Update, Met Dr. Lowy for second opinion
On Tues I got my port checked and I am cleared to finally shower! I got my staples out, but not the drain. I am still outputting quite a bit of fluid, so they said a few more weeks for that.
Please pray specifically that my small bowel is not affected, and that Dr. Lowy's game plan can move forward smoothly. Also for the path report to confirm low-grade. Please pray for financial provision to help with our almost $5,000 a month share-of-cost insurance. Many thanks!
Comments
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Hang in there. You have had
Hang in there. You have had lots of info and things to deal with. Kim0 -
So happy for you... itkimberly sue 63 said:Hang in there. You have had
Hang in there. You have had lots of info and things to deal with. Kim
So happy for you... it really makes a difference with appendix cancers to talk to the right doctors! So glad you connected with Dr. Lowy and, it sounds like you are more hopeful now. Still a very tough road ahead but you are on the right track and can do it!! Even though it's rare... you still are not alone. I found 2 other people in the area where I live that also had appendix cancer. All cancers are scary but it is harder, I think, when it is rare and many drs don't know what to do with it. Keep us updated... I'm routing for you .0 -
Dear KaleRuffy7 said:So happy for you... it
So happy for you... it really makes a difference with appendix cancers to talk to the right doctors! So glad you connected with Dr. Lowy and, it sounds like you are more hopeful now. Still a very tough road ahead but you are on the right track and can do it!! Even though it's rare... you still are not alone. I found 2 other people in the area where I live that also had appendix cancer. All cancers are scary but it is harder, I think, when it is rare and many drs don't know what to do with it. Keep us updated... I'm routing for you .
So glad that things sound so hopeful for you with this new doctor. I am praying for you!
Kelly0 -
This is really good news, Kalelovesanimals said:Dear Kale
So glad that things sound so hopeful for you with this new doctor. I am praying for you!
Kelly
and I will pray that you get the best possible results.
Karen0 -
So glad you got a Specialist's opinion
GI oncs, even the best of them, if they don't know appendix cancer want to go the "Colon Cancer" route, which is not the best route for appendix cancer. One of my initial consultations was with one of the country's top oncs, but not an Appendix expert, and he was pressuring me to do the systemic chemo first. Fortunately, I also consulted with an Appendix Cancer expert, who explained, and guided me down what has been a very successful path.
While I didn't have HIPEC, I did have major debulking/cytoreductive surgery followed by multiple 3 day sessions of IP (Intra Peritoneal) chemo, which Sloan Kettering feels, at least in my case, is just as effective as (and less traumatic than) HIPEC. I had a very difficult time with my surgery and IP chemo, but am doing everything now. (Off to a curling - on ice - tournament in Cape Cod this weekend!)
You are now in the right hands. It will be very difficult. But you will get through.
All the best,
Alice0
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