Cancer Recurrence

buzz99
buzz99 Member Posts: 404
in Head and Neck Cancer #1
Hi there everyone. It has been a while. I see some familiar names but unfortunately a whole lot of new people are dealing with this horrible disease (and its treatment). Buzz (my hubby) finished treatment January 2011 for base of tongue cancer. The cancer is back. He now has 3 tumors. One in the Fossa of Rosenmuller (nasopharyngeal area), one on the side of his tongue, and one in his throat near the voicebox. He is receiving Palliative Chemotherapy to hopefully shrink the tumors but he only has months left to live. My question concerns the progression of this disease and the issues we will have to deal with in the near future. Does anyone have information on what to expect? Thanks. Karen
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Comments

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #2
    WOW..
    So very sorry to hear that news Karen....

    Prayers, Thoughts and Love,
    John
  • meaganb
    meaganb Member Posts: 244 Member
    #3
    I don't have any wisdom but
    I don't have any wisdom but just wanted to say how very sorry I am to hear that news. Praying for peace for you, your husband and the rest of your family and friends right now.
  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #4
    sorry to hear
    Karen, I'm sorry Buzz and you are going through this.

    I don't have any information such as you are looking for but I'm sure someone will chime in.

    Lifting prayers for God's grace during this stressful time.
  • Sam999
    Sam999 Member Posts: 319 Member
    #5
    meaganb said:

    I don't have any wisdom but
    I don't have any wisdom but just wanted to say how very sorry I am to hear that news. Praying for peace for you, your husband and the rest of your family and friends right now.

    Karen, so sorry to hear
    Karen, so sorry to hear about this. My thoughts and prayers for you and your family. I hope doctors find something to help him.

    Sam
  • jim and i
    jim and i Member Posts: 1,788 Member
    #6
    prayers
    Karen,

    I feel your pain. My Jim's BOT spread to his lungs. Doctor hasn't given a prognosis but we are worried. Praying for you both.

    Debbie
  • Crazymom
    Crazymom Member Posts: 339 Member
    #7
    So sorry...I am praying for you Ann
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    #8
    Crazymom said:

    So sorry...I am praying for you Ann

    Miracles.
    God does miracles everyday, I pray for you both that one
    comes your way.
    keep positive and have faith.

    God bless
    Tonsil dad,
    Dan.
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #9
    Karen
    So very sorry to hear this. Sending healing thoughts to both you and Buzz.

    Deb
  • Ingrid K
    Ingrid K Member Posts: 813
    #10
    D Lewis said:

    Karen
    So very sorry to hear this. Sending healing thoughts to both you and Buzz.

    Deb

    Karen, you and Buzz have
    Karen, you and Buzz have been thru so much. I am so sorry to hear this update. My prayers are with you both.
  • alaskanjan
    alaskanjan Member Posts: 42
    #11
    I am so sorry to hear that Buzz has more tumors. My heart and prayers are with you both. My husband finished Base of Tongue treatment this past February. His CT was ok in April but he has a lump on the side of his tongue, (same side as the primary tumor), that he is worried about.
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    #12
    alaskanjan said:

    I am so sorry to hear that Buzz has more tumors. My heart and prayers are with you both. My husband finished Base of Tongue treatment this past February. His CT was ok in April but he has a lump on the side of his tongue, (same side as the primary tumor), that he is worried about.

    Karen
    Hopes and Prayers.

    kcass
  • KareGiver
    KareGiver Member Posts: 301 Member
    #13
    Kent Cass said:

    Karen
    Hopes and Prayers.

    kcass

    Prayers
    Coming your way...
  • NitaNita
    NitaNita Member Posts: 56
    #14
    KareGiver said:

    Prayers
    Coming your way...

    Prayers...
    I am so sorry to hear about this..I will keep you and your husband in my prayers. God is good and miracles happen. Keep your head up!
  • buzz99
    buzz99 Member Posts: 404
    #15
    alaskanjan said:

    I am so sorry to hear that Buzz has more tumors. My heart and prayers are with you both. My husband finished Base of Tongue treatment this past February. His CT was ok in April but he has a lump on the side of his tongue, (same side as the primary tumor), that he is worried about.

    Get that lump checked pronto. Buzz had two CT Scans which gave us a false sense of security. 3 month later we found the lump and PET scan revealed two additional tumors. I don't want to scare you but this should be checked out. Karen
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #16
    buzz99 said:

    Get that lump checked pronto. Buzz had two CT Scans which gave us a false sense of security. 3 month later we found the lump and PET scan revealed two additional tumors. I don't want to scare you but this should be checked out. Karen

    HI Karen ..
    First, I am sorry for your news. Second, I will be adding you and buzz to my nightly prayer list ...I feel sometimes I am the only one who still holds out hope for miracles, but on this forum I know I am not.

    Thank you too for sharing what I would be afraid to ask at this time and in your situation...I finished BOT treatments in January 2012 and my first PET / CT scan along with a scope exam (May 7th) looked really good (they never can tell you for sure if you are NED on the first scan they say simply bc of the swelling and after affects of the tx) and my last scopes / finger exams June 6th showed nothing. Did your husband have any other scopes or PETs or just CT scans?

    I will be praying.

    Tim
  • dsantor
    dsantor Member Posts: 19
    #17
    I am so sorry to hear this--
    I am so sorry to hear this-- sending prayers!! I recently was diagnosed with recurrent base of tongue cancer, as well.
  • Jan Trinks
    Jan Trinks Member Posts: 477
    #18
    So sorry
    Karen:

    So sorry to hear this news and will be praying for you and Buzz. When Charlie's came back it was with avegence. He too received I guess you would call it pallative chemo. He had erbitux and something else which was doing the job, but if you remember, he had a gi bleed and had lost a lot of weight, and blood counts went crazy and all. But, of course everybody is different and miracles do happen. It's not easy watching your spouse go thru that and we had been married for 35 years. It's still not easy but you do what you have to do and with God's help and the wonderful people here you make it thru. Treasure every moment and God Bless!

    Jan (Basketcase)
  • Pumakitty
    Pumakitty Member Posts: 652
    #19
    So sorry
    Karen,

    I am so sorry to read this. I will prayer daily for you. I hope that the chemo gives him some relief.

    Kathy
  • joannaw81
    joannaw81 Member Posts: 185 Member
    #20
    alaskanjan said:

    I am so sorry to hear that Buzz has more tumors. My heart and prayers are with you both. My husband finished Base of Tongue treatment this past February. His CT was ok in April but he has a lump on the side of his tongue, (same side as the primary tumor), that he is worried about.

    to alaskanjan
    yes I agree with Karen, get it checked out. My mom's sore did not show on the PET and later it turned out to be cancer. Better to be safe then sorry. And to you Karen: I will be praying....I am truly sorry to hear this news.
  • joannaw81
    joannaw81 Member Posts: 185 Member
    #21
    alaskanjan said:

    I am so sorry to hear that Buzz has more tumors. My heart and prayers are with you both. My husband finished Base of Tongue treatment this past February. His CT was ok in April but he has a lump on the side of his tongue, (same side as the primary tumor), that he is worried about.

    alskanjan and Kren
    get the sore checked out ASAP!!! my mom's sore did not show on PET and it turned out to be cancer. The sore showed up only 2 months after she completed her radiation treatment, it's better to be safe then sorry. Karen:I will be praying for you and your husband, I am truly sorry to hear this horrible news.

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