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Bryanna22
Bryanna22 Member Posts: 8
Hello, I am new to the discussion board. I was diagnosed with breast cancer in January. I began chemotherapy in Feburary, my last chemo treatment will be in one week. Surgery will be in about four weeks. I am very scared about the next step in this journey. I would love to hear from someone who has gone through this. Thanks

Comments

  • Tux
    Tux Member Posts: 544
    Welcome, Bryanna
    So sorry that you have had to join this board. Glad to hear that chemo is over for you.
    There are many on this chatboard who have had mastectomies, so I am sure that they can tell you some things to help. I only had a lumpectomy on one side, went home same day, no drains, minimal discomfort. I did sleep on the couch with pillows wedged so I would not roll over.
    Also, from other surgeries I know to keep a written record of pain meds (in case I forget) and keep water at my bedside to keep from getting dehydrated. (I got a bladder infection once from not drinking enough after surgery.) Also avoid constipation by drinking prune juice or whatever else you normally do to keep things moving. Best wishes--check back with us often!
  • New Flower
    New Flower Member Posts: 4,294
    Welcome
    Soory that you have been going throught. I have had my mastectomy 4 years ago. Surgery and recovery was not a picnic, however double and important step
    Good luck with your surgery
  • Rague
    Rague Member Posts: 3,653 Member
    All BC is not the same!
    To get replies from those who have dealt with your Type BC (DCIS/LCIS/IDC/ILC/IBC) and ER/PR, HER2 or TN status would help to get info that pertains to you. I'm IBC, Er+/PR-/HER-, so that is different than most - my timeline was 17 days post DX A/C, surgery 2 weeks later, 3 weeks later 12 weekly Taxol and a week later started rads, followed a week after starting rads with Femarra.

    We are each unique as is our DX and TX plan. More info is needed for replies from those who might have been down the path you will walk than just "I was diagnosed with breast cancer in Jan."

    Winyan - The Power Within

    Susan
  • eihtak
    eihtak Member Posts: 1,473 Member
    Welcome
    Hi, and as most say, so sorry we have to meet like this, but yet a great place to come to for help and support. I was just diagnosed with Breast Cancer in Feb and had my double mastectomy in March. I am also recovering from Anal Cancer Stage3+ and recently finished chemo and radiation. It was at a follow-up PET scan that the BC was found. I went in for my surgery on a Wed. and came home on Fri. Some people are only there a day, and some longer. The first couple days were more uncomfortable than really painful for me. I had two drain tubes on each side that had to be emptied occasionally. They will show you how to care for these in the hospital. Some people plan to wear a light jacket with those inside pockets to tuck the tubes in, but I just pinned them to the sides of a tank top and wore a loose sirt over. Plan to NOT make any fashion statements till the tubes come out, mine were all out within 2wks.(it depends on fluid build-up) You will have limited lifting for a short while, so arrange food, dishes, things you use often into lighter containers and on lower shelves...especially if you won't always have someone else around to help. I slept on my back with a bunch of extra pillows to have my head elevated and kind of under my arms also. I was told not to drive for a couple weeks and that was hard because I actually felt like I could after one. My lack of movement and reaction time was probably not really good tho, so best not to push it. Drink lots of fluid after surgery, its important to stay hydrated. They should tell you when and how much to use your arms, but let your body heal and don't overdue...you will have lots of stitches and don't want to tear any. At my follow-up appointment my doc put me on Arimidex, a med to block estrogen. because my cancer was ER+. I'm sure they will discuss all that pertaining to your situation. I do have some mild side effects from that, but so far manageable. Get some good movies, books, loose soft comfy tops, make meals and freeze ahead of time, and accept help from any friends that offer. Good luck to you, it is an emotional rollercoaster, and sometimes I feel like its all going smoothly and then in an instant I'm crying! There are lots of kind supportive people here, and we are truely blessed to have the technology to connect with each other this way, so please continue to post and let us know how things are going. As always, all in my prayers.
  • salls41
    salls41 Member Posts: 340
    Welcome, sorry you need to be here
    Hi Bryanna, Welcome.. sorry you need to be here. I am fairly new here as well. I was dx in November with stage ll triple neg. bc. I went through 6 treatments of chemo~ TAC, finishing up in April. I had my bi-lateral mastectomy this past Sunday (with reconstruction) and am now on the mend. I got some good advice from this site. But what I got the most benefit from was someone telling me not to feel guilty about taking care of me for now. So I pass that on to you. Take care of you and do what you need to do to stay strong and get through this. I send you prayers and positive thoughts. If I can help in any other way please let me know.
    (((Hugs)))
    Sandy
  • Monicalynn
    Monicalynn Member Posts: 61
    salls41 said:

    Welcome, sorry you need to be here
    Hi Bryanna, Welcome.. sorry you need to be here. I am fairly new here as well. I was dx in November with stage ll triple neg. bc. I went through 6 treatments of chemo~ TAC, finishing up in April. I had my bi-lateral mastectomy this past Sunday (with reconstruction) and am now on the mend. I got some good advice from this site. But what I got the most benefit from was someone telling me not to feel guilty about taking care of me for now. So I pass that on to you. Take care of you and do what you need to do to stay strong and get through this. I send you prayers and positive thoughts. If I can help in any other way please let me know.
    (((Hugs)))
    Sandy

    hello
    Mine is a bit reversed, had surgery first and then started treatment. I was diagnosed on Dec. 23, More biopsies and right side masectomy at the end of January and after pathology reports came back it was stage I IDC, estrogen/progesterone negative with Her 2 Neu positive. I am getting my third chemo treatment on Weds with one more to follow then 13 treatments of herceptin.

    Like eithak said, have pillows for after surgery, I used them to prop up my right arm as I slept on my back. What surgery are you getting? lumpectomy or masectomy? My drain stayed in for about 10 days,
  • Bryanna22
    Bryanna22 Member Posts: 8
    eihtak said:

    Welcome
    Hi, and as most say, so sorry we have to meet like this, but yet a great place to come to for help and support. I was just diagnosed with Breast Cancer in Feb and had my double mastectomy in March. I am also recovering from Anal Cancer Stage3+ and recently finished chemo and radiation. It was at a follow-up PET scan that the BC was found. I went in for my surgery on a Wed. and came home on Fri. Some people are only there a day, and some longer. The first couple days were more uncomfortable than really painful for me. I had two drain tubes on each side that had to be emptied occasionally. They will show you how to care for these in the hospital. Some people plan to wear a light jacket with those inside pockets to tuck the tubes in, but I just pinned them to the sides of a tank top and wore a loose sirt over. Plan to NOT make any fashion statements till the tubes come out, mine were all out within 2wks.(it depends on fluid build-up) You will have limited lifting for a short while, so arrange food, dishes, things you use often into lighter containers and on lower shelves...especially if you won't always have someone else around to help. I slept on my back with a bunch of extra pillows to have my head elevated and kind of under my arms also. I was told not to drive for a couple weeks and that was hard because I actually felt like I could after one. My lack of movement and reaction time was probably not really good tho, so best not to push it. Drink lots of fluid after surgery, its important to stay hydrated. They should tell you when and how much to use your arms, but let your body heal and don't overdue...you will have lots of stitches and don't want to tear any. At my follow-up appointment my doc put me on Arimidex, a med to block estrogen. because my cancer was ER+. I'm sure they will discuss all that pertaining to your situation. I do have some mild side effects from that, but so far manageable. Get some good movies, books, loose soft comfy tops, make meals and freeze ahead of time, and accept help from any friends that offer. Good luck to you, it is an emotional rollercoaster, and sometimes I feel like its all going smoothly and then in an instant I'm crying! There are lots of kind supportive people here, and we are truely blessed to have the technology to connect with each other this way, so please continue to post and let us know how things are going. As always, all in my prayers.

    Thanks
    Dear Eihtak, thank you for your kind words and information, they are truly encouraging.
  • Bryanna22
    Bryanna22 Member Posts: 8
    salls41 said:

    Welcome, sorry you need to be here
    Hi Bryanna, Welcome.. sorry you need to be here. I am fairly new here as well. I was dx in November with stage ll triple neg. bc. I went through 6 treatments of chemo~ TAC, finishing up in April. I had my bi-lateral mastectomy this past Sunday (with reconstruction) and am now on the mend. I got some good advice from this site. But what I got the most benefit from was someone telling me not to feel guilty about taking care of me for now. So I pass that on to you. Take care of you and do what you need to do to stay strong and get through this. I send you prayers and positive thoughts. If I can help in any other way please let me know.
    (((Hugs)))
    Sandy

    Hello
    Hello Sandy, thank you for your advice. I am also sorry you have to go through this, but I see this as a process that one goes through that makes you stronger. It is very hard for me to take care of me, I am used to taking care of everyone else but I am learning slowing that I am important and it is ok to be selfish for now. Stay positive and laugh when you can.
  • Bryanna22
    Bryanna22 Member Posts: 8

    hello
    Mine is a bit reversed, had surgery first and then started treatment. I was diagnosed on Dec. 23, More biopsies and right side masectomy at the end of January and after pathology reports came back it was stage I IDC, estrogen/progesterone negative with Her 2 Neu positive. I am getting my third chemo treatment on Weds with one more to follow then 13 treatments of herceptin.

    Like eithak said, have pillows for after surgery, I used them to prop up my right arm as I slept on my back. What surgery are you getting? lumpectomy or masectomy? My drain stayed in for about 10 days,

    Hello
    Hi Monicalynn, glad to hear from you. I decided to join the discussion board because I began to develop feelings of sinking into a dark place and alone. I do have a good support system, but there are times when I dont feel like sharing my fears with them. Everyone on the board has been very helpful and encouraging and for that I am greatful. I will be having right side mastectomy with reconstruction. I chose the tram flap instead of the saline implant. At this point in the process all I can pray for is a great and successful outcome. I do give thanks everyday because I have done well through the last five chemotherapy with one more to go. Good luck with your treatment plan.
  • Bryanna22
    Bryanna22 Member Posts: 8
    Rague said:

    All BC is not the same!
    To get replies from those who have dealt with your Type BC (DCIS/LCIS/IDC/ILC/IBC) and ER/PR, HER2 or TN status would help to get info that pertains to you. I'm IBC, Er+/PR-/HER-, so that is different than most - my timeline was 17 days post DX A/C, surgery 2 weeks later, 3 weeks later 12 weekly Taxol and a week later started rads, followed a week after starting rads with Femarra.

    We are each unique as is our DX and TX plan. More info is needed for replies from those who might have been down the path you will walk than just "I was diagnosed with breast cancer in Jan."

    Winyan - The Power Within

    Susan

    Hello
    Dear Susan,
    Thank you for your response, you are correct I should have provided more information about my diagnosis and treatment plan. maybe it was/is difficult for me to say or even write this information down. It is not that I am in denial, but processing this diagnosis and possible outcome is very hard. As a healthcare provider and knowing the psoitive and negative outcome of cancer makes it even harder to think positive at all times. I was diagnosed with DCIS, HERS positive BC. I was given six cycles of TCH chemotherapy which includes Toxotere, Carboplatin and Heceptin with right side mastectomy and reconstruction to follow. The Herceptin will be for a year. Well Susan thank you again because I was able to say it out aloud and even write it down. Stay positive .
  • jnl
    jnl Member Posts: 3,869 Member

    Welcome
    Soory that you have been going throught. I have had my mastectomy 4 years ago. Surgery and recovery was not a picnic, however double and important step
    Good luck with your surgery

    Hi and welcome. I am sorry
    Hi and welcome. I am sorry that you're here. I had a lumpectomy with rads, no chemo. I am wishing you good luck with your surgery and congrats on finishing chemo.


    Hugs, Leeza
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    Hi....I had surgery and
    Hi....I had surgery and radations but no chemo...so not much advice...

    I did find it helpful to keep a journal..(thought goofy at the time)but in hind sight it was helpful..

    a friend and cancer center each gave me one...

    Denise
  • pinkkari09
    pinkkari09 Member Posts: 877
    Welcome to the board, I'm
    Welcome to the board, I'm glad you found us. I've done all kinds of treatments, several operations, as many on here have. There's great advice here and always someone going through the same thing. Stay strong and come here often:)
    Miles of Love,
    ~Kari
  • Debbie77
    Debbie77 Member Posts: 5
    New to Site
    Hi Bryanna, I am new to the board also. My treatments are opposite from yours: I was diagnosed with breast cancer in April, had a bilateral mastectomy on May 4, (am recovering well) and I will begin chemotherapy in the near future. I am terrified of the chemo. The surgery itself was not bad. The tubes are a pain but will come out soon. What everyone else has suggested is excellent advice: use pillows to prop yourself and your arms up when sleeping, keep much used items on low shelves, do the exercises the docs give you. They will limber your arms and keep your range of motion working. Praying for your swift recovery. Debbie