all looks good so far. I did make a post about it. Was a bit ambivalent about posting with all the sad news out there right now, but decided to as I have always liked to read the good news.
  • GerryS
    GerryS Member Posts: 227 Member
    #19
    Sorry to hear this....
    Judy and Don, you are inmy prayers as you deal with this set back. God Bless.....

    Gerry
  • TerryV
    TerryV Member Posts: 887
    #20
    Update from JREED
    Received in phone text from Judy today....

    The scope today showed some swelling around the duodenum which could be from radiation damage (unlikely this long after treatment and surgery) or possibly tumor pressing in. PET scan will tell more and he will have that tomorrow but won't get results until at least Monday. The pain is being contgrolled but they are working on a long acting med that won't make him sleep all the time.

    *****

    I've just talked with Judy. She sounds calm and matter of fact - the mode all of us caregivers get into when we are in the midst of an emergency. She's over the top worried about Don. She is hopeful about there being other possibilities for Don's pains, but she's also realistic.

    My prayers, and every bit of positive mojo that I have left is directed to you & Don, Judy. We are here for you.....

    Hugs & much love!

    Terry
  • Freida
    Freida Member Posts: 182
    #21
    TerryV said:

    Update from JREED
    Received in phone text from Judy today....

    The scope today showed some swelling around the duodenum which could be from radiation damage (unlikely this long after treatment and surgery) or possibly tumor pressing in. PET scan will tell more and he will have that tomorrow but won't get results until at least Monday. The pain is being contgrolled but they are working on a long acting med that won't make him sleep all the time.

    *****

    I've just talked with Judy. She sounds calm and matter of fact - the mode all of us caregivers get into when we are in the midst of an emergency. She's over the top worried about Don. She is hopeful about there being other possibilities for Don's pains, but she's also realistic.

    My prayers, and every bit of positive mojo that I have left is directed to you & Don, Judy. We are here for you.....

    Hugs & much love!

    Terry

    More frustration for Judy
    More frustration for Judy and Don. Don was supposed to have his PET scan today but a nurse gave him sugar water via IV even though Judy asked him to double check that it was correct. it was completely the wrong thing to do resulting in no PET scan today. She is beside herself as you can imagine. She says Don is wasting away in front of her. Just so awful.

    More positive vibes needed in their direction.

    Freida

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