warning...I'm gonna whine

Gabe N Abby Mom
Gabe N Abby Mom Member Posts: 2,413
in Breast Cancer #1
I HAAATE decadron!

I've only gained 4 pounds on the scale, but my stomach feels so bloated and fat ALL the time. I'm eating even when I'm not hungry, eat to the point of feeling simply gross. I'm having muscle cramps in my hands, feet, and legs.

On one level, the decadron makes me feel totally anxious and jittery. I'm impatient (a struggle for me anyway), grouchy. And then there is another level of rads fatigue...jittery fatigue, yuck!

I can feel the roundness in my face, feel it in my feet, feel it in my LE places.

On the plus side, my rads onc said I could start tapering off whenever I'm ready. So I reduced my dose yesterday by 2mg. I'll stay with that till I see him again on Tuesday. Also on the plus side, only 5 treatments left, one week. I'm almost done, and the countdown begins.

Thank you all for listening and letting me whine.

Hugs,

Linda

Comments

  • MAJW
    MAJW Member Posts: 2,510 Member
    #2
    Whine Away!
    NEVER apologize for whining!!!! You have ever right and reason! I totally get it! You'll feel so much better, once off the Decadron..and the weight gain will go away..... I get a bag of it before each chemo and it screws up my sleep for about 3 days...up at all hours and then a long daytime it's a nasty drug, but a needed one...I hated it when I was on it long term....

    And I am so glad this coming week is your last for the brain rads......whew! Again I know first hand what you're going through....hopefully you won't have the awful fatigue that I experienced.....started about a week after I was finished.....just rest when ever you can...

    Rooting you on to the finish line of rads!!!!! I have a feeling the pink bus will show up on your last day....my pink bus tutu is ready! A sorry sight for sure.....lol
    Great Big Hugs,
    Nancy
  • carkris
    carkris Member Posts: 4,553 Member
    #3
    MAJW said:

    Whine Away!
    NEVER apologize for whining!!!! You have ever right and reason! I totally get it! You'll feel so much better, once off the Decadron..and the weight gain will go away..... I get a bag of it before each chemo and it screws up my sleep for about 3 days...up at all hours and then a long daytime it's a nasty drug, but a needed one...I hated it when I was on it long term....

    And I am so glad this coming week is your last for the brain rads......whew! Again I know first hand what you're going through....hopefully you won't have the awful fatigue that I experienced.....started about a week after I was finished.....just rest when ever you can...

    Rooting you on to the finish line of rads!!!!! I have a feeling the pink bus will show up on your last day....my pink bus tutu is ready! A sorry sight for sure.....lol
    Great Big Hugs,
    Nancy

    you are far form whiney!
    you are far form whiney! Steroids are potent drugs, that can be helpful but have so many side effects. I am so glad you are almost done and are starting to taper. Remember its an effective wayto kill those nasty nasty @#$# cancer cells. We love you!
  • rallendorfer
    rallendorfer Member Posts: 244
    #4
    Sign me up for the Decadron HATE club
    But, as the sisters have said, we know it is for a good end result. Did you know it also elevates your sugar? Just found that out this last time at the Oncologist. Still, we need it to do a couple of things that I am aware of. I know it is a big inhibitor of allergic reaction to the chemo drugs, and it is used as an anti-nausea. Do you know what it is supposed to be doing for you for the rads?

    Almost there....can you smell the coffee at the finish line? I can hardly wait until coffee tastes like coffee again. I hope this week seems to fly by for you!
    {{{{Hugs}}}}
    Rebecca
  • MAJW
    MAJW Member Posts: 2,510 Member
    #5
    rallendorfer said:

    Sign me up for the Decadron HATE club
    But, as the sisters have said, we know it is for a good end result. Did you know it also elevates your sugar? Just found that out this last time at the Oncologist. Still, we need it to do a couple of things that I am aware of. I know it is a big inhibitor of allergic reaction to the chemo drugs, and it is used as an anti-nausea. Do you know what it is supposed to be doing for you for the rads?

    Almost there....can you smell the coffee at the finish line? I can hardly wait until coffee tastes like coffee again. I hope this week seems to fly by for you!
    {{{{Hugs}}}}
    Rebecca

    Brain Rads...
    Decadron is used during brain rads to prevent swelling of the brain....

    Hugs, Nancy
  • Pam5
    Pam5 Member Posts: 232
    #6
    MAJW said:

    Brain Rads...
    Decadron is used during brain rads to prevent swelling of the brain....

    Hugs, Nancy

    Decadron
    You are so brave and uncomplaining, Linda. I've taken Decadron off and on and it SUCKS!!! But it does cut swelling down and sometimes we have to do that.

    Hugs,
    Pam
  • camul
    camul Member Posts: 2,537
    #7
    that was only a small whine Linda!!
    I am part of this club. I get Decadron every Monday and one of my sons says I am lile a.crack wh**e for the next 2 days till it balances out. I always know that my house cleaning day is Tuesday because I can't stop moving. Then by Wednesday afternoon I have crashed and I sleep most of the next few.days. My weight has gone up since starting and I am short fused (although I really dont notice til it is pointed out, and they definately call me on it). Glad you are weaning off already and almost done with rads.
    Prayers and always hope for he best for you and your family Linda.
    Carol
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    #8
    camul said:

    that was only a small whine Linda!!
    I am part of this club. I get Decadron every Monday and one of my sons says I am lile a.crack wh**e for the next 2 days till it balances out. I always know that my house cleaning day is Tuesday because I can't stop moving. Then by Wednesday afternoon I have crashed and I sleep most of the next few.days. My weight has gone up since starting and I am short fused (although I really dont notice til it is pointed out, and they definately call me on it). Glad you are weaning off already and almost done with rads.
    Prayers and always hope for he best for you and your family Linda.
    Carol

    Oh Linda, Whine away and you
    Oh Linda, Whine away and you are so right about Decadron. Stay strong my friend and I'm praying for you.
    You are a strong warrior!
    Hugs,
    Wanda
  • Different Ballgame
    Different Ballgame Member Posts: 868
    #9
    You are entittled
    Linda,

    You have never whined!!! So....you are entitled to do it now. Hopefully, the good thing is that the side effects are temporary. Will you be off the decadron after the rad treatments?

    Lots of Hugs,
    Janelle
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #10
    linda:All whining accepted
    linda:

    All whining accepted here....

    I have no experience with decadron----but willing to listen (aka read)

    Denise

    I can some way relate...from Steriods gained over 25 lbs...uncomfortable etc..(for other health issue not BC)
  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    #11
    Vent Away
    Ahhh... you have every right to vent, Linda. I remember those drugs and the side effects they cause. So glad to hear you are near the end with rads! You are getting through this ordeal and making your way to the finish line! Hooray for Linda!

    Hugs.
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #12
    You never whine! You are
    You never whine! You are ventilating with every right to do so. Decadron is a nasty drug, isn't it? I feel so hyped up on it, but also tired because I can't sleep. I guess the word is "wired."

    Linda, I admire your courage and grace so much. Keep fighting! Glad you are nearly done. Big hugs!
  • missrenee
    missrenee Member Posts: 2,136 Member
    #13
    CypressCynthia said:

    You never whine! You are
    You never whine! You are ventilating with every right to do so. Decadron is a nasty drug, isn't it? I feel so hyped up on it, but also tired because I can't sleep. I guess the word is "wired."

    Linda, I admire your courage and grace so much. Keep fighting! Glad you are nearly done. Big hugs!

    You call that whining, Linda?!
    Nah. I call it getting the treatment that's going to help you, along with all the nasty side effects, but doing it anyway. That's called courage. So glad to hear you can start weaning off the Decadron. Crazy, but necessary drug.

    Keep looking ahead, Linda, to that light coming toward you at the end of this tunnel. You're almost there and, as always, you're doing it with great courage and class.

    Love and hugs, Renee
  • Frankie Shannon
    Frankie Shannon Member Posts: 457
    #14
    Whine all you what thats
    Whine all you what thats what where hear for,i'm on Tamoxifen and gained 17lbs all in the stomach and some on the hips but the stomach bugs me the most as even after 6 children and in my sixties and never had fat there it,I'm felling for you.Glad every thing else seems to be going well for you.
    Hugs Frankie
  • MsGebby
    MsGebby Member Posts: 659
    #15
    I'll bring the cheese
    OH WAIT!!! not that kind of WINE. hehe Hope you don't mind a little bit of silly.

    I am happy that the countdown begins. You actually aren't whining. You are anxious to get this over with. I am cheering you on.

    Keep on doing what you are doing. I mean, each new road block just gets blasted away because you are never a quitter. I love that about you.

    I am counting down with you and pray that as you get closer to that day, your spirits lift and you find inner peace.

    Luvya g/f


    Mary

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