Any one heard of squamash cell rectal cancer?

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  • mxperry220
    mxperry220 Member Posts: 496 Member
    #22
    Lorikat said:

    Texas....

    Texas....

    Texas Also
    If you are in the Houston area M.D. Anderson is one of the best. I m in the DFW are and used Baylor Plano. Dr. Gupta is my doctor, Dr. Engleman is my radiation doctor, and Dr. Macaluso is my colorectal doctor. They are great doctors. I am 3 years 5 months post treatment.
  • myrtletree
    myrtletree Member Posts: 6
    #23
    hi Lorikat, be encouraged. i was treated for stge 4 rectal tumour. my dr.misteated it as a hemmerroid. i was given chemo and radiation plus i have a colostomy . tumour was about to enter into other organs and is now gone. very bad scarr tissue left. radiation has left me with sacral pain and lower back pain being eased by aggressive hip and back strengthening exercises and stretching out scarr tissue with infra red therapy and back extensions. have now got false teeth due to the chemo softeneing my teeth. i work hard each day to improve my quality of life. pain management via anti inflammatories, heat and biofreeze for nerve pain. into my 7th year of being cancer free. hard going but improving all the time an grateful to be alive. a scary diagnosis but not the end of the road by any means.God Bless.
  • lizdeli
    lizdeli Member Posts: 569 Member
    #24
    Wade James said:

    Dr. Eng & MD Anderson
    It is now 6:24 a.m. in Atlanta. In a short number of hours, depending on the results of the pelvis/abdomen CT scan I had a week ago, I am supposed to begin another 5-day infusion of cisplatin and 5FU, my 4th chemo infusion in 4 months (I have been receiving a new infusion every 28 days to be exact). Exactly one year ago in May and June 2011, the standard protocol treatment for anal cancer: 2 4-day rounds of chemo (mitomycin and 5FU)and 6 1/2 weeks of radiation 5 days a week which I was receiving put me in remission for about 6 months. That treatment ended June 10, 2011. 4 months ago, in early February 2012, my radiation oncologist detected an enlarged right-side inguinal lymph node in a CT scan. A biopsy revealed malignant cells. Another biopsy on a left-side inguinal lymph node was also positive for malignant cells. A PET scan showed more lymph nodes lighting up in the abdomen. I was told I am now StageIV metatstatic, instead of being StageIIIB when I was diagnosed in April 2011. A referral to a surgical oncologist after the malignant biopsies resulted in a no-surgery decision. Because the 6 1/2 weeks of radiation a year earlier was a once-in-a-lifetime tolerance, my only treatment option in February was more chemotherapy : this time 5-day rounds of cisplatin and 5FU every 28 days (which is what I mentioned at the beginning of this comment). After asking for frank honesty (redundant?) my radiation oncologist told me there is a 0% chance I will be alive 5 years from now. My chemo oncologist said patients like me typically have 1-2 years left. My appointment with my chemo oncologist 3 hours from now will give me the results of the new pelvis/abdomen CT scan I had a week ago ; afterwards a new chemo infusion is supposed to begin. I am glad to read your recommendation of Dr. Eng at MD Anderson. I am considering an alternate opinion from someone like Dr. Eng at an eminent institution like MD Anderson because my wonderful sister who left her home and family in order to come to Atlanta to caretake me for a week lives in Houston.

    Wade James
    I was treated by Dr.Eng at MD Anderson. If you can, go there for another opinion. I was told that I had received maximum radiation as well and if the beast came back that surgery would be my next step. Fortunately it did not come back. I originally had Cisplatin.

    If you are seriously pursuing the second opinion you can have your doctor do a referral for you which tends to be quicker. Dr.Eng's schedule is very busy as you can imagine, but I know she does find ways to fit people in particularily the more challenging cases.

    Do not lose hope. There are stage IV survivors that are with us for more than 2 years.

    Wishing you the best, most of all strength and hope.

    Liz
  • torrance
    torrance Member Posts: 118
    #25
    Wade James said:

    Dr. Eng & MD Anderson
    It is now 6:24 a.m. in Atlanta. In a short number of hours, depending on the results of the pelvis/abdomen CT scan I had a week ago, I am supposed to begin another 5-day infusion of cisplatin and 5FU, my 4th chemo infusion in 4 months (I have been receiving a new infusion every 28 days to be exact). Exactly one year ago in May and June 2011, the standard protocol treatment for anal cancer: 2 4-day rounds of chemo (mitomycin and 5FU)and 6 1/2 weeks of radiation 5 days a week which I was receiving put me in remission for about 6 months. That treatment ended June 10, 2011. 4 months ago, in early February 2012, my radiation oncologist detected an enlarged right-side inguinal lymph node in a CT scan. A biopsy revealed malignant cells. Another biopsy on a left-side inguinal lymph node was also positive for malignant cells. A PET scan showed more lymph nodes lighting up in the abdomen. I was told I am now StageIV metatstatic, instead of being StageIIIB when I was diagnosed in April 2011. A referral to a surgical oncologist after the malignant biopsies resulted in a no-surgery decision. Because the 6 1/2 weeks of radiation a year earlier was a once-in-a-lifetime tolerance, my only treatment option in February was more chemotherapy : this time 5-day rounds of cisplatin and 5FU every 28 days (which is what I mentioned at the beginning of this comment). After asking for frank honesty (redundant?) my radiation oncologist told me there is a 0% chance I will be alive 5 years from now. My chemo oncologist said patients like me typically have 1-2 years left. My appointment with my chemo oncologist 3 hours from now will give me the results of the new pelvis/abdomen CT scan I had a week ago ; afterwards a new chemo infusion is supposed to begin. I am glad to read your recommendation of Dr. Eng at MD Anderson. I am considering an alternate opinion from someone like Dr. Eng at an eminent institution like MD Anderson because my wonderful sister who left her home and family in order to come to Atlanta to caretake me for a week lives in Houston.

    WOW
    Wade James,

    Boy do you have a lot on your plate right now. I am glad your sister is there to support you at this most difficult time. Seek the other opinion, it will help you face whatever comes. You certainly don't need to add "what if" to your plate. Seek calm and peace to face what lies ahead for you. Remember, on the other side of fear is freedom.

    Wishes to you,
    Joanne

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