Worst day(s) during cycle
Comments
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ROOKIE ???Aaron said:Good, I hear if you wait too
Good, I hear if you wait too long it's mighty tough to recover. Just eat BLAND Sharlene, trust me you'll thank me for that later and keep rinsing with salt water and baking soda water ( around a .25 tsp each per 1/2 cup water) and sennakot. Hang in there my friend. You should consider starting a thread, the folks on here are so experianced, they are a godsend to chemo rookies like us.
You may be a rookie,but remember you are playing in the Major Leagues now. John0 -
ROOKIE ???Aaron said:Good, I hear if you wait too
Good, I hear if you wait too long it's mighty tough to recover. Just eat BLAND Sharlene, trust me you'll thank me for that later and keep rinsing with salt water and baking soda water ( around a .25 tsp each per 1/2 cup water) and sennakot. Hang in there my friend. You should consider starting a thread, the folks on here are so experianced, they are a godsend to chemo rookies like us.
You may be a rookie,but remember you are playing in the Major Leagues now. John0 -
Yeah, we should get gold ringsCOBRA666 said:ROOKIE ???
You may be a rookie,but remember you are playing in the Major Leagues now. John
Yeah, John. I think we should all get gold rings just for getting
through this! Of course I'd probably have to hock mine to help
with bills
.
Aaron, hope you're doing better
Jim0 -
Are you kiddIng mejimwins said:Yeah, we should get gold rings
Yeah, John. I think we should all get gold rings just for getting
through this! Of course I'd probably have to hock mine to help
with bills.
Aaron, hope you're doing better
Jim
From feeling better than I have in a week to at the ER at 11 at night with a mystery fever that keeps coming and going. The coaster rolls on... I'll let y'all know what's up when I find out.0 -
ERAaron said:Are you kiddIng me
From feeling better than I have in a week to at the ER at 11 at night with a mystery fever that keeps coming and going. The coaster rolls on... I'll let y'all know what's up when I find out.
Aaron,
Two days after my uneventful first infusion I was admitted to the Oncology Ward at the local hospital -- my wbc had plunged. It will be one of the first things that they check you for, of course. (Neulasta later got everything levelled out, and this did not ever re-occur for me).
It was sort of funny in a way: The docs would say, "Chemo will cause your wbc to drop, and that may explain your fever. And, we have checked you for a dozen infection strains, and all are negative, but we are going to keep you here, just in case."
The whole while, they were pouring antibiotics into me, "just in case." I received so many antibiotics that I got an allergic reation, "Red Man Syndrom," with hives. It was horrible, and took five days on steroids to clear up.
The whole thing was wbc-driven, never with a sign of infection. After three days of "just in case," they released me.
Do keep us posted,
max
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WellER
Aaron,
Two days after my uneventful first infusion I was admitted to the Oncology Ward at the local hospital -- my wbc had plunged. It will be one of the first things that they check you for, of course. (Neulasta later got everything levelled out, and this did not ever re-occur for me).
It was sort of funny in a way: The docs would say, "Chemo will cause your wbc to drop, and that may explain your fever. And, we have checked you for a dozen infection strains, and all are negative, but we are going to keep you here, just in case."
The whole while, they were pouring antibiotics into me, "just in case." I received so many antibiotics that I got an allergic reation, "Red Man Syndrom," with hives. It was horrible, and took five days on steroids to clear up.
The whole thing was wbc-driven, never with a sign of infection. After three days of "just in case," they released me.
Do keep us posted,
max
.
They said my counts looked fine and no sign of infections so they sent me home. I'm getting ahold of my Onc tomorrow for good measure.0 -
Home, Sweet HomeAaron said:Well
They said my counts looked fine and no sign of infections so they sent me home. I'm getting ahold of my Onc tomorrow for good measure.
Excellent ! You dodged the three-day waste of money that I went through.
max0 -
Huh ?Aaron said:Well
They said my counts looked fine and no sign of infections so they sent me home. I'm getting ahold of my Onc tomorrow for good measure.
Is it me, Aaron, or are you not off to a velvety-smooth start with this thing ?0 -
??Huh ?
Is it me, Aaron, or are you not off to a velvety-smooth start with this thing ?
Aaron,
What's new? No word from you in some time.
max
.0 -
Hey max??
Aaron,
What's new? No word from you in some time.
max
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Ive been feeling pretty good for the last few days so the family's been keeping me busy. Besides, you know me I need something to bit$& about. Did you convince your friend to go to the v.a. to get looked at yet? It sure sounds like he needs some seeing to. Sure hope he doesn't have lymphoma, this crap sucks. Hope your doing well my friend and not working too hard in that carolina heat and I'll be back to pissin and moanin about something in no time. Aaron 0 -
Hey AaronAaron said:Hey max
Ive been feeling pretty good for the last few days so the family's been keeping me busy. Besides, you know me I need something to bit$& about. Did you convince your friend to go to the v.a. to get looked at yet? It sure sounds like he needs some seeing to. Sure hope he doesn't have lymphoma, this crap sucks. Hope your doing well my friend and not working too hard in that carolina heat and I'll be back to pissin and moanin about something in no time. Aaron
I'm glad you're feeling better.
Who pisses and moans here? LOL.
You have a good attitude - you know how beneficial that is!
I think things will be better for you as you learn to "tweak"
during this process. The mouth issues better? Don't overdo
your activities - remember you need to rest even if you don't
feel like it sometimes.
Jim0 -
That is a lesson welljimwins said:Hey Aaron
I'm glad you're feeling better.
Who pisses and moans here? LOL.
You have a good attitude - you know how beneficial that is!
I think things will be better for you as you learn to "tweak"
during this process. The mouth issues better? Don't overdo
your activities - remember you need to rest even if you don't
feel like it sometimes.
Jim
That is a lesson well learned for me this weekend Jim. I'd be going along like normal and before long I could feel my legs start to weaken and I would feel a unfamiliar type of tiredness come on. As far as the mouth thing I sure hope I figure out a few "tweaks" cause so far that has been the worst part.0 -
Aaron,Aaron said:That is a lesson well
That is a lesson well learned for me this weekend Jim. I'd be going along like normal and before long I could feel my legs start to weaken and I would feel a unfamiliar type of tiredness come on. As far as the mouth thing I sure hope I figure out a few "tweaks" cause so far that has been the worst part.
Thanks for the update. I never had energetic days, so it must speak to your strength.
I am going to call my supervisor at work tomorrow (Wednesday), and see what has transpired regarding his night sweats.
Man, I never viewed you as a "whiner."
I did 25 days in ICU in 1986, after going out of the window of a car, which then rolled over me, and then it took about a year more for me to re-learn how to walk. I went from around 150 to around 100. I would tell folks face-to-face about my experiences, and when when they started crying, I always realized that I had gone on too long. I feared that I was "complaining," and many times I would ask if I seemed to be whining. Every time, they yelled "No ! No man ! I just can't fathom all of this," etc.
Ergo, speak your mind. It aint whining.
max
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WhiningAaron,
Thanks for the update. I never had energetic days, so it must speak to your strength.
I am going to call my supervisor at work tomorrow (Wednesday), and see what has transpired regarding his night sweats.
Man, I never viewed you as a "whiner."
I did 25 days in ICU in 1986, after going out of the window of a car, which then rolled over me, and then it took about a year more for me to re-learn how to walk. I went from around 150 to around 100. I would tell folks face-to-face about my experiences, and when when they started crying, I always realized that I had gone on too long. I feared that I was "complaining," and many times I would ask if I seemed to be whining. Every time, they yelled "No ! No man ! I just can't fathom all of this," etc.
Ergo, speak your mind. It aint whining.
max
.
Ugh... I know that I'd always felt like I was a whiner before only because every time I turned around I was sick with something, or something wasn't right. It seemed that as soon as I got over one thing, something else would happen. While getting the lymphoma diagnosis and my other issue finally no longer misdiagnosed wasn't "great" at least then I finally felt justified for whining. LOL!! I still feel like I'm whining if I complain about not feeling so great, or just not feeling right from time to time. It's not really been all that long since my last round anyway, so maybe I'm allowed a lil bit.
But, then I get the "you've been doing this or that" and having all this energy back so fast, that I just sometimes feel like others won't "allow" me to have a down day or not feel well for a bit. I'm the type that keeps running until I'm totally wiped. I'm about there now. LOL! I jumped back into full time work, and this past weekend was SO busy! I am feeling it now. Ugh! So, tonight I took a night off my usual park walk, and not so motivated to get the clothes and aquarium done, and it's 9pm already! Where did the day go??0 -
High-pitched w......AngeH said:Whining
Ugh... I know that I'd always felt like I was a whiner before only because every time I turned around I was sick with something, or something wasn't right. It seemed that as soon as I got over one thing, something else would happen. While getting the lymphoma diagnosis and my other issue finally no longer misdiagnosed wasn't "great" at least then I finally felt justified for whining. LOL!! I still feel like I'm whining if I complain about not feeling so great, or just not feeling right from time to time. It's not really been all that long since my last round anyway, so maybe I'm allowed a lil bit.
But, then I get the "you've been doing this or that" and having all this energy back so fast, that I just sometimes feel like others won't "allow" me to have a down day or not feel well for a bit. I'm the type that keeps running until I'm totally wiped. I'm about there now. LOL! I jumped back into full time work, and this past weekend was SO busy! I am feeling it now. Ugh! So, tonight I took a night off my usual park walk, and not so motivated to get the clothes and aquarium done, and it's 9pm already! Where did the day go??
Along with Aaron, I dub you an official non-whiner!
Crushed in a car crash, lymphoma, and now possibly looking at both Parkinson's and an organ failure (not certain, and not cancer related).
My fundamental attitude is thanksgiving to the On High.
max0 -
You better not be having noHigh-pitched w......
Along with Aaron, I dub you an official non-whiner!
Crushed in a car crash, lymphoma, and now possibly looking at both Parkinson's and an organ failure (not certain, and not cancer related).
My fundamental attitude is thanksgiving to the On High.
max
You better not be having no organ failure sir, your way to salty of an old sailor to let that happen my friend. As far as the whining thing I was just throwing out some of my well known and often annoying self deprecating humor, its been known to fall flat from time to time. That said I think WE ALL have every right to piss and moan about how tough life can be.... The fact we don't speaks volumes to me about th character of the fine individuals that frequent this forum. Stay strong max and tell your organs failure is not an option! Aaron0 -
Vacation...Aaron said:You better not be having no
You better not be having no organ failure sir, your way to salty of an old sailor to let that happen my friend. As far as the whining thing I was just throwing out some of my well known and often annoying self deprecating humor, its been known to fall flat from time to time. That said I think WE ALL have every right to piss and moan about how tough life can be.... The fact we don't speaks volumes to me about th character of the fine individuals that frequent this forum. Stay strong max and tell your organs failure is not an option! Aaron
I went for labs for my family doc, called three days later for results, and he is "gone for two weeks vacation." I guess I will hear something by around next Tuesday or thereabout. The nurse who took my call did tell me that I was negative for Hep C, which was one of the concerns. So far, so good. It may be good news on Tues (that rhymes !).
I do not want to wander off of the lymphoma track, but will keep you personally informed.
Your jokes are the best, always.
max0 -
My symptoms also hit meVacation...
I went for labs for my family doc, called three days later for results, and he is "gone for two weeks vacation." I guess I will hear something by around next Tuesday or thereabout. The nurse who took my call did tell me that I was negative for Hep C, which was one of the concerns. So far, so good. It may be good news on Tues (that rhymes !).
I do not want to wander off of the lymphoma track, but will keep you personally informed.
Your jokes are the best, always.
max
My symptoms also hit me after the 5 days of prednisone. I'd say maybe 2 days afterwards. The duration they last I found varies.
The 3rd chemo hit me much harder than the first two (I'd say 1-1/2 wks of feeling crummy.) : fatigue, tummy issues, muscle aches, wobbly legs and lost weight. I'd get up, go to a room, sit down, do what I needed, sit down, and then return. I had a volunteer drive me to the onocologist as I didn't want to trust my driving. I got through it though and gained back the weight. I have my 4th chemo this week so hope symptoms are not as bad. I had one dr say cumulative and another say the 1st chemo symptoms were the worse so I guess maybe it is different for everyone? I am just happy dr said chemo is working!!!!!
Dr had a therapist come out to "access" me and by then I wasn't as bad but my balance was off so I got exercises to help. I also finally did get a home helper in for 3 hrs and she caught up on all my physical house stuff that in my shape then would have taken me days to do. Cleaned bathroom, cleaned kitchen dishes & countertops, recycles out, sponged all floors and vacuumed carpet.
So don't be hesitant to call and get help if needed. Also stock up on foods that are quick to fix like soups, beef stew, 12" plain sub you can eat a bit at a time, Gatorade, etc.0
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