Cancer Nutrition

2»

Comments

  • MAJW
    MAJW Member Posts: 2,510 Member
    fauxma said:

    Bubba,What is your cancer
    Bubba,
    What is your cancer diagnosis? I didn't see anything on your profile so I am curious about your stage, grade, type of breast cancer. Are you in treatment now? Please introduce yourself to us.
    I think it is great to open a dialog about nutrition and you and Nancy both seem to have knowledge about each of your positions. I always appreciate hearing different views on every aspect of cancer.
    But the one thing that you haven't mentioned is that your oncologist, doctor have made these recommendations or supported them for your cancer. Do they feel that this is the best way for you to fight your cancer? Or are you not fighting cancer and just here to advise us how we should fight our cancers? Because if that is the case then we can take your suggestions back to our doctors and see how they feel about them. As a diabetic and cancer survivor my doctors recommend a balanced diet (including carbs), exercise, and regular doctor visits to my oncologists and PCP. So that is what I will continue to do.
    Thank you for expressing your views and the many links you have provided.

    Stef

    I agree...
    I have to agree with Stef......you've never said anything about yourself.... Bubba are you on this site to "hawk something...? If that is your intent...please...what REALLY caught my eye in re-reading your posts was the, I believe, foods that prevent cancer....I can't believe that the millions that have cancer all had crappy diets! Don't buy it for one minute that certain foods could prevent cancer!!!!!
  • missrenee
    missrenee Member Posts: 2,136 Member
    MAJW said:

    I agree...
    I have to agree with Stef......you've never said anything about yourself.... Bubba are you on this site to "hawk something...? If that is your intent...please...what REALLY caught my eye in re-reading your posts was the, I believe, foods that prevent cancer....I can't believe that the millions that have cancer all had crappy diets! Don't buy it for one minute that certain foods could prevent cancer!!!!!

    Okay--I'm with ksf, Stef and MAJW
    I feel like I've been reading the equivalent of "Dueling Banjos"! In my humble opinion, this site is invaluable for information, encouragement, understanding and love. However, this back and forth posting sounds like a "right-fight" to me. It's true, some of us know alot more about certain subjects than others, but please, let's keep this exchange of info in the spirit of all of our wonderful cancer patients here--giving information with a sweet spirit and encouragement for all of us to be well and happy.

    And, by the way, if my days are limited (as all of our days are), I prefer to be seen with a brownie in one hand and an excellent glass of Chardonnay in the other. Just sayin'!

    Hugs, Renee
  • NancyJac
    NancyJac Member Posts: 91
    missrenee said:

    Okay--I'm with ksf, Stef and MAJW
    I feel like I've been reading the equivalent of "Dueling Banjos"! In my humble opinion, this site is invaluable for information, encouragement, understanding and love. However, this back and forth posting sounds like a "right-fight" to me. It's true, some of us know alot more about certain subjects than others, but please, let's keep this exchange of info in the spirit of all of our wonderful cancer patients here--giving information with a sweet spirit and encouragement for all of us to be well and happy.

    And, by the way, if my days are limited (as all of our days are), I prefer to be seen with a brownie in one hand and an excellent glass of Chardonnay in the other. Just sayin'!

    Hugs, Renee

    Well I just can't seem to
    Well I just can't seem to stay out of trouble here regardless. My opinions are deemed offensive, my information and experience is seen as argumentative, my spirit is not sweet enough (whatever that means) and a 2 person conversation about nutrition has been turned into something it was not by everyone else that posted. If our conversation made you uncomfortable, just stay out of it and don't read it. How does it benefit anyone to jump into this thread just to bad mouth the two people having a conversation?

    I get that this is a very touchy feely site which is probably not a very good fit for me anyway. I have given this my best shot twice now, but I am not going to pretend to be someone I am not just to fit into the mold here, nor am I interested in having to constantly walk on eggs for fear of someone being offended by anything and everything that I say.

    I have been active on a site called What Next for several months and cancer patients/survivors/caretakers there seem to be more interested in sharing information and experiences and less about the one upping and ganging up that I have found here. I actually became aware of this site from someone at that site. Some one here told me that this is a sorority of sisters. That is all well and good, but some of us are just not willing to go through hell week and be treated like servants or children before we are accepted into the clique. So I respectfully suggest that you examine and reflect upon your own "spirit" before throwing stones on others.

    I wish all of you all the very best.

    Nancy
  • MAJW
    MAJW Member Posts: 2,510 Member
    NancyJac said:

    Well I just can't seem to
    Well I just can't seem to stay out of trouble here regardless. My opinions are deemed offensive, my information and experience is seen as argumentative, my spirit is not sweet enough (whatever that means) and a 2 person conversation about nutrition has been turned into something it was not by everyone else that posted. If our conversation made you uncomfortable, just stay out of it and don't read it. How does it benefit anyone to jump into this thread just to bad mouth the two people having a conversation?

    I get that this is a very touchy feely site which is probably not a very good fit for me anyway. I have given this my best shot twice now, but I am not going to pretend to be someone I am not just to fit into the mold here, nor am I interested in having to constantly walk on eggs for fear of someone being offended by anything and everything that I say.

    I have been active on a site called What Next for several months and cancer patients/survivors/caretakers there seem to be more interested in sharing information and experiences and less about the one upping and ganging up that I have found here. I actually became aware of this site from someone at that site. Some one here told me that this is a sorority of sisters. That is all well and good, but some of us are just not willing to go through hell week and be treated like servants or children before we are accepted into the clique. So I respectfully suggest that you examine and reflect upon your own "spirit" before throwing stones on others.

    I wish all of you all the very best.

    Nancy

    I'll make the brownies if you'll bring the wine....lol

    Hugs,
    Nancy. MAJW
  • bubba29
    bubba29 Member Posts: 14
    NancyJac said:

    Well I just can't seem to
    Well I just can't seem to stay out of trouble here regardless. My opinions are deemed offensive, my information and experience is seen as argumentative, my spirit is not sweet enough (whatever that means) and a 2 person conversation about nutrition has been turned into something it was not by everyone else that posted. If our conversation made you uncomfortable, just stay out of it and don't read it. How does it benefit anyone to jump into this thread just to bad mouth the two people having a conversation?

    I get that this is a very touchy feely site which is probably not a very good fit for me anyway. I have given this my best shot twice now, but I am not going to pretend to be someone I am not just to fit into the mold here, nor am I interested in having to constantly walk on eggs for fear of someone being offended by anything and everything that I say.

    I have been active on a site called What Next for several months and cancer patients/survivors/caretakers there seem to be more interested in sharing information and experiences and less about the one upping and ganging up that I have found here. I actually became aware of this site from someone at that site. Some one here told me that this is a sorority of sisters. That is all well and good, but some of us are just not willing to go through hell week and be treated like servants or children before we are accepted into the clique. So I respectfully suggest that you examine and reflect upon your own "spirit" before throwing stones on others.

    I wish all of you all the very best.

    Nancy

    first, i don't have cancer
    first, i don't have cancer and never have. have had family and friends with it. it is sad and i am posting here to hopefully share information that can help people. i too am new to this site and am surprised that many would rather just have hugs and kisses rather that 2 people debate a subject that very well could help millions.

    i still encourage everyone here to watch this presentation from one of the top cancer research facilities in the world. skip to the 27 minute mark if you would like to get the crux of the scientific presentation.
    http://www.youtube.com/watch?feature=player_embedded&v=WUlE1VHGA40

    here is a quote from the presentation:

    "if you overfeed somebody with carbohydrates you dramatically increase their cancer rate"

    here is another quote from a different study:
    "Over the last years, evidence has accumulated suggesting that by systematically reducing the amount of dietary carbohydrates (CHOs) one could suppress, or at least delay, the emergence of cancer, and that proliferation of already existing tumor cells could be slowed down."
    http://www.ncbi.nlm.nih.gov/pubmed/22029671

    Another study:
    "Our results indicate that a diet with a high GL and carbohydrate intake is positively associated with an increased risk of developing estrogen receptor and progesterone receptor breast cancer among postmenopausal women."
    http://www.ncbi.nlm.nih.gov/pubmed/22760570

    Another study:
    "Taken together, our findings offer a compelling preclinical illustration of the ability of a low CHO diet in not only restricting weight gain but also cancer development and progression."
    http://www.ncbi.nlm.nih.gov/pubmed/21673053

    take these studies to your oncologist and ask them their impression.
  • MAJW
    MAJW Member Posts: 2,510 Member
    bubba29 said:

    first, i don't have cancer
    first, i don't have cancer and never have. have had family and friends with it. it is sad and i am posting here to hopefully share information that can help people. i too am new to this site and am surprised that many would rather just have hugs and kisses rather that 2 people debate a subject that very well could help millions.

    i still encourage everyone here to watch this presentation from one of the top cancer research facilities in the world. skip to the 27 minute mark if you would like to get the crux of the scientific presentation.
    http://www.youtube.com/watch?feature=player_embedded&v=WUlE1VHGA40

    here is a quote from the presentation:

    "if you overfeed somebody with carbohydrates you dramatically increase their cancer rate"

    here is another quote from a different study:
    "Over the last years, evidence has accumulated suggesting that by systematically reducing the amount of dietary carbohydrates (CHOs) one could suppress, or at least delay, the emergence of cancer, and that proliferation of already existing tumor cells could be slowed down."
    http://www.ncbi.nlm.nih.gov/pubmed/22029671

    Another study:
    "Our results indicate that a diet with a high GL and carbohydrate intake is positively associated with an increased risk of developing estrogen receptor and progesterone receptor breast cancer among postmenopausal women."
    http://www.ncbi.nlm.nih.gov/pubmed/22760570

    Another study:
    "Taken together, our findings offer a compelling preclinical illustration of the ability of a low CHO diet in not only restricting weight gain but also cancer development and progression."
    http://www.ncbi.nlm.nih.gov/pubmed/21673053

    take these studies to your oncologist and ask them their impression.

    I have..
    I have had these types of conversations with my oncologist...I have specifically asked about sugar...his advice, eat what I want....he's a well respected Oncologist, head of oncology and hematology at the cancer center I go to.... brilliant, actually...and he's been my oncologist for 3 years....I'm always interested in "studies" but I don't always agree with them ...and following his advice is what I follow....always...I can appreciate the info you provided but again, those are just studies...

    I know someone, personally, who decided to fore go conventional treatment and instead went on this no sugar,no carbs, etc....she, sadly died...
  • salls41
    salls41 Member Posts: 340
    MAJW said:

    I have..
    I have had these types of conversations with my oncologist...I have specifically asked about sugar...his advice, eat what I want....he's a well respected Oncologist, head of oncology and hematology at the cancer center I go to.... brilliant, actually...and he's been my oncologist for 3 years....I'm always interested in "studies" but I don't always agree with them ...and following his advice is what I follow....always...I can appreciate the info you provided but again, those are just studies...

    I know someone, personally, who decided to fore go conventional treatment and instead went on this no sugar,no carbs, etc....she, sadly died...

    Me too
    I just knew my oncolog was going to have all sorts of organic healthy advice for me when I finished my treatment. So I too the offensive and asked.. "Ok now what do I do about my diet, foods to avoid?" and she smiled and told me I did need to drop a few pounds (which we had talked about in previous appts)but I should eat what I want in moderate amounts and always try to include my fresh fruits, veggies and nuts everyday. Well thats not a cancer diet because all of my doctors say the same thing. Avoid TOO MUCH red meat, be smart about potatoes and bread and pasta, and always incorporate lots of fruit and veggies.

    Can I come along for chardonnay and brownies?
    Sandy
  • debsweb18
    debsweb18 Member Posts: 191 Member
    salls41 said:

    Me too
    I just knew my oncolog was going to have all sorts of organic healthy advice for me when I finished my treatment. So I too the offensive and asked.. "Ok now what do I do about my diet, foods to avoid?" and she smiled and told me I did need to drop a few pounds (which we had talked about in previous appts)but I should eat what I want in moderate amounts and always try to include my fresh fruits, veggies and nuts everyday. Well thats not a cancer diet because all of my doctors say the same thing. Avoid TOO MUCH red meat, be smart about potatoes and bread and pasta, and always incorporate lots of fruit and veggies.

    Can I come along for chardonnay and brownies?
    Sandy

    Sandy
    My first oncologist said anything in moderation. What's moderation? Then I asked my breast surgeon about diet. (Like Sandy I had to be proactive-no one offered me advice). My BS said sugar's really bad for you, eat lots of spinach and kale and no more than 3 alcoholic drinks/week. I immediately stopped eating the several handful of mini chocs every night that my husband always buys at Costco (well I still eat a 1 or 2). In a few weeks, I asked my new oncologist the same question. He said it's not so much what I eat, it's that I don't gain weight because fat increases estrogen production. He also bumped me up to 4 drinks a week (although I rarely get there) and said no bottled water because of the BPA. I'm still trying to watch my sugar intake, but not because of the cancer. The pounds started to come off after I started to limit my sugar! Trying low fat diets in the past with no success, I have discovered it's sugar, not fat that causes MY weight gain. DUH I usually gain from Halloween thru Valentine's day. That should have been a no brainer :)

    I'll come along for the chardonnay, but I'll pass on the brownie!
  • Kristin N
    Kristin N Member Posts: 1,968 Member
    NancyJac said:

    Well I just can't seem to
    Well I just can't seem to stay out of trouble here regardless. My opinions are deemed offensive, my information and experience is seen as argumentative, my spirit is not sweet enough (whatever that means) and a 2 person conversation about nutrition has been turned into something it was not by everyone else that posted. If our conversation made you uncomfortable, just stay out of it and don't read it. How does it benefit anyone to jump into this thread just to bad mouth the two people having a conversation?

    I get that this is a very touchy feely site which is probably not a very good fit for me anyway. I have given this my best shot twice now, but I am not going to pretend to be someone I am not just to fit into the mold here, nor am I interested in having to constantly walk on eggs for fear of someone being offended by anything and everything that I say.

    I have been active on a site called What Next for several months and cancer patients/survivors/caretakers there seem to be more interested in sharing information and experiences and less about the one upping and ganging up that I have found here. I actually became aware of this site from someone at that site. Some one here told me that this is a sorority of sisters. That is all well and good, but some of us are just not willing to go through hell week and be treated like servants or children before we are accepted into the clique. So I respectfully suggest that you examine and reflect upon your own "spirit" before throwing stones on others.

    I wish all of you all the very best.

    Nancy

    I don't see that you are in
    I don't see that you are in trouble Nancy. I just see some very knowledgeable sisters exchanging information and you are one of them. It is refreshing to see someone with so much knowledge and can back it up.
  • bubba29
    bubba29 Member Posts: 14
    debsweb18 said:

    Sandy
    My first oncologist said anything in moderation. What's moderation? Then I asked my breast surgeon about diet. (Like Sandy I had to be proactive-no one offered me advice). My BS said sugar's really bad for you, eat lots of spinach and kale and no more than 3 alcoholic drinks/week. I immediately stopped eating the several handful of mini chocs every night that my husband always buys at Costco (well I still eat a 1 or 2). In a few weeks, I asked my new oncologist the same question. He said it's not so much what I eat, it's that I don't gain weight because fat increases estrogen production. He also bumped me up to 4 drinks a week (although I rarely get there) and said no bottled water because of the BPA. I'm still trying to watch my sugar intake, but not because of the cancer. The pounds started to come off after I started to limit my sugar! Trying low fat diets in the past with no success, I have discovered it's sugar, not fat that causes MY weight gain. DUH I usually gain from Halloween thru Valentine's day. That should have been a no brainer :)

    I'll come along for the chardonnay, but I'll pass on the brownie!

    this may shock many here but
    this may shock many here but doctors have very little training and knowledge of nutrition. sure there are a few exceptions out there. the fact that some doctors have said it doesn't matter what you eat is ridiculous to me.
    http://escapetheherdblog.blogspot.com/2010/09/does-doctor-know-best.html

    sandy,
    your insulin, muscle, and fat cells don't know the difference between table sugar or pasta. to different degrees, they both end up as glucose in the blood. if you are not exercising enough to deplete your muscle stores of glucose, it will be stored in the form of fat. body fat, especially in the belly, converts testosterone to estrogen. this is one of the reasons why men can get estrogen driven breast cancer. i would also avoid soy as it drives up estrogen too.
  • MAJW
    MAJW Member Posts: 2,510 Member
    bubba29 said:

    this may shock many here but
    this may shock many here but doctors have very little training and knowledge of nutrition. sure there are a few exceptions out there. the fact that some doctors have said it doesn't matter what you eat is ridiculous to me.
    http://escapetheherdblog.blogspot.com/2010/09/does-doctor-know-best.html

    sandy,
    your insulin, muscle, and fat cells don't know the difference between table sugar or pasta. to different degrees, they both end up as glucose in the blood. if you are not exercising enough to deplete your muscle stores of glucose, it will be stored in the form of fat. body fat, especially in the belly, converts testosterone to estrogen. this is one of the reasons why men can get estrogen driven breast cancer. i would also avoid soy as it drives up estrogen too.

    When ...
    When you walk in our shoes....and no my oncologist is NOT ridiculous! Nor is his knowledge of nutrition...please stop beating a dead horse..you've already driven away one of our "sisters...
  • bubba29
    bubba29 Member Posts: 14
    MAJW said:

    When ...
    When you walk in our shoes....and no my oncologist is NOT ridiculous! Nor is his knowledge of nutrition...please stop beating a dead horse..you've already driven away one of our "sisters...

    it appears 2 new interested
    it appears 2 new interested parties were drawn into the conversation just recently for a net gain of 1. may i ask who i drove away?
  • carkris
    carkris Member Posts: 4,553 Member
    Kristin N said:

    I don't see that you are in
    I don't see that you are in trouble Nancy. I just see some very knowledgeable sisters exchanging information and you are one of them. It is refreshing to see someone with so much knowledge and can back it up.

    My info is anecdotal, but I
    My info is anecdotal, but I know lots of research is being done on anti inflammatory diets and keeping BS level. I know where I work we are doing studies on this, so I am trying to move toward this. I do believe exersize is key and keeping weight down. I have gained weight on tamoxifen and a working on getting it off. the only thing that seems to work is cutting out sugar and decreasing carbs. When dont eat any carbs i do not feel well. I have been seeing a nutritionist, I think this is better than my onc.
  • carkris
    carkris Member Posts: 4,553 Member
    Kristin N said:

    I don't see that you are in
    I don't see that you are in trouble Nancy. I just see some very knowledgeable sisters exchanging information and you are one of them. It is refreshing to see someone with so much knowledge and can back it up.

    My info is anecdotal, but I
    My info is anecdotal, but I know lots of research is being done on anti inflammatory diets and keeping BS level. I know where I work we are doing studies on this, so I am trying to move toward this. I do believe exersize is key and keeping weight down. I have gained weight on tamoxifen and a working on getting it off. the only thing that seems to work is cutting out sugar and decreasing carbs. When dont eat any carbs i do not feel well. I have been seeing a nutritionist, I think this is better than my onc.
  • Rague
    Rague Member Posts: 3,653 Member
    bubba29 said:

    this may shock many here but
    this may shock many here but doctors have very little training and knowledge of nutrition. sure there are a few exceptions out there. the fact that some doctors have said it doesn't matter what you eat is ridiculous to me.
    http://escapetheherdblog.blogspot.com/2010/09/does-doctor-know-best.html

    sandy,
    your insulin, muscle, and fat cells don't know the difference between table sugar or pasta. to different degrees, they both end up as glucose in the blood. if you are not exercising enough to deplete your muscle stores of glucose, it will be stored in the form of fat. body fat, especially in the belly, converts testosterone to estrogen. this is one of the reasons why men can get estrogen driven breast cancer. i would also avoid soy as it drives up estrogen too.

    You are the rediculous one!
    As you have finally admitted that you have no personal 'experience' with BC but are the self appointed 'savior' of all us 'poor souls', do you have any medical credentials? Or are you just hawking some sites you found on line - and of course we all know everything posted on the web is true and factual - NOT!

    It is very dangerous to say that there is only 'one way' - your way. We are each unique as it is how our body handles the stresses on it. Certainly too many 'empty' calories will cause many problems but there are some who do need to take in 'sugar/carbs to maintain high enough glucose levels - it's called hypoglycemia and yes some of us do deal with the problem post TX. I am one of those and am a very active older woman - to be as active as I am there is no way I could continue to function on protein alone.

    Another point that some others have brought up - for some of us keeping weight on is a problem. My Chemo Dr was unhappy with me when I saw him last becausae I had lost 10 lbs. I see my PA on Fri and she's not going to be happy either as I've lost another 10 lbs. There is no "one size fits all" - we are each unique.

    It is not as simple as you have said for food into to become glucose in the blood. It is a very complex prosess and the different foods go through different steps and how they are stored/what they are stored as and how they are then changed again to be able to be utilized. It's been about 25 yrs since my last college level A&P class so I won't bother trying to explain it to you but as much as you like the internet you can find plenty of information that can educate you.

    My Cancer Center did educate those who needed it in nutrition. Before starting chemo you have an hour, one on one with an RN about the whole process. Part of that was on nutrition, if you felt you wanted more info they have a Nutritionalist you can see or if what the RN heard from you sounded like you needed more info/help you were referred to the Nutritionalist.

    You make a lot of assumptions - we're all stupid and haven't educated ourselves - WRONG! We do educate ourselves as we are literally fighting for our life. Certainly we do handle things differently and react differently but we are far from stupid or blind. I am a fighter (always have been and always will) and I do look into anything that makes even a vague amount of sense to me - BUT 'Snake Oil Salesmen" (and their ilk) I can spot a mile away. Also the 'self righteous' who spout that their way is the only way to be 'saved' or claiming that it's because we didn't follolw what they spout is why we got cancer.

    Oh bye the bye - everyone's body produces estrogen - men and post menopausal women. It is also in many food we injest. That is why those of us who are ER+ take a estrogen blocker.

    Do you realize that all breast cancer is not the same and have different prognosis? There is IBC (Inflammatory Breast Cancer), IDC (Invasive Ductal Carcinoma), ILC (Invasive Lobular Carcinoma), DCIS (Ductal Carcinoma In Situ) and LCIS (Lobular Carcinoma In Situ). There are others but are quite rare. Of the ones listed, IBC is only between !% and 5% of all BC and it is also the most aggressive with the worst prognosis. There are other facors that come into play also - Stage, ER/PR and HER2 status, overall health. There are a lot of 'things' that all have an effect so it is impossible to say anything as a 'flat fact'.

    Until you have walked 10 miles in our mocassins do not try to 'preach' your 'religion' to any of us. We live our lives - you can't begin to comprehend. I have 'walked the walk' for almost 3 yrs now with IBC and am still NED (No Evidence of Disease - the best we can get) - I can to some degree understand what others are going through in general but there is no way I can individually know what one I feeling experiencing because I am NOT them - nor are they me.

    Winyan - The Power Within

    Susan
  • joannstar
    joannstar Member Posts: 403 Member
    Rague said:

    You are the rediculous one!
    As you have finally admitted that you have no personal 'experience' with BC but are the self appointed 'savior' of all us 'poor souls', do you have any medical credentials? Or are you just hawking some sites you found on line - and of course we all know everything posted on the web is true and factual - NOT!

    It is very dangerous to say that there is only 'one way' - your way. We are each unique as it is how our body handles the stresses on it. Certainly too many 'empty' calories will cause many problems but there are some who do need to take in 'sugar/carbs to maintain high enough glucose levels - it's called hypoglycemia and yes some of us do deal with the problem post TX. I am one of those and am a very active older woman - to be as active as I am there is no way I could continue to function on protein alone.

    Another point that some others have brought up - for some of us keeping weight on is a problem. My Chemo Dr was unhappy with me when I saw him last becausae I had lost 10 lbs. I see my PA on Fri and she's not going to be happy either as I've lost another 10 lbs. There is no "one size fits all" - we are each unique.

    It is not as simple as you have said for food into to become glucose in the blood. It is a very complex prosess and the different foods go through different steps and how they are stored/what they are stored as and how they are then changed again to be able to be utilized. It's been about 25 yrs since my last college level A&P class so I won't bother trying to explain it to you but as much as you like the internet you can find plenty of information that can educate you.

    My Cancer Center did educate those who needed it in nutrition. Before starting chemo you have an hour, one on one with an RN about the whole process. Part of that was on nutrition, if you felt you wanted more info they have a Nutritionalist you can see or if what the RN heard from you sounded like you needed more info/help you were referred to the Nutritionalist.

    You make a lot of assumptions - we're all stupid and haven't educated ourselves - WRONG! We do educate ourselves as we are literally fighting for our life. Certainly we do handle things differently and react differently but we are far from stupid or blind. I am a fighter (always have been and always will) and I do look into anything that makes even a vague amount of sense to me - BUT 'Snake Oil Salesmen" (and their ilk) I can spot a mile away. Also the 'self righteous' who spout that their way is the only way to be 'saved' or claiming that it's because we didn't follolw what they spout is why we got cancer.

    Oh bye the bye - everyone's body produces estrogen - men and post menopausal women. It is also in many food we injest. That is why those of us who are ER+ take a estrogen blocker.

    Do you realize that all breast cancer is not the same and have different prognosis? There is IBC (Inflammatory Breast Cancer), IDC (Invasive Ductal Carcinoma), ILC (Invasive Lobular Carcinoma), DCIS (Ductal Carcinoma In Situ) and LCIS (Lobular Carcinoma In Situ). There are others but are quite rare. Of the ones listed, IBC is only between !% and 5% of all BC and it is also the most aggressive with the worst prognosis. There are other facors that come into play also - Stage, ER/PR and HER2 status, overall health. There are a lot of 'things' that all have an effect so it is impossible to say anything as a 'flat fact'.

    Until you have walked 10 miles in our mocassins do not try to 'preach' your 'religion' to any of us. We live our lives - you can't begin to comprehend. I have 'walked the walk' for almost 3 yrs now with IBC and am still NED (No Evidence of Disease - the best we can get) - I can to some degree understand what others are going through in general but there is no way I can individually know what one I feeling experiencing because I am NOT them - nor are they me.

    Winyan - The Power Within

    Susan

    Well said
    Susan. Thank you for verbalizing what I have been thinking as I read through this thread. How dare someone who has not "walked the walk" tell us how to think, act, eat or feel!! It is downright insulting.
    I really do wish that "know-it-alls" would keep it to themselves.
    JoAnn
  • NancyJac
    NancyJac Member Posts: 91
    joannstar said:

    Well said
    Susan. Thank you for verbalizing what I have been thinking as I read through this thread. How dare someone who has not "walked the walk" tell us how to think, act, eat or feel!! It is downright insulting.
    I really do wish that "know-it-alls" would keep it to themselves.
    JoAnn

    Sigh.....this is exactly why I don't care much for this site.
    I have really tried to resist jumping back into this thread since several people jumped in with seemingly very little purpose than to bad mouth the OP. It is many of you, not bubba, who are trying to tell us how to think, act, and feel. I have seen it over and over again on this site. There are just too many times when somebody takes a thread and hijacks it into badmouthing, attacking, and making it a right/wrong competition. Just because somebody doesn't have cancer or doesn't have it as bad as you, doesn't mean that person shouldn't get the same respect and ability to express themselves as anybody else. THAT is what is downright insulting. I certainly don't agree with bubba on most points, but he/she has made them without badmouthing or attacking anyone.
  • bubba29
    bubba29 Member Posts: 14
    Rague said:

    You are the rediculous one!
    As you have finally admitted that you have no personal 'experience' with BC but are the self appointed 'savior' of all us 'poor souls', do you have any medical credentials? Or are you just hawking some sites you found on line - and of course we all know everything posted on the web is true and factual - NOT!

    It is very dangerous to say that there is only 'one way' - your way. We are each unique as it is how our body handles the stresses on it. Certainly too many 'empty' calories will cause many problems but there are some who do need to take in 'sugar/carbs to maintain high enough glucose levels - it's called hypoglycemia and yes some of us do deal with the problem post TX. I am one of those and am a very active older woman - to be as active as I am there is no way I could continue to function on protein alone.

    Another point that some others have brought up - for some of us keeping weight on is a problem. My Chemo Dr was unhappy with me when I saw him last becausae I had lost 10 lbs. I see my PA on Fri and she's not going to be happy either as I've lost another 10 lbs. There is no "one size fits all" - we are each unique.

    It is not as simple as you have said for food into to become glucose in the blood. It is a very complex prosess and the different foods go through different steps and how they are stored/what they are stored as and how they are then changed again to be able to be utilized. It's been about 25 yrs since my last college level A&P class so I won't bother trying to explain it to you but as much as you like the internet you can find plenty of information that can educate you.

    My Cancer Center did educate those who needed it in nutrition. Before starting chemo you have an hour, one on one with an RN about the whole process. Part of that was on nutrition, if you felt you wanted more info they have a Nutritionalist you can see or if what the RN heard from you sounded like you needed more info/help you were referred to the Nutritionalist.

    You make a lot of assumptions - we're all stupid and haven't educated ourselves - WRONG! We do educate ourselves as we are literally fighting for our life. Certainly we do handle things differently and react differently but we are far from stupid or blind. I am a fighter (always have been and always will) and I do look into anything that makes even a vague amount of sense to me - BUT 'Snake Oil Salesmen" (and their ilk) I can spot a mile away. Also the 'self righteous' who spout that their way is the only way to be 'saved' or claiming that it's because we didn't follolw what they spout is why we got cancer.

    Oh bye the bye - everyone's body produces estrogen - men and post menopausal women. It is also in many food we injest. That is why those of us who are ER+ take a estrogen blocker.

    Do you realize that all breast cancer is not the same and have different prognosis? There is IBC (Inflammatory Breast Cancer), IDC (Invasive Ductal Carcinoma), ILC (Invasive Lobular Carcinoma), DCIS (Ductal Carcinoma In Situ) and LCIS (Lobular Carcinoma In Situ). There are others but are quite rare. Of the ones listed, IBC is only between !% and 5% of all BC and it is also the most aggressive with the worst prognosis. There are other facors that come into play also - Stage, ER/PR and HER2 status, overall health. There are a lot of 'things' that all have an effect so it is impossible to say anything as a 'flat fact'.

    Until you have walked 10 miles in our mocassins do not try to 'preach' your 'religion' to any of us. We live our lives - you can't begin to comprehend. I have 'walked the walk' for almost 3 yrs now with IBC and am still NED (No Evidence of Disease - the best we can get) - I can to some degree understand what others are going through in general but there is no way I can individually know what one I feeling experiencing because I am NOT them - nor are they me.

    Winyan - The Power Within

    Susan

    i am not discounting any of
    i am not discounting any of your experiences. i do think it is a bit naive to say people need to walk 10 miles in your mocassins to be able to make health recommendations. the drug reps who educate your doctors most likely did not have breast cancer. the researchers who wrote in the peer reviewed, well respected journals i referenced most likely did not have breast cancer. in fact, i would say a very large percentage of teams who treat cancer patients never actually had cancer. does that make them less credible or less effective at making recommendations?

    i am not asking anyone to just believe the words for what they are on this page. i would love to actually have some people rebut the references provided after reading them. that ends up being a conversation that could well help people. the paradigm on nutritional recommendations is starting to shift. i am just trying to help people become aware but i have yet to see anyone provide info that proves otherwise.

    you say you are hypoglycemic. how often do you test your blood sugar? what level is it at when you determine it is too low? and what do you do to address the issue? you are aware that carbohydrate has very little bearing on how much lean tissue mass one retains or gains? is your doctor worried about weight loss or lean tissue loss?
  • bluwillo
    bluwillo Member Posts: 113 Member
    NancyJac said:

    Sigh.....this is exactly why I don't care much for this site.
    I have really tried to resist jumping back into this thread since several people jumped in with seemingly very little purpose than to bad mouth the OP. It is many of you, not bubba, who are trying to tell us how to think, act, and feel. I have seen it over and over again on this site. There are just too many times when somebody takes a thread and hijacks it into badmouthing, attacking, and making it a right/wrong competition. Just because somebody doesn't have cancer or doesn't have it as bad as you, doesn't mean that person shouldn't get the same respect and ability to express themselves as anybody else. THAT is what is downright insulting. I certainly don't agree with bubba on most points, but he/she has made them without badmouthing or attacking anyone.

    Yo! Nanc! Stick Around!
    You have good info. Your style is not all "sugar coated" (ha ha, get it? to go with the thread?). Some of us need the supportive style, while others need the "just the facts, ma'am"style. That would be me. Please don't feel that you're not right for this site. You are here because you share one VERY stupid, lame, kiss-my-azz disease.. breast cancer. I figure the more perspectives we can share, the better the chances we'll LEARN SOMETHING NEW. That's very important to me. I can totally live with the fact that, all my life, I've been told I lack tact. But what I CANNOT live with is a lack of information and resources. (so that explains a lot about *my* style).

    Hey, if ya feel like folks aren't warming up to you, come and sit on the couch by me. We can kvetch with each other, I'll explain legal and family issues, you bring the brains!

    Stick around...really.

    Oh, and to be on topic, I don't really care about the great sugar debate. I love candy and baked goods. I also get fat when I eat them to excess (did you know chocolate makes a legal tranquilizer- but eating all three meals of a day as a Snickers bar really packs on the pounds!)Therefore, I try to watch my sugar intake...sometimes I do that as the candy bar approaches my mouth, other times I read the label and put something back. And I'm too tired from work to bake much anymore....

    So I NEED YOU to tell me how healthy angel food cake is. Today I had to have a tooth pulled (chemo...the gift that keeps on giving!) and all I'm eating is angel food cake. Thoughts? Comments? Want a piece? LOL

    blu
  • cathyp
    cathyp Member Posts: 376 Member
    carkris said:

    My info is anecdotal, but I
    My info is anecdotal, but I know lots of research is being done on anti inflammatory diets and keeping BS level. I know where I work we are doing studies on this, so I am trying to move toward this. I do believe exersize is key and keeping weight down. I have gained weight on tamoxifen and a working on getting it off. the only thing that seems to work is cutting out sugar and decreasing carbs. When dont eat any carbs i do not feel well. I have been seeing a nutritionist, I think this is better than my onc.

    information sharing
    I visit this site for information sharing so I've read with interest the exchange of information regarding nutrition. Also, sorry that my style does not reflect the "pink sisterhood" termonolgy. Some message boards are split by subjects such as not cancer related, emotional support, treatment, surgery etc. Wish it was like that here. That's why I appreciate a clear topic description. Saves me time to skip over some subject areas.
    So, I haven't filled out my profile but I have had 2 types of cancer 3 times in the last 23 years. The long term effects from chemo and radiation are taking their toll on my body. In fact, that is what caused my BC.
    Five years ago, I was unable to continue tamoxifen after 2 months. At that time my oncologist reassured me saying diet and exercise could take the place of the drug. I could not do rads or chemo.
    I have an appt with a nutritionist at a large cancer center. Nutrition is such a complex subject. In my experience, I have have found any medical doctor, specialist or not, is not well versed in nutrition. They have to keep up with advances in their own field. I also know the nutritionist works with these doctors so it sounds like a good fit for me.
    Keep the info coming, it helps me to make my owned informed decisions.