information required urgently regarding stage 1 kidney cancer

godlovesall
godlovesall Member Posts: 14
edited July 2012 in Kidney Cancer #1
hello to all. i need some information regarding RCC and thus i joined this forum because i couldn't find any other better place. I'm not the patient but I want to ask for him. The person has got Conventional clear cell RCC stage 1, grade 2 localized to kidney 4.8cm (to greatest dia), no renal vein lymph spread nothing. Radical naph. has been done 2 weeks ago and now i want to know about the recurrence in future and how much cancer has been cured? in this type of stage. it's really worrying and scary to read about recurrences. can recurrences be treated completely, please help me as this is pretty scary the fear of recurrence.

please provide me some information and i would be really grateful to you all.

best regards and wishes!

Comments

  • Minnesota Girl
    Minnesota Girl Member Posts: 119
    #2
    It can be scary
    Based on the information you provided, the odds are highly in favor of NO recurrences. It will be important, however, to have a good regimen of long term follow-up care - regular CT scans, lab work, etc. If there were to be a recurrence, you would want it found as early as possible.
  • godlovesall
    godlovesall Member Posts: 14
    #3
    Minnesota Girl said:

    It can be scary
    Based on the information you provided, the odds are highly in favor of NO recurrences. It will be important, however, to have a good regimen of long term follow-up care - regular CT scans, lab work, etc. If there were to be a recurrence, you would want it found as early as possible.

    thank you very much for the
    thank you very much for the reply. The tumor was in the mid-pole region of the kidney that's why they did radical naphr. Doctors have advised to do a 3 month interval checkups and scans. I was so worried but your words are encouraging.

    thank you very much.
  • Minnesota Girl
    Minnesota Girl Member Posts: 119
    #4
    godlovesall said:

    thank you very much for the
    thank you very much for the reply. The tumor was in the mid-pole region of the kidney that's why they did radical naphr. Doctors have advised to do a 3 month interval checkups and scans. I was so worried but your words are encouraging.

    thank you very much.

    That's where mine was too
    So, I was not a candidate for partial. I'm sure they told you the other kidney will grow to compensate. Nine months after surgery I got to NORMAL kidney function. Chronic pain from the back and neck (plus all this stress) is draining, too. Just try to be patient.
  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #5
    Minnesota Girl said:

    That's where mine was too
    So, I was not a candidate for partial. I'm sure they told you the other kidney will grow to compensate. Nine months after surgery I got to NORMAL kidney function. Chronic pain from the back and neck (plus all this stress) is draining, too. Just try to be patient.

    4.8 cm
    At 4.0 cm and below the cure rate from the surgery alone is close to 100%. Your friend is at least in the upper 90's. Mine was 4.2cm and I have only had follow up tests since the surgery. In a few days it will be 10 years and counting.

    Icemantoo
  • godlovesall
    godlovesall Member Posts: 14
    #6
    icemantoo said:

    4.8 cm
    At 4.0 cm and below the cure rate from the surgery alone is close to 100%. Your friend is at least in the upper 90's. Mine was 4.2cm and I have only had follow up tests since the surgery. In a few days it will be 10 years and counting.

    Icemantoo

    Thank you for the reply. I
    Thank you for the reply. I want to ask if it recurs and caught early through timely scans, is it treatable completely? i'm really scared as you said that cure chances are not near to 100% :(

    It's nice to see 10 for you. Keep living strong, god bless you always!
  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #7
    godlovesall said:

    Thank you for the reply. I
    Thank you for the reply. I want to ask if it recurs and caught early through timely scans, is it treatable completely? i'm really scared as you said that cure chances are not near to 100% :(

    It's nice to see 10 for you. Keep living strong, god bless you always!

    If by some chace (say 2 or 3 % over a lifetime) with the annual tests any recurrance would be caught early. With these little bitty buggers thay have new procedures to freeze them (cybolation) or to Zap them(RFA). Much less than the nephrectomy that he just had.


    Icemantoo
  • godlovesall
    godlovesall Member Posts: 14
    #8
    icemantoo said:

    If by some chace (say 2 or 3 % over a lifetime) with the annual tests any recurrance would be caught early. With these little bitty buggers thay have new procedures to freeze them (cybolation) or to Zap them(RFA). Much less than the nephrectomy that he just had.


    Icemantoo

    thanks you for the reply. I
    thanks you for the reply. I hope there won't be any recurrence. Your words are also encouraging.
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    #9
    godlovesall said:

    thanks you for the reply. I
    thanks you for the reply. I hope there won't be any recurrence. Your words are also encouraging.

    Possible recurrence and treatment
    Don't worry about your friend, whose prospects are really very good.

    You've had excellent analyses from two of our long-standing and well-informed posters, both of whom had small tumours similar to your friend's, except that Mn Girl's was of a significantly more aggressive grade. Even so, you still seem to be anxious. So, perhaps I can give you another perspective in the hope that it will serve as a back-stop to your anxiety.

    Your friend has no observed metastases (spread) of his RCC which (RCC) he no longer has, since his successful nephrectomy - he no longer has cancer.

    His pathology was stage 1 and grade 2, where 1 is best and the worst is a 4. Many of us here have had very much worse pathologies but are still doing OK. Our poster boy, foxhd, had not only far worse stage and grade but also many mets to various parts of his anatomy but he is now biking long trips, running, lifting weights and playing golf.

    I've had a fun morning myself, immersed in 3 of my favourite sports - watching the Olympic Weightlifting and Rowing on TV while running for 45 minutes on my elliptical cross-trainer. (Our home teams (GB) scored great triumphs in the men's and women's lightweight double sculls heats, while the magnificent US women's 8 were amazing; I also had a great workout myself.)

    My pathology is stage 4, grade 4, with a few extras that made my prognosis dismal. According to the 'prediction' calculators my median survival expectation was like Fox's - something reckoned in months rather than years. After an open nephrectomy in December 2011, I had an immediate recurrence and another major open procedure at the end of March. If that proves to have 'got it all' I may be cured, which is the way it's looking right now, after a clinic on Thursday. I'm feeling fine, will be playing golf tomorrow, Wednesday and Friday and will fit in some 10k rowing sessions and elliptical work in between watching the Olympics. I'm expecting to reach my 70th birthday in a few weeks time, in great health, about a year out from my RCC diagnosis.

    Your friend's prognosis is incomparably better than Fox's and mine so you see you need to stop worrying about him! The likelihood of his suffering a recurrence is so small that he's much more likely to die of something other than cancer and, I hope, not for a very long time. Even in the unlikely event that he had a recurrence, it would be a cinch to deal with it by another (probably fairly innocuous) operation, to tie up a total cure.
  • godlovesall
    godlovesall Member Posts: 14
    #10
    Texas_wedge said:

    Possible recurrence and treatment
    Don't worry about your friend, whose prospects are really very good.

    You've had excellent analyses from two of our long-standing and well-informed posters, both of whom had small tumours similar to your friend's, except that Mn Girl's was of a significantly more aggressive grade. Even so, you still seem to be anxious. So, perhaps I can give you another perspective in the hope that it will serve as a back-stop to your anxiety.

    Your friend has no observed metastases (spread) of his RCC which (RCC) he no longer has, since his successful nephrectomy - he no longer has cancer.

    His pathology was stage 1 and grade 2, where 1 is best and the worst is a 4. Many of us here have had very much worse pathologies but are still doing OK. Our poster boy, foxhd, had not only far worse stage and grade but also many mets to various parts of his anatomy but he is now biking long trips, running, lifting weights and playing golf.

    I've had a fun morning myself, immersed in 3 of my favourite sports - watching the Olympic Weightlifting and Rowing on TV while running for 45 minutes on my elliptical cross-trainer. (Our home teams (GB) scored great triumphs in the men's and women's lightweight double sculls heats, while the magnificent US women's 8 were amazing; I also had a great workout myself.)

    My pathology is stage 4, grade 4, with a few extras that made my prognosis dismal. According to the 'prediction' calculators my median survival expectation was like Fox's - something reckoned in months rather than years. After an open nephrectomy in December 2011, I had an immediate recurrence and another major open procedure at the end of March. If that proves to have 'got it all' I may be cured, which is the way it's looking right now, after a clinic on Thursday. I'm feeling fine, will be playing golf tomorrow, Wednesday and Friday and will fit in some 10k rowing sessions and elliptical work in between watching the Olympics. I'm expecting to reach my 70th birthday in a few weeks time, in great health, about a year out from my RCC diagnosis.

    Your friend's prognosis is incomparably better than Fox's and mine so you see you need to stop worrying about him! The likelihood of his suffering a recurrence is so small that he's much more likely to die of something other than cancer and, I hope, not for a very long time. Even in the unlikely event that he had a recurrence, it would be a cinch to deal with it by another (probably fairly innocuous) operation, to tie up a total cure.

    Best regards
    Thank you very much from my heart for your encouraging words. I hope all things will go to the right way. Your information is pretty useful.

    I really pray to god to make all of you more strong and healthy forever and kill this stupid disease. Thank you once again to all of you for encouraging me as you know fear is obvious and we can't do anything about it.

    A heartly thank all of you and wish the good health and good life for you all. May god bless everyone.

    best regards!
  • godlovesall
    godlovesall Member Posts: 14
    #11
    tumor infiltration
    Sorry for bumping the thread but I need a few more info regarding the CT scan details.

    What do you mean by:

    "The main renal artery supplies the mass lesion and main renal vein
    drains the mass lesion. There is no tumor infiltration in the renal vein."

    and

    "The cut margin of renal vein, artery and ureter appear free grossly."

    and also

    "The tumor is seen abutting renal sinus grossly but not invading it."


    I would be very grateful if someone could explain me the meaning of these statements. Is there anything which I should worry about?

    Best regards!

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