Endometroid Adenocarcinoma

elaine73
elaine73 Member Posts: 1
in Uterine/Endometrial Cancer #1
Hi, my name is elaine
I was just diagnose with Endometroid Adenocarcinoma is there anyone whas been diagnose with this cancer? And choose not to have a hesterectormy...

Comments

  • nempark
    nempark Member Posts: 681
    #2
    Hi Elaine:
    Sorry, that you have such a devastating dx. I was dx in 2009 with endo cancer MMMT stage 1A and I had absolutely no doubt about an immediate hysterectomny. I had everything removed. Do you know what stage you have? Do you have children? I think that the safest way to handle this disease is to treat it agressively. Are you having second thoughts about a hysterectonmy? These days Hysterctonomy is very common especially if you have cancer. I wish you all the best and hope that our Dear God give you the strength and wisdom to make the right decision. As far as I know, I don't think that anyone with this dx refuses a hysterectonomy, but it is a personal decision that you have to make. Please keep in touch. J.
  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #3
    Hi Elaine:
    At age 45, I had
    Hi Elaine:

    At age 45, I had to have a total hysterectomy. It wasn't until after the hysterectomy that they found Endometrial Adenocarcinoma. I then had to have another surgery for staging and ended up with Grade 2, Stage iii endometrial adenocarcinoma. Since they didn't find anything further during the staging surgery, I had preventive chemo of carboplatin/gemzar and then 3 brachy treatments. That was back in 2005.

    I do not know how old you are like the other poster had written, but I would probably go with the total hysterectomy unless there is some other reason why you don't want to have it. By the way, if you do have a hysterectomy, they will probably also remove your appendix and omentum.

    My best to you.

    Kathy
  • light42day
    light42day Member Posts: 62 Member
    #4
    Kaleena said:

    Hi Elaine:
    At age 45, I had
    Hi Elaine:

    At age 45, I had to have a total hysterectomy. It wasn't until after the hysterectomy that they found Endometrial Adenocarcinoma. I then had to have another surgery for staging and ended up with Grade 2, Stage iii endometrial adenocarcinoma. Since they didn't find anything further during the staging surgery, I had preventive chemo of carboplatin/gemzar and then 3 brachy treatments. That was back in 2005.

    I do not know how old you are like the other poster had written, but I would probably go with the total hysterectomy unless there is some other reason why you don't want to have it. By the way, if you do have a hysterectomy, they will probably also remove your appendix and omentum.

    My best to you.

    Kathy

    Endometroid Adenocarcinoma
    Hi Elaine,

    I was diagnosed with Stage 1a grade 2 Endometroid Adenocarcinoma back in Jan. My Gyn really didn't give me a choice of whether or not to have a hysterectomy. He just told me that is the treatment for it. I'm 56 years old and about 2 years post-menopause. I know the thought of surgery is scary. It was for me, that's for sure! But you can get through it and recover just fine. I had the DaVinci robotic surgery and felt pretty well in about 2 weeks or so.
    This cancer is a fairly slow growing one but it does spread. It really depends on the grade of cells it is. They would'nt be able to stage it until after the surgery. I pray the best for you and that you're able to make a decision as to what to do soon.

    Blessings to you!
    Peg
  • pakb56
    pakb56 Member Posts: 141
    #5
    WELCOME
    Welcome to our boards. You will find incredible support and kindness from the women here whobI have come to think of as rhe sistrs of my heart.

    I am 56 and was having post menopausal bleeding. Had 2 negative biopsies and hysterectomy showed the cancer. Followed by lymph node biopsy and 1 of 21 had a cancr cell. Had 3 rounds of carbo and taxol chemo followed by external radiation. All of it I tolerated really well. On May 24 on the way home from radiation I was involved in a car accident. I was not hurt but the next day I told my radiation nurse something was wrong. Went for a stat ct scan and was diagnosed with 2 malignant brain tumors.

    I was immediately put on steroids and admitted and had the tumors removed on Sunday.

    What I found helped me during this entire experience and what choices I should make is having a confidence in my healthcare providers who were caring for me. Saying that, I felt that confidence and that became a source of strength for me. I became a real believer in the power of thoughts and prayers and found they brought me liht when I was going into dark places.

    My wish for you is you find the inner strength to cope and deal with the journey you have begun. You don't walk alone. You follow in the steps of those that came before you, walk along side us, and lead the way of those that follow.

    As for me, I am doing incredibly well, feel great.

    My best to you and I will send my thoughts and prayers your way.

    Take care,

    Pat
  • Sara Zipora
    Sara Zipora Member Posts: 231
    #6
    pakb56 said:

    WELCOME
    Welcome to our boards. You will find incredible support and kindness from the women here whobI have come to think of as rhe sistrs of my heart.

    I am 56 and was having post menopausal bleeding. Had 2 negative biopsies and hysterectomy showed the cancer. Followed by lymph node biopsy and 1 of 21 had a cancr cell. Had 3 rounds of carbo and taxol chemo followed by external radiation. All of it I tolerated really well. On May 24 on the way home from radiation I was involved in a car accident. I was not hurt but the next day I told my radiation nurse something was wrong. Went for a stat ct scan and was diagnosed with 2 malignant brain tumors.

    I was immediately put on steroids and admitted and had the tumors removed on Sunday.

    What I found helped me during this entire experience and what choices I should make is having a confidence in my healthcare providers who were caring for me. Saying that, I felt that confidence and that became a source of strength for me. I became a real believer in the power of thoughts and prayers and found they brought me liht when I was going into dark places.

    My wish for you is you find the inner strength to cope and deal with the journey you have begun. You don't walk alone. You follow in the steps of those that came before you, walk along side us, and lead the way of those that follow.

    As for me, I am doing incredibly well, feel great.

    My best to you and I will send my thoughts and prayers your way.

    Take care,

    Pat

    Dear dear Elaine
    Hello Elaine,

    So sorry you have received such earthshattering news. You must must run not walk to an oncologic al gynecologist for a second opinion if the Dx,diagnosis is correct and then have serious talk with yourself, do a total radical,staging hysterectomy where everything that could possibly threaten your life and remove the scavengers who invaded your body are removed. You have the steanghth and stamina a we are behind you. Ll the way.
    With many cyber hugs,

    Chaya Sara Zipora
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #7
    Sara Zipora said:

    Dear dear Elaine
    Hello Elaine,

    So sorry you have received such earthshattering news. You must must run not walk to an oncologic al gynecologist for a second opinion if the Dx,diagnosis is correct and then have serious talk with yourself, do a total radical,staging hysterectomy where everything that could possibly threaten your life and remove the scavengers who invaded your body are removed. You have the steanghth and stamina a we are behind you. Ll the way.
    With many cyber hugs,

    Chaya Sara Zipora

    It's cancer
    and it's origin is the lining of your uterus. I have heard of women having hormone therapy (Megace) IF the cancer is really really early (complex atypical hyperplasia or "precancer") and low grade and if the woman still wants to have children, but I believe this strategy is used to delay a hysterectomy not to avoid it all together. You have been diagnosed with endometroid adenocarcinoma so it is known for sure that you have cancer. If there are health reasons why someone cannot have surgery or if it is known that the cancer has already spread to distant organs (i.e., liver, lungs, etc.), then I believe a hysterectomy might not done - rather a systemic treatment (chemotherapy) is done instead. Obviously a hysterecomy will not cure the cancer if it's in the liver.

    Most endometroid adenocarcinomas are diagnosed at an early stage and often a hysterectomy (and removal of ovaries, fallopian tubes, cervix, lymph nodes, pelvic wash) is the only treatment needed. My cancer was stage 1a (confined to the endometrium, but had grown 1/3 of the way into my uterine wall), grade 1 (lowest grade) and the chances of recurrence are very very low (something like 5%). Surgery was the only treatment I was given as there was no evidence of it anywhere else. I do have regular exams as a precaution, but it's been 2 years and now the frequency of those exams has been reduced to every 6 months. Had I not had a hysterectomy, the cancer would have continued to grow and would likely have metastasized by now because that's what it does. I feel extremely blessed to have caught this early enough to need no further treatment and I feel optimistic about my future. It's a good feeling.

    I hope you'll ask the questions of your gynecologic oncologist and get the answers you need for your particular medical case.

    Suzanne

Discussion Boards