Ofatumumab

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  • miss maggie
    miss maggie Member Posts: 929
    #22
    Donna
    Where did my post go????

    Anyway, I just read your second positive post. YEH/

    I was glad to read you are doing so well with the 2 chemo's. Just being tired sounds
    so like a blessing. I hope this new treatment will bring you to remission.

    Please be careful in the sun outside. Use a huge umbrella to shade you. Being outside
    and seeing all around you is a good thing.

    Thinking of you my friend. Love you Maggie
  • forme
    forme Member Posts: 1,161 Member
    #23
    onlytoday said:

    SPOTLESS!
    Hi all!!

    Well I'll be.... didn't have ANY reaction to either drug yesterday. They gave me my regular
    chemo first and the topped it off with hours of the full dose of Ofatumumab! I had zero reactions from either one! When home last night (no Jefferson Hospital for me!) Had a lot of heartburn and an upset stomach (the drugs just weren't quite controlling it.) I'm also understandably very tired. BUT- today I am sitting out in my backyard, watching the birds-and feeling fine. Just a red neck and face- and fatigue. I am a blessed woman!

    So I think the spotty me ran away. But I don't thing it would be appropriate to call me "REd Neck" So I think I'll just be Blessed today!

    Thank you all my angels. I know I've got the best doctors and medical team and in addition I have a cast of many angels here on earth helping me through this. (That includes all of you)

    I am constantly praying for all of you as we fight this dreaded disease. Words don't come in an appropriate way to explain my gratitude to have you all there for me.

    Love and Hugs,


    Donna

    Hooray!
    Hi Donna

    Best news. This is how it should be. Smooth sailing through treatments.
    Enjoy sitting in your yard and just being outside and alive!

    Sending you huge hugs as you rest and recover.

    Lisha
  • onlytoday
    onlytoday Member Posts: 609 Member
    #24
    miss maggie said:

    Donna
    Where did my post go????

    Anyway, I just read your second positive post. YEH/

    I was glad to read you are doing so well with the 2 chemo's. Just being tired sounds
    so like a blessing. I hope this new treatment will bring you to remission.

    Please be careful in the sun outside. Use a huge umbrella to shade you. Being outside
    and seeing all around you is a good thing.

    Thinking of you my friend. Love you Maggie

    All of you
    Thanks for the posts! Yes I am under umbrellas and trees. Fabulous. Just took a 4 hour nap! hehe

    Thank you everyone for you love and support. I will write more later and inquire about you all.

    Love and prayers,

    Donna
  • onlytoday
    onlytoday Member Posts: 609 Member
    #25
    miss maggie said:

    Donna
    Where did my post go????

    Anyway, I just read your second positive post. YEH/

    I was glad to read you are doing so well with the 2 chemo's. Just being tired sounds
    so like a blessing. I hope this new treatment will bring you to remission.

    Please be careful in the sun outside. Use a huge umbrella to shade you. Being outside
    and seeing all around you is a good thing.

    Thinking of you my friend. Love you Maggie

    All of you
    Thanks for the posts! Yes I am under umbrellas and trees. Fabulous. Just took a 4 hour nap! hehe

    Thank you everyone for you love and support. I will write more later and inquire about you all.

    Love and prayers,

    Donna
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #26
    onlytoday said:

    All of you
    Thanks for the posts! Yes I am under umbrellas and trees. Fabulous. Just took a 4 hour nap! hehe

    Thank you everyone for you love and support. I will write more later and inquire about you all.

    Love and prayers,

    Donna

    Happy for you!
    Hi Donna,
    I'm so happy to hear the last treatment went well with no reactions...."YEAH"!I've gotten too much sun yesterday and today in the boat and developed a irritating rash on my arms, legs and chest. So...no fishing or sun for me until Monday. Been taking benedryl and using a medicated lotion which is helping...I guess Rituxan and sun isn't a good mix. I called my doctor today and he said to keep covered up while in the sun. Anyways...staying in is ok with me, the view alone from our living room is enough to keep me happy! You rest and take care of yourself. Much love...Sue
    (FNHL-2-3a-6/10)
  • onlytoday
    onlytoday Member Posts: 609 Member
    #27
    allmost60 said:

    Happy for you!
    Hi Donna,
    I'm so happy to hear the last treatment went well with no reactions...."YEAH"!I've gotten too much sun yesterday and today in the boat and developed a irritating rash on my arms, legs and chest. So...no fishing or sun for me until Monday. Been taking benedryl and using a medicated lotion which is helping...I guess Rituxan and sun isn't a good mix. I called my doctor today and he said to keep covered up while in the sun. Anyways...staying in is ok with me, the view alone from our living room is enough to keep me happy! You rest and take care of yourself. Much love...Sue
    (FNHL-2-3a-6/10)

    Sun, etc.
    Hi,

    Yes I am staying away from the sun. My red neck and face are from the drugs. I think it's the bendamustine. It seems to be fading a bit today. I am also holding about 7 pounds of water weight still- but it will pass.

    I am so relieved. So happy.

    So now I can get off of me and listen to you all and send support to you!

    Sue I'm glad you can enjoy the summer and just enjoy the view. We are truly blessed.

    Love and hugs to all,
    Donna
  • onlytoday
    onlytoday Member Posts: 609 Member
    #28
    allmost60 said:

    Happy for you!
    Hi Donna,
    I'm so happy to hear the last treatment went well with no reactions...."YEAH"!I've gotten too much sun yesterday and today in the boat and developed a irritating rash on my arms, legs and chest. So...no fishing or sun for me until Monday. Been taking benedryl and using a medicated lotion which is helping...I guess Rituxan and sun isn't a good mix. I called my doctor today and he said to keep covered up while in the sun. Anyways...staying in is ok with me, the view alone from our living room is enough to keep me happy! You rest and take care of yourself. Much love...Sue
    (FNHL-2-3a-6/10)

    Sun, etc.
    Hi,

    Yes I am staying away from the sun. My red neck and face are from the drugs. I think it's the bendamustine. It seems to be fading a bit today. I am also holding about 7 pounds of water weight still- but it will pass.

    I am so relieved. So happy.

    So now I can get off of me and listen to you all and send support to you!

    Sue I'm glad you can enjoy the summer and just enjoy the view. We are truly blessed.

    Love and hugs to all,
    Donna

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