oligoastrocytoma Grade II survivor 12 years

Hello everyone I'm new to this site but I wish I found it sooner.

My name is Scott I was diagnosed with a brain tumor in fall on 1998 it was a cancerous oligoastrocytoma grade 2 I only warning was a grand mall seizure in my sleep and I had waken up with blood on my shirt. At the time I was only 23 so I didn't have a clue that anything was wrong. I went to work like normal that night with a really bad headache but thought nothing of it. The next day I decided to go in and have it checked out and with the cat scan and then the follow up MRI they reveled a Brain Tumor. I was hopitalized immediately with the doctors deciding what to do. to make matters worse I had just started a new job so I never Cobra-ed my insurance. But anyway. They performed the sergury and took out the tumor. I was told that if this same thing would have happened 10 years earlier there would have been nothing they could do. As it was there was no known Chemo's or Radiation at the time of surgery. I was also told that it was a grade 2 cancer that took about 5 years to grow. If it was to return it would be about 5 more years. Fast forward 1 1/2 years later at my job I was interviewing a person for a potential job when all of a sudden I had this strong sensation of being electrocuted witch came and gone when I was interviewing him I didn't want to lead on that anything was wrong so I just continued interviewing him and talking. Then It came back so strong I knew something was wrong but I didn't know what. Next thing I knew I woke up in the emergency room. I had collapsed and had went into a comma then was rushed to the ER. Here we go again. The ER staff asked me, "Scott" do you know where you are right now? I looked up at all the equipment and said yes I'm in the ER again. Not 5 years later but only 1 1/2 years later. Well this time they wanted to be a little more aggressive and they started out by putting a grid in my head to see what areas of the brain the tumor was affecting. When they pressed button 1 and 2 it had affected both my throat mouth and tongue. So they knew they were not going to be able to operate in those areas. they contemplated having me awake for the surgery or being put out and both times they decided to put me out. Again I had the procedure done to remove the tumor and they had successfully removed 90-95 percent of it. This time it was the size a golf ball but it was reported that it still was a grade 2 it had not changed. Prior to this the MRI revealed that there was NO Tumor what so ever, so that proves that you can't always go by the MRI scan it never showed up even though it was still there, Scar tissue from the previous surgery might have covered up that area and that is the reason why they could not see it, maybe. But this time there was a radiation that they tried in me and it went ok. But still no known chemo treatments except for some experimental ones.
Well now what! it's been almost 12 years and I've been cancer free. I continue to have my followup MRI's yearly if not sooner. But after my Radiation treatments after the second surgery I noticed a few changes around me. I was very sensitive to the sun, I had very bad headaches, migraines, dizzy spells, and other complications. Because I was out of work so long with the surgery and Radiation I had lost my job. So I had started over at a retail store but it was very tough for awhile I was still healing from the second surgery, the first surgery went fast and I healed up to 100 percent in 5-6 Weeks the second surgery was not the same 12 years later I'm still not the same I still have random seizers, headaches, spasms on my left side, Etc. I've been on many different medications to help control the different problems. I always tell people to be fully honest with your doctors and even if they look at you funny when you describing something just ignore them and continue on. I live in Rochester Minnesota land of the world famous Mayo Clinic and even though they are not perfect "who is" they come pretty close. I have a great understanding doctor by the name of DR Jeffery Brittan he is my second doctor to tackle all of these problems. the important thing to remember is have your doctors bump their heads and really think about what they want to do unless its an emergency then you have no choice. Use the internet as a helpful resource to find out more about what kind of cancer you have, what treatments have worked in the paste even if you have to get a second opinion. At the time this happened 6 months later I had known someone with the same exact tumor the only difference was that it was in a spot that they could not operate. But with the advancements in the medical field there hopefully will be more options in the future.

I hope anyone that has this terrible Tumor/decease will see this and realize that with the right treatments you can live a somewhat normal life. I'm living proof that even though you get this decease twice I'm to stubborn to let it get the best of me.

Sincerely,

Scott D