Eye sight...

katenorwood
katenorwood Member Posts: 1,912
in Head and Neck Cancer #1
hey everyone,
Question....I'm 6 mos out of resection, and 4 mos out of rads. Maybe this is acc nerve invasion issue, maybe not. Had MRI done 3 wks ago to check for brain stem mets, was clear. Am having issues with my right eye just going black no sight...for a few seconds, to 30 secs.
Also now within the past few days vision has worsened get very blurry for a minute or two and get very dizzy, and then back to normal. Checking BP, and this is normal. Can my few rad treatments that went south on me so quickly have caused this ? Just curious if anyone else has experienced this. Will be back into oncologist in July. Also have l'hermittes syndrome, which wow really...only 11 sessions of rads done. Regards, Katie

Comments

  • phrannie51
    phrannie51 Member Posts: 4,716
    #2
    I know radiation affected my eyes....
    nothing as dramatic as what is happening to you, tho. If this was happening to me, tho...I'd be getting refered to an Eye doctor (have one of your cancer Dr.'s do it so the Eye guy will have ALL your information). I wouldn't play around with eyesight at all...It might have something to do with rads, or it might be something totally independent...but you do need to see someone.

    p
  • katenorwood
    katenorwood Member Posts: 1,912
    #3
    phrannie51 said:

    I know radiation affected my eyes....
    nothing as dramatic as what is happening to you, tho. If this was happening to me, tho...I'd be getting refered to an Eye doctor (have one of your cancer Dr.'s do it so the Eye guy will have ALL your information). I wouldn't play around with eyesight at all...It might have something to do with rads, or it might be something totally independent...but you do need to see someone.

    p

    positively agree...
    Thanks Phrannie !
    I am thinking that this may be a good idea...I am still thinking it may be that darn nerve that runs right by my surgery site. My oncologist thought that too. I will put a call into coborns now, and get referral....maybe get in yet this week. Needed the validation, thank you Phrannie ! Katie
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #4
    katenorwood said:

    positively agree...
    Thanks Phrannie !
    I am thinking that this may be a good idea...I am still thinking it may be that darn nerve that runs right by my surgery site. My oncologist thought that too. I will put a call into coborns now, and get referral....maybe get in yet this week. Needed the validation, thank you Phrannie ! Katie

    Don't know...
    Sorry I can't give anything back on your post Katie ...but I do have you on my nightly prayer list ....I know others will chime in soon.

    Best,

    Tim
  • katenorwood
    katenorwood Member Posts: 1,912
    #5
    Tim6003 said:

    Don't know...
    Sorry I can't give anything back on your post Katie ...but I do have you on my nightly prayer list ....I know others will chime in soon.

    Best,

    Tim

    Thanks
    Tim,
    This c-thing has been trippy for all I know. Contacted oncologist, got referral into ophthalmologists. The medical system moves so quickly...not...will be seeing both a few days apart in July. Tim thanks for the prayers. katie
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    #6
    katenorwood said:

    Thanks
    Tim,
    This c-thing has been trippy for all I know. Contacted oncologist, got referral into ophthalmologists. The medical system moves so quickly...not...will be seeing both a few days apart in July. Tim thanks for the prayers. katie

    Katie
    Everything is specific to where the rads are applied. Chemo is the whole body stuff. As for vision complications- yes, if the rads are applied in areas where the Optic nerve, etc., that have to do with vision would be affected. Several specific issues could be in play for the symptoms you describe, so seeing an eye Dr with a report on what the rad Dr was zapping is likely the key to finding your answer. Only 11 rad sessions? Best of luck in getting this figured-out.

    kcass
  • katenorwood
    katenorwood Member Posts: 1,912
    #7
    Kent Cass said:

    Katie
    Everything is specific to where the rads are applied. Chemo is the whole body stuff. As for vision complications- yes, if the rads are applied in areas where the Optic nerve, etc., that have to do with vision would be affected. Several specific issues could be in play for the symptoms you describe, so seeing an eye Dr with a report on what the rad Dr was zapping is likely the key to finding your answer. Only 11 rad sessions? Best of luck in getting this figured-out.

    kcass

    history on rads...
    Kent,
    And everyone...early into rads, was hospitalized for severe burns down thoat, on vocal cords, and voice box had huge nasty lession. Decided because with ACC, there is no cure all known to date, that rads was not a good option at that time. (used to try to contain....not cure) Quality of life was being effected ...more than helped. Also where tumor was located, even though it was a large saliva gland in my neck...it was butted under my right jaw, and tight up against the nerve shealth on that side. Drs., claim that eye sight can be effected by not only rads, but resect., because this nerve also supplies blood flow to right eye. Been a trip..no complaints...still kickin....wait, until the drs. confer again ! Thanks everyone, Katie

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