recurrent thyroid cancer

sunnyaz said:

Hi Richard,

Have you been tested for the B-RAF mutation gene? B-RAF positive patients are less likely to be RAI avid. Forty three percent of Papillary Thyroid Cancer patients will test positive for it.

I am positive, but luckily I was able to uptake. I have already maxed out my doses and will no longer be avid, so I am now in the same boat as you.

I recently heard about a research study being done at the University of Arizona. I am a patient of the University of Arizona Cancer center here in Tucson. This study is using Bi-sodium Carbonate (baking soda) to kill/prevent cancer cells from growing. I did some research on my own after I saw it on a newscast one day. I learned that cancer can not live in an oxygenated and high alkaline environment. Baking soda causes the body to be more oxygenated and increases the pH of the body to a higher alkalinity. I encourage you (and anyone reading this) to do an internet search of this theory. Don't forget to check out any risks involved. Decide if it is right for you and give it a try if it seems right.

It began many years ago with an Italian Oncologist, Dr. Simoncini who discovered it. He cured many of his patients and then lost his license for "treating with unapproved treatment methods." Sodium Bicarbonate use actually goes back to the Torah. Specialist stand to loose a great deal of money if something so simple were to actually work and cure people. There are many articles and videos on the internet. I literally spent hours reading and watching videos on my computer. I have been drinking an eight our glass of water with one teaspoon of baking soda dissolved in it every night for the last month. I will see if it works in September when I go back for a follow up US. In March a small lymph node was discovered as suspicious but it was too small to biopsy.

Just a short bit of history on me: I am a Papillary Thyroid survivor with lymph node metastasis X2. I have had three surgeries and two RAI treatments since November 2009. B-RAF was discovered after my first right neck dissection. I don't post on this site as much as I used to. I work fifty or more hours a week in the medical field and I drive over sixty miles a day not leaving me much time for internet posts.

I wish you the best on your journey and I hope you never have another recurrence.

Blessings,
Julie-SunnyAZ

Baldy said:

Neck Disections
Richard,

If future sonograms indicate further growth and if these growths are in your lymph nodes, you may want to think about and talk to your surgeon about becoming more aggresive in removing them. Instead of waiting for a node to show a problem, take out all the nodes in a given area. This was what my surgeon recommended and what I chose to do. My initial diagnosis was after a lymphadectomy of a swollen node showed thyroid cancer. The surgeon recommended a total thyroidectomy and a modified central neck disection to remove most of my surface neck lymph nodes on the right side, 50 + nodes in all, only two of which showed any cancer. He recommended the right side only because the original swollen node was on that side and node involvement is almost always unilateral {one side only}. After reading here about people who have had to endure multiple neck disections I'm glad he suggested and I chose this approach. I'm currently 16 months post surgery for Stage III Papillary Cancer, without any signs of recurrence so far, but of course, I'll still have a sonogram and blood work done annually for some time.

Alan

amorriso said:

Interesting info
Very intereseting information. I am definately going to do some reading on it

Thanks for posting