anyone on cisplatin?

garden gal
garden gal Member Posts: 212 Member
in Ovarian Cancer #1
or have been on it. will be starting this drug next wed. recent cat scan not good. Read that this drug can cause some serious side affects. Hoping this drug brings the numbers down for me. Whatever the side affects are I will get through it, just need some incouragement and hope and prays. thanks Kathy

Comments

  • Mwee
    Mwee Member Posts: 1,338
    #2
    cisplatin working very well for me
    Hi Kathy... I've been on cisplatin along with gemzar ever since I became allergic to carboplatin. That was about 17 months ago, so I've had lots of cisplatin. It has about the same side effects as carboplatin. It doesn't cause hair loss and I have experienced less "metal mouth" than carbo would cause me to have. Beware of constipation if you're like me and suffer from that. I'm right here if you have any concerns. Oh, I'll stay on cisplatin as long as it's keeping me stable.
    (((HUGS))) Maria
  • Mwee
    Mwee Member Posts: 1,338
    #3
    cisplatin working very well for me
    Hi Kathy... I've been on cisplatin along with gemzar ever since I became allergic to carboplatin. That was about 17 months ago, so I've had lots of cisplatin. It has about the same side effects as carboplatin. It doesn't cause hair loss and I have experienced less "metal mouth" than carbo would cause me to have. Beware of constipation if you're like me and suffer from that. I'm right here if you have any concerns. Oh, I'll stay on cisplatin as long as it's keeping me stable.
    (((HUGS))) Maria
  • garden gal
    garden gal Member Posts: 212 Member
    #4
    Mwee said:

    cisplatin working very well for me
    Hi Kathy... I've been on cisplatin along with gemzar ever since I became allergic to carboplatin. That was about 17 months ago, so I've had lots of cisplatin. It has about the same side effects as carboplatin. It doesn't cause hair loss and I have experienced less "metal mouth" than carbo would cause me to have. Beware of constipation if you're like me and suffer from that. I'm right here if you have any concerns. Oh, I'll stay on cisplatin as long as it's keeping me stable.
    (((HUGS))) Maria

    Thanks Mwee
    I too had a bad reaction to carbo, so I'm hoping I can tolerate cisplatin. I take miralax before and after chemo for constipation and so far it's worked. thanks for your reply and god love you 17 months. Hope I have good luck as you have had. I do remember that metal mouth too. Kathy
  • Mwee
    Mwee Member Posts: 1,338
    #5
    garden gal said:

    Thanks Mwee
    I too had a bad reaction to carbo, so I'm hoping I can tolerate cisplatin. I take miralax before and after chemo for constipation and so far it's worked. thanks for your reply and god love you 17 months. Hope I have good luck as you have had. I do remember that metal mouth too. Kathy

    sorry for the double post
    this site is real slow for me this AM... cisplatin and I are buddies, may it work it's wonders for you, also! (((HUGS))) Maria
  • kikz
    kikz Member Posts: 1,345 Member
    #6
    Mwee said:

    sorry for the double post
    this site is real slow for me this AM... cisplatin and I are buddies, may it work it's wonders for you, also! (((HUGS))) Maria

    I had cisplatin with taxol
    and I was a lot sicker than when I had carboplatin and taxol. I am not sure why. Of course I was getting more infusion of cis/tax so maybe that is why. I had hair loss both times so was it the taxol?

    Karen
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #7
    kikz said:

    I had cisplatin with taxol
    and I was a lot sicker than when I had carboplatin and taxol. I am not sure why. Of course I was getting more infusion of cis/tax so maybe that is why. I had hair loss both times so was it the taxol?

    Karen

    I am having a rough time
    With Cispatin, but my numbers are way down. I get very nauseaus and tired. I hope you do well on this combo...val
  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    #8
    Just finished 6 rounds of
    Just finished 6 rounds of taxol/cisplatin . Felt weak . Experienced nausea the last 3 rounds. Hard for me to stay hydrated though. Home health brought fluid to infusion center for me to use several days after chemo. I dripped it into my accessed port. Zofran was already mixed in with 1000 ml saline. This helped tremendously. My ca 125 started at 3200, now 31. Hope this helps.
    Prayers,
    Shawnna

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