Dr. Axel Rolle for lung mets

2»

Comments

  • BarryOz
    BarryOz Member Posts: 3
    #22
    JNR2011 said:

    My husband has Epitheliod
    My husband has Epitheliod Sarcoma. It began in his upper right thigh. He was diagnosed on 11/09 and had surgery for removal of the tumor on 2/10. On his second post-surgery scan we had mets to the lungs on 11/10. He was given Doxuribicin with the hopes that the tumors would shrink by 15% to operate. It shrunk by 50%. He had surgery 2/11 (you can tell that this is a yearly thing with diagnosis and surgeries). On his 2nd post-surgery scan last week, the diseased has progressed and spread through his lungs. Nowhere else, thank God. I will find out tomorrow what the next step will be, but I am sending over my husband's scans to Dr. Rolle immediately. I hear amazing things about him.

    Dr Rolles Surgery Outcomes
    Hi there,
    many thanks for your posts in August which are the most current I am able to find. As I currrently have several small lung mets only, after removal of the primary kidney cancer, I would appreciate any news of your husbands progress and outcomes of your experience with Dr Rolle towards a visit in the near future.
    Many thanks, Barry in Australia.
    ( You may wish to check my profile for a report on my success on a current US/Australian trial )
  • marratu
    marratu Member Posts: 1
    #23
    olgaT said:

    Laser assisted surgery/Dr.Rolle
    Did you guys find the info about Dr.Rolle you've been looking for?
    My son is his patient since 2005 and he had 2 rounds of the lung surgeries there in Germany - he had very multiple lung mets and our surgeons in Canada could not help him, but Dr.Rolle could and my son is surviving with the very good quality of life after he had more then 100 very small mets removed since 2005.
    If you need more info, ask me.
    To find dr Rolle contact him directly his info on the surgeons network is here
    http://www.ctsnet.org/home/arolle
    he is great and their hospital is one of its kind, they only do lungs there.

    Dr. Rolle
    Hello I read your post and I hope that your son is doing well! I am in contact with Dr. Rolle and planning to have surgery with him in Germany. Any information you could give me I would greatly appreciate -- what was the procedure, how was the recovery, etc.
    I also was curious if aside from the surgery your son had done any other treatments for lung mets , chemo, or immunotherapy or other alternative therapies. I think you in advance for your consideration and your time. I hope you and your family are well and happy. Sincerely, Maria
  • danileaming
    danileaming Member Posts: 1
    #24
    JNR2011 said:

    My husband has Epitheliod
    My husband has Epitheliod Sarcoma. It began in his upper right thigh. He was diagnosed on 11/09 and had surgery for removal of the tumor on 2/10. On his second post-surgery scan we had mets to the lungs on 11/10. He was given Doxuribicin with the hopes that the tumors would shrink by 15% to operate. It shrunk by 50%. He had surgery 2/11 (you can tell that this is a yearly thing with diagnosis and surgeries). On his 2nd post-surgery scan last week, the diseased has progressed and spread through his lungs. Nowhere else, thank God. I will find out tomorrow what the next step will be, but I am sending over my husband's scans to Dr. Rolle immediately. I hear amazing things about him.

    thats great about your
    thats great about your husband, im 32 mother of very young children and silimar diagnosis, 10cm mass on gluteus muscle and several in both lungs could you update me on your husband as this is very rare and im scared, i also am stage 4
  • Selina Meyer
    Selina Meyer Member Posts: 3
    #25
    Has anyone been to Axel Rolle

    I am looking at any information I can get on Dr. Axel Rolle in Germany.  My husband had a 32 1b sarcoma tumor removed in Dec. and has spots in his lungs.  I was wondering about the procedure and any information I can get on Dr. Rolle.  I see some information from a few years ago but nothing current.  Can anyone help me??

    Please feel free to email me at 1soonerfan13@gmail.com

     

    Selina

     

  • yacov
    yacov Member Posts: 1
    #26
    tom-in-ojai said:

    Dr. Rolle surgeries
    I have a rare sarcoma (hemangiopericytoma) that has metastacized. In spring 2007 I went to Germany twice for two thorocotomies with Dr. Rolle and team - 30-40 mets on each side removed. A truly wonderful experience - his technical brilliance as well as genuine human kindness. Plus the whole German after-care experience, 3 weeks rehabilitation, excellent food (they packed a picnic basket for an outing to the lake) and caring staff. A high point in my journey with this disease. Hopefully FDA approval for his technology in the US soon, on solid organ tumors too.
    Tom

    hemangiopercytoma

    To tom-in-ojai

    Hi:

    i read your comment of Dec. 30 2009 and would like to hear from you further details on yourself since that date, did any of the nodules recur, etc, my wife has the same medical condition of hemangiopericytoma which now metastasized to lungs, and we are thinking about Dr. Rolle for surgery.

    Please respond. Thanks

     

     

  • medstudent103
    medstudent103 Member Posts: 1
    #27
    olgaT said:

    Laser assisted surgery/Dr.Rolle
    Did you guys find the info about Dr.Rolle you've been looking for?
    My son is his patient since 2005 and he had 2 rounds of the lung surgeries there in Germany - he had very multiple lung mets and our surgeons in Canada could not help him, but Dr.Rolle could and my son is surviving with the very good quality of life after he had more then 100 very small mets removed since 2005.
    If you need more info, ask me.
    To find dr Rolle contact him directly his info on the surgeons network is here
    http://www.ctsnet.org/home/arolle
    he is great and their hospital is one of its kind, they only do lungs there.

    Dr. Rolle

    Hello Olga, was nice to hear about the success of your son's surgery with Dr. Rolle. How is he doing these days? My husband is considering Germany as an option but was wondering if you wouldn't mind sending us some info on your son's procedure, recovery and how he doing since - is he disease free so far? This is a stressful time for us so any info we can gather helps us make a wiser decision on what we should do. 

     

    Hope to hear from you soon.

  • mprousko
    mprousko Member Posts: 1
    #28
    tom-in-ojai said:

    Dr. Rolle surgeries
    I have a rare sarcoma (hemangiopericytoma) that has metastacized. In spring 2007 I went to Germany twice for two thorocotomies with Dr. Rolle and team - 30-40 mets on each side removed. A truly wonderful experience - his technical brilliance as well as genuine human kindness. Plus the whole German after-care experience, 3 weeks rehabilitation, excellent food (they packed a picnic basket for an outing to the lake) and caring staff. A high point in my journey with this disease. Hopefully FDA approval for his technology in the US soon, on solid organ tumors too.
    Tom

    lung metastases

    Dear Tom,

    my child has lung metastases and I would like to ask you some details about Dr. Rolle. If you received my e-mail please tell me. Thank you very much,   mprousko

Discussion Boards