radiation destroyed my hip

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Comments

  • rds711
    rds711 Member Posts: 113
    #22
    z810840b said:

    update
    hi all...my hip is doing well...but a new problem emerged.i have been on some pain killers ..especially when i did PT.Unfortunaely it made me so constipated .....Im sure my friends here know where i am going with this...Ouch Ouch Ouch! I took everything for relief and finally was able to go...but it was so painful .Now i have pain again when going to the bathroom...I hope this passes quickly.I felt so weak and tired today.I know i have to hydrate and no more pain pills for me!!!Ugh...hugs alyse

    Alyse
    I am glad to hear things are going well with your hip, but sorry to hear that the pain meds are causing you such a problem. May it pass quickly so that you can enjoy the use of that new hip with the summer before us! Take care of yourself and get the rest you need.


    Randy
  • sephie
    sephie Member Posts: 650 Member
    #23
    z810840b said:

    update
    hi all...my hip is doing well...but a new problem emerged.i have been on some pain killers ..especially when i did PT.Unfortunaely it made me so constipated .....Im sure my friends here know where i am going with this...Ouch Ouch Ouch! I took everything for relief and finally was able to go...but it was so painful .Now i have pain again when going to the bathroom...I hope this passes quickly.I felt so weak and tired today.I know i have to hydrate and no more pain pills for me!!!Ugh...hugs alyse

    ugh
    sooooo sorry that you hurt due to constipation. just another idea, when i feel a BM coming on, i pat some ky jelly on my anus before going. seems to help a little with the slide. sit in warm water to ease pain. sephie
  • z810840b
    z810840b Member Posts: 207 Member
    #24
    sephie said:

    ugh
    sooooo sorry that you hurt due to constipation. just another idea, when i feel a BM coming on, i pat some ky jelly on my anus before going. seems to help a little with the slide. sit in warm water to ease pain. sephie

    two and a half weeks
    hi all-Well its been 2 1/2 weeks since surgery and i finally feel like I turned a corner.I am walking without a cane and hardly a limp.My energy level is better too.Last night we joined some friends for dinner.I took my pillow and was able to sit for over 2 hours.Today is our 33rd wedding anniversary and we will go out again to celebrate...Thanks for all your kind thoughts everyone...Hugs ..alyse
  • mp327
    mp327 Member Posts: 4,440 Member
    #25
    z810840b said:

    two and a half weeks
    hi all-Well its been 2 1/2 weeks since surgery and i finally feel like I turned a corner.I am walking without a cane and hardly a limp.My energy level is better too.Last night we joined some friends for dinner.I took my pillow and was able to sit for over 2 hours.Today is our 33rd wedding anniversary and we will go out again to celebrate...Thanks for all your kind thoughts everyone...Hugs ..alyse

    Hi alyse!
    Happy Anniversary! I hope you and your husband are having a wonderful day! I'm so glad to hear that you are doing well and now walking without a cane. You are amazing! I'm telling you, soon you'll be dancing! Thanks for keeping us updated--you are often in my thoughts and always in my prayers. Keep moving forward! Hugs!
  • jane marie
    jane marie Member Posts: 5
    #26
    z810840b said:

    two and a half weeks
    hi all-Well its been 2 1/2 weeks since surgery and i finally feel like I turned a corner.I am walking without a cane and hardly a limp.My energy level is better too.Last night we joined some friends for dinner.I took my pillow and was able to sit for over 2 hours.Today is our 33rd wedding anniversary and we will go out again to celebrate...Thanks for all your kind thoughts everyone...Hugs ..alyse

    Same syptoms
    Hi Alyse, I am 2 and a half years out of treatment and still trying to manage the pain from the radiation. This is my first time posting. I lost a lot of faith with doctors after this ordeal, from misdiagnosis to may radiation oncologist saying he didn't understand why I was still in pain. This was the same doctor that when I told him I was having really bad hot flashes after treatment, he said I though you had a hysterectomy. I said I did but my ovaries are still intact! Then he said oh I would have shielded your ovaries then!Your story really intrigued me because the last month I have had excruciating pain in the groin and hip. After seeing your story, I think I have to bite the bullet and go back ton the doctor. I hope you are doing well. I still have weekly bouts of filling the toilet with blood, sex has been out of the question, I leave a trail of blood to the bathroom after so we have stopped trying and the fact that I need a bathroom within minutes has forced me to go on disability. Good luck all, this forum is a true help.
  • Angela_K
    Angela_K Member Posts: 374 Member
    #27
    z810840b said:

    two and a half weeks
    hi all-Well its been 2 1/2 weeks since surgery and i finally feel like I turned a corner.I am walking without a cane and hardly a limp.My energy level is better too.Last night we joined some friends for dinner.I took my pillow and was able to sit for over 2 hours.Today is our 33rd wedding anniversary and we will go out again to celebrate...Thanks for all your kind thoughts everyone...Hugs ..alyse

    Thank you, Alyse
    I want to thank you for unknowingly inspiring me to get a baseline bone density screening last week. My report was in the normal range without meds, but my insurance company was reluctant to cover the scan until my doctor shared some of the stats that you brought forth in addition to specifics she found herself.

    Happy anniversary! And here's to your recovery from surgery!!

    Angela
  • z810840b
    z810840b Member Posts: 207 Member
    #28
    Angela_K said:

    Thank you, Alyse
    I want to thank you for unknowingly inspiring me to get a baseline bone density screening last week. My report was in the normal range without meds, but my insurance company was reluctant to cover the scan until my doctor shared some of the stats that you brought forth in addition to specifics she found herself.

    Happy anniversary! And here's to your recovery from surgery!!

    Angela

    thanks angela
    wow!! that really makes me feel good angela..Thanks for letting me know..Hugs..alyse
  • sandysp
    sandysp Member Posts: 868 Member
    #29
    z810840b said:

    two and a half weeks
    hi all-Well its been 2 1/2 weeks since surgery and i finally feel like I turned a corner.I am walking without a cane and hardly a limp.My energy level is better too.Last night we joined some friends for dinner.I took my pillow and was able to sit for over 2 hours.Today is our 33rd wedding anniversary and we will go out again to celebrate...Thanks for all your kind thoughts everyone...Hugs ..alyse

    Happy Anniversary
    Thanks for your informative posts. I had groin pain today and spasms down the back of the right leg then burning from the inside out like fire. I can track it right to my anus. Something happened to inflame it or maybe it's just radiation sickness. It was bad enough that I took a pain pill which I hate doing because of the side affect you described here . . . ouch, ouch ouch! One thing just leads to the other. I really want to have a bone density but my doctor has ignored me twice. There must be a lot of pressure on these doctors what to prescribe and what not to prescribe. My insurance company has gotten the short end of the stick with me lately. So much medical stuff and I have been seeing a psychologist too for the related stress of all this stuff.

    I don't know what I would do without this board keeping me informed. I will stay on the bone density thing.

    So happy your marriage held up under all this icky cancer business. Mine seems to be improving even. Good things can come out of lousy things.
    All the best,
    Sandy
  • RoseC
    RoseC Member Posts: 559
    #30
    jane marie said:

    Same syptoms
    Hi Alyse, I am 2 and a half years out of treatment and still trying to manage the pain from the radiation. This is my first time posting. I lost a lot of faith with doctors after this ordeal, from misdiagnosis to may radiation oncologist saying he didn't understand why I was still in pain. This was the same doctor that when I told him I was having really bad hot flashes after treatment, he said I though you had a hysterectomy. I said I did but my ovaries are still intact! Then he said oh I would have shielded your ovaries then!Your story really intrigued me because the last month I have had excruciating pain in the groin and hip. After seeing your story, I think I have to bite the bullet and go back ton the doctor. I hope you are doing well. I still have weekly bouts of filling the toilet with blood, sex has been out of the question, I leave a trail of blood to the bathroom after so we have stopped trying and the fact that I need a bathroom within minutes has forced me to go on disability. Good luck all, this forum is a true help.

    Hi jane marie
    Welcome to the board. I'm a little over 3 1/2 years out and had problems up till about a year ago. Still have occasional issues in the bathroom but for the most part things are pretty good. I hope your symptoms get better over time.
  • lalachicky
    lalachicky Member Posts: 2
    #31
    Hello, I just found this
    Hello, I just found this site today. I found youre post and was reading it. I have the same thing happening to me. I had radiation treatments for anal cancer. My hip is giving me problems. My doc says its brusitis and did two treatments which did nothing. I cant lay on my right side at all. He said for me to go to an ortho doctor. I never would have thought about the radiation messing up my hip. Im sure thats what it is. They never listen to me. About like they did when I had anal cancer it took 10 times to the doctor before they would even acknowledge it. I am glad that I found other people out there like me going through the same things I am. I will be praying for you and a speedy healing!
  • z810840b
    z810840b Member Posts: 207 Member
    #32
    lalachicky said:

    Hello, I just found this
    Hello, I just found this site today. I found youre post and was reading it. I have the same thing happening to me. I had radiation treatments for anal cancer. My hip is giving me problems. My doc says its brusitis and did two treatments which did nothing. I cant lay on my right side at all. He said for me to go to an ortho doctor. I never would have thought about the radiation messing up my hip. Im sure thats what it is. They never listen to me. About like they did when I had anal cancer it took 10 times to the doctor before they would even acknowledge it. I am glad that I found other people out there like me going through the same things I am. I will be praying for you and a speedy healing!

    doing better
    Hi-Im glad you found this.I also never suspected radiation could do this.My radiologist never told me about possible side effects from radiation, and there are plenty.My hip replacement was 4 weeks ago and I am doing better every day.I no longer use a cane and walk fine.Amazingly i don't even limp..no one would ever know.I am going to physical therapy to work on range of motion.I still can't reach down to put my shoes on...but it will come.My journey with this hip problem actually wasn't too bad.I had the best surgeon and i see good results.Thank you all for your positive messages.Hugs ...alyse
  • mp327
    mp327 Member Posts: 4,440 Member
    #33
    z810840b said:

    doing better
    Hi-Im glad you found this.I also never suspected radiation could do this.My radiologist never told me about possible side effects from radiation, and there are plenty.My hip replacement was 4 weeks ago and I am doing better every day.I no longer use a cane and walk fine.Amazingly i don't even limp..no one would ever know.I am going to physical therapy to work on range of motion.I still can't reach down to put my shoes on...but it will come.My journey with this hip problem actually wasn't too bad.I had the best surgeon and i see good results.Thank you all for your positive messages.Hugs ...alyse

    Hi alyse!
    You rock, woman! I'm so glad to hear you are doing well and seeing improvement each and every day! Keep moving!
  • AZANNIE
    AZANNIE Member Posts: 445 Member
    #34
    z810840b said:

    doing better
    Hi-Im glad you found this.I also never suspected radiation could do this.My radiologist never told me about possible side effects from radiation, and there are plenty.My hip replacement was 4 weeks ago and I am doing better every day.I no longer use a cane and walk fine.Amazingly i don't even limp..no one would ever know.I am going to physical therapy to work on range of motion.I still can't reach down to put my shoes on...but it will come.My journey with this hip problem actually wasn't too bad.I had the best surgeon and i see good results.Thank you all for your positive messages.Hugs ...alyse

    Alyse
    So glad you're doing better!

    Ann
  • briniusyuzh602
    briniusyuzh602 Member Posts: 5
    #35
    Hello, Alyse
    What a pity to hear that, and wish you recover as soon as possible. we all miss you very much.
    - sexy tops and sexy skirts

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