New DX

Sorry you have had to join us here.
I was 54 last March post menopause and started heavy bleeding and severe pain. Went to my regular Gyn Dr who did a D&C. 1 April got the pathology results from the cells removed. It was MMMT - malignant mixed Müllerian tumor or carcinosarcoma (two cancers mixed). Met with the Oncologist Gynecologist Dr on 4 April and surgery (complete radical Hysterectomy with the removal of 12 lymph nodes and the Omentum (layer of stomach fat) 8 April. After the full surgery, the path results were that the tumor in the uterus was stage 1A with the tumor invading approximately 0.3 cm from level of background endometrium into a 3.0 cm thick myometrium in this area. Also 1 Left obturator lymph node out of 4 removed had two microscopic cancer cells which upgraded my stage of cancer to a 3C. Four weeks recovery, then started first chemo of carboplatin-paclitaxol (carbo/taxal) on 6 May and every 21 days till 22 August. Went back to work 6 June and just took off those days that I received chemo and felt bad after the chemo. Taste buds change after chemo and joint/muscle pain hit about day 3-10. Start feeling better just in time to get another treatment. I did not have any radiation, some do. MMMT is a rare and aggressive cancer. I did not know before hand to ask them to do a tumor assay test and if it was hormone positive or negative.
Yes I was no thinking cancer when I had the D&C. I had slight bleeding in 2004 and the D&C cleared it up. So I was thinking ok, another D&C and it will clear up the problem again. I was shocked when the Dr said cancer. But I said: “what do I need to do and let’s get it done”. It has been 1 year since surgery. I go every three months now for test. So far so good. CA125 is not a good marker for me because before surgery it was 15 which is in the normal range.
The chemo does make some people lose their hair, I did. Some ladies chose to buy wigs, wear hats or scarves or go bald. I just went bald because it was HOT (100 degrees in Texas last summer) to wear anything. Each person is different on how the deal with their hair. Lots more information on this site about that subject.
There are several different kinds of uterine cancers that can be diagnosed and each one is different and some more aggressive than others. There are also different treatments, almost all get chemo but some no not get radiation, some do get radiation and some get both external and internal. Which chemo is best is usually determined by a tissue assay test.
Try not to read too much of the Internet because most studies and information is old and out of date. The first thing I read that said MMT said I would only survive 2 years but not longer than 5. I believe I will live longer than that now but there is only One that has control of that. I do not know what my expiration date is and I will fight the cancer fight until I do die no matter what. There are lots of treatments and new studies and cures are found every day to help in the fight of cancer.
There are a lot of women on this site that can give information but all give support and understand the journey. Good Luck on your journey and keep us posted. trish

Gay...I also live about an
Gay...I also live about an hour from KU Med. My mom was diagnosed with Endometriod Adenocarcinoma stage 3c grade 2 in Nov.2010. She originally saw a dr. in Lawrence who discovered she had endometrial cancer and referred her on to Dr. Chapman at KU Med, she's the one who did her hysterectomy and staging. She went through chemo at Lawrence Cancer Center but continues checkups with Dr, Chapman. She finished treatment a year ago in March and some "spots" are showing up on her lungs. She goes in tomorrow for a PET scan and results on Thurs. You are right..the waiting and not knowing is one of the hardest parts. Hang in there and prayers to you for quick healing!