Adenoid Cystic Carcinoma

katenorwood
katenorwood Member Posts: 1,912
in Head and Neck Cancer #1
Hey everyone,
Was just on a site talking about different cancer centers. HOLY COW ! I know how they feel but also I have learned darn quick that I am in charge of me. My cancer was in my submandiblar gland (saliva) and was told very rare. My options are pretty limited, but I am not giving in to that. I have been proactive...finding out what my cancer is, what my treatment options are...and am in a wonderful org., that has updated, accurate information on my specific cancer. I'm not very computer literate but am learning fast. Also I have to say how wonderful our cancer society here in Minnesota has been...we aren't rich and I'm unable to work. For anyone interested in ACC (my cancer) the site I'm on is ACCOI and our sister site ACCRF. Cancer plainly stinks, and research on my cancer is limited...too many others that have more people with different cancers. But let's not give in to hopelessness please. Heads up, shoulders back....and live each day to our best ability. Prayers for all of us survivors (don't consider myself any different and you shouldn't either !

Comments

  • Pam M
    Pam M Member Posts: 2,196
    #2
    Good to Meet You
    Sorry we ever had a reason to meet.

    I know we have a couple people with your cancer here - hope they read soon and chime in to introduce themselves.

    Glad you found a site with good info and a supportive group - I'm sure you already know the folks here are wonderful.

    Sounds like a plan - - "Heads up, shoulders back".
  • cheekylibrarian
    cheekylibrarian Member Posts: 2
    #3
    Saying hello from a fellow ACC fighter
    Good to hear you are fighting along with me, but sorry we meet this way. I am a medical librarian in Nebraska that is celebrating 7 years post-diagnosis at the end of this month. You are connected to the best sources of information and support - ACCOI, ACCRF, and of course, ACS. I have additional connections to information on my blog, if you wish to check them out: http://cheekylibrarian.blogspot.com . No advertising, just info and hopefully some humor. Prayers to you and everyone in this boat with us, no matter the type of cancer crud we are working with.
  • katenorwood
    katenorwood Member Posts: 1,912
    #4
    Pam M said:

    Good to Meet You
    Sorry we ever had a reason to meet.

    I know we have a couple people with your cancer here - hope they read soon and chime in to introduce themselves.

    Glad you found a site with good info and a supportive group - I'm sure you already know the folks here are wonderful.

    Sounds like a plan - - "Heads up, shoulders back".

    Thank you...
    Pam,
    When I found out I had cancer I thought ok it could be worse. Than I found out how rare it was and that only option was surgery. So again I thought ok let's get on with it. Asked my clinics and cancer centers and cancer society for info., man I had to find it myself. Not many drs have treated our kind of cancer ever. I've met wonderful, inspirational people around the world with this kind of cancer. And have educated myself and stay in touch with upbeat survivors. Thank you for your kind welcome to this site ! I hope all is well with you ? Please stay in touch. Warm regards, Katie
  • katenorwood
    katenorwood Member Posts: 1,912
    #5
    cheekylibrarian said:

    Saying hello from a fellow ACC fighter
    Good to hear you are fighting along with me, but sorry we meet this way. I am a medical librarian in Nebraska that is celebrating 7 years post-diagnosis at the end of this month. You are connected to the best sources of information and support - ACCOI, ACCRF, and of course, ACS. I have additional connections to information on my blog, if you wish to check them out: http://cheekylibrarian.blogspot.com . No advertising, just info and hopefully some humor. Prayers to you and everyone in this boat with us, no matter the type of cancer crud we are working with.

    Hello !
    I am so happy to connect....remember you from our other site. And yes I will check out your blog. I love inspirational people, and of coarse humor ! I agree, this is not the way to meet good people...but here we are. Please stay in touch, and with warmest regards, Katie

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