mets to lymph nodes?

waffle8
waffle8 Member Posts: 234
Looking to see if anyone has any thoughts or experience with this? My original nodes were clear (3) with my lumpectomy ! But I recently had my first pet scan! The report shows 2 swollen lymph nodes! One in neck and other in pelvis! Now waiting on doctors to decide what type of biopsy should be done! My least favorite word waiting! My head is spinning again!
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Comments

  • missrenee
    missrenee Member Posts: 2,136 Member
    Yes, I've had spread into my axillary nodes
    I had them all removed on the side of my lumpectomy. Out of 22 nodes, 10 were positive. That was at initial diagnosis.

    Since then, I've developed bone mets 2 years later.

    You're right--the waiting is the worst. Hopefully, you'll be scheduled for the biopsy soon and then you can see what you're dealing with. Don't assume it is cancer. They can be swollen for a number of reasons.

    Best of luck and hugs, Renee
  • SIROD
    SIROD Member Posts: 2,194 Member
    Waiting
    Hi,

    Having negative lymph nodes when diagnose doesn't guarantee that a recurrence won't ever happen. I would think the one in the neck (soft tissue) might be easier to do a biopsy on than on your pelvis (bone).

    No one likes the waiting and no one wants a recurrence. Please keep us posted.

    I am 17+ years from diagnose, (13 years since my first recurrence) and mine are in the lungs, lining, ribs. Doable. Waiting is the hardest aspect of having a breast cancer diagnose. Once you know and have a plan it makes it easier.

    Best to you,

    Doris
  • Jean 0609
    Jean 0609 Member Posts: 2,462
    Oh no!
    I was just thinking about you the other day, wondering how things were. This isn't what I wanted to hear. Fingers, toes, and everything else crossed that it is nothing. Please know that you are in my thoughts & prayers, my friend.

    Hugs & Hershey Kisses,
    Jean
  • MAJW
    MAJW Member Posts: 2,510 Member
    Jean 0609 said:

    Oh no!
    I was just thinking about you the other day, wondering how things were. This isn't what I wanted to hear. Fingers, toes, and everything else crossed that it is nothing. Please know that you are in my thoughts & prayers, my friend.

    Hugs & Hershey Kisses,
    Jean

    Mets to the lymph nodes...
    I had no lymph node involvement at the time of my lumpectomy in May of 2009....last June I discovered a swollen node right above my clavicle bone...it is a recurrence of my triple negative bc...I swear it came up overnight...don't know how I could have missed it...
    I had a biopsy done under conscious sedation...it took less than 10 minutes and it really was a piece of cake...

    Don't panic, it maybe due to some type of infection...they will probably do a biopsy of the clavicle node....

    Keep us posted and yes, waiting is always rough...We care
    Hugs, Nancy
  • Kylez
    Kylez Member Posts: 3,761 Member
    SIROD said:

    Waiting
    Hi,

    Having negative lymph nodes when diagnose doesn't guarantee that a recurrence won't ever happen. I would think the one in the neck (soft tissue) might be easier to do a biopsy on than on your pelvis (bone).

    No one likes the waiting and no one wants a recurrence. Please keep us posted.

    I am 17+ years from diagnose, (13 years since my first recurrence) and mine are in the lungs, lining, ribs. Doable. Waiting is the hardest aspect of having a breast cancer diagnose. Once you know and have a plan it makes it easier.

    Best to you,

    Doris

    You're in my prayers and
    You're in my prayers and thoughts!
  • RE
    RE Member Posts: 4,591 Member
    Hugs
    Yes, after 6 chemo treatments and 6 weeks of rads I had mets to the sentinel node in my chest. Surgeon did a testing of it to be sure, once it was confirmed I had more chemo and more rads...that was way back in 1998 and I was fine until 2007 when I had an early bc in the unaffected breast (unrelated to first two cancers). So I guess what I am saying is yes it is scary as the dickens but it can be manageable! Hugs to you, let us know how things go.

    RE
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    The pathology after my
    The pathology after my bilateral/axillary dissection showed that 12 of 14 nodes were positive. In fact, my cancer was found because of swelling in my armpit, not because of changes in breast. A year later I had a local recurrence and was dx'd with mets to the lymph nodes between my lungs at that time. The mets would not have been found if not for additional tests done with the local recurrence. The mets by themselves cause no symptoms.

    All of the symptoms and issues I have (fatigue and neuropathy) are a result of the treatments, not the cancer. I have been on chemo for 8 months now. I started with Xeloda for 2 months, it didn't work for me. So we switched to weekly Abraxane, I've done 6 months of that, it's keeping the cancer stable.

    I truly hope the swelling is something else. Our lymph systems help to fight all kinds of infection and inflammation, so there is every possibility that it is not cancer. I know the waiting is hard, but we'll be here with you. Please let us know what's happening.

    Hugs,

    Linda
  • New Flower
    New Flower Member Posts: 4,294

    The pathology after my
    The pathology after my bilateral/axillary dissection showed that 12 of 14 nodes were positive. In fact, my cancer was found because of swelling in my armpit, not because of changes in breast. A year later I had a local recurrence and was dx'd with mets to the lymph nodes between my lungs at that time. The mets would not have been found if not for additional tests done with the local recurrence. The mets by themselves cause no symptoms.

    All of the symptoms and issues I have (fatigue and neuropathy) are a result of the treatments, not the cancer. I have been on chemo for 8 months now. I started with Xeloda for 2 months, it didn't work for me. So we switched to weekly Abraxane, I've done 6 months of that, it's keeping the cancer stable.

    I truly hope the swelling is something else. Our lymph systems help to fight all kinds of infection and inflammation, so there is every possibility that it is not cancer. I know the waiting is hard, but we'll be here with you. Please let us know what's happening.

    Hugs,

    Linda

    Waiting is hard
    Sorry that you have to wait. PET scans are often give false positive results. That is why my oncologist does not routenly monitor NED using this technique. Usually, UCLA recommends scans when patient has a serious complaint.
    There are many reasons for swollen lymph nodes, even flu, cold, or skin wound can cause it.
    I hope and pray your swollen nodes have nothing to do with cancer.
    Let us know about your doc decision
    Hugs
  • mollyz
    mollyz Member Posts: 756

    Waiting is hard
    Sorry that you have to wait. PET scans are often give false positive results. That is why my oncologist does not routenly monitor NED using this technique. Usually, UCLA recommends scans when patient has a serious complaint.
    There are many reasons for swollen lymph nodes, even flu, cold, or skin wound can cause it.
    I hope and pray your swollen nodes have nothing to do with cancer.
    Let us know about your doc decision
    Hugs

    Waiting!!
    I know how you feel waiting it's hard,im waiting now on a mri i got the 1st week in may I called my Dr's office last Thursday and the nurse said she would call me Friday but she didn't she was at another office and my mind went to thinking maybe she's not telling me until after memorial day because it's not good news but them i had to think "like a girl" lol im a fighter and im going to handle this and so are you when we both get our good news. ~~MollyZ~~
  • DebbyM
    DebbyM Member Posts: 3,289 Member

    Waiting is hard
    Sorry that you have to wait. PET scans are often give false positive results. That is why my oncologist does not routenly monitor NED using this technique. Usually, UCLA recommends scans when patient has a serious complaint.
    There are many reasons for swollen lymph nodes, even flu, cold, or skin wound can cause it.
    I hope and pray your swollen nodes have nothing to do with cancer.
    Let us know about your doc decision
    Hugs

    I don't know about this but
    I don't know about this but will keep you in my prayers. Keep us posted.


    Hugs, Debby
  • carkris
    carkris Member Posts: 4,553 Member
    DebbyM said:

    I don't know about this but
    I don't know about this but will keep you in my prayers. Keep us posted.


    Hugs, Debby

    you are in my prayers too!

    you are in my prayers too!
  • Noel
    Noel Member Posts: 3,095 Member
    carkris said:

    you are in my prayers too!

    you are in my prayers too!

    Sending lots of positive
    Sending lots of positive thoughts and prayers.
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    Noel said:

    Sending lots of positive
    Sending lots of positive thoughts and prayers.

    You're on our prayer
    You're on our prayer list.


    Hugs, Diane
  • waffle8
    waffle8 Member Posts: 234
    DianeBC said:

    You're on our prayer
    You're on our prayer list.


    Hugs, Diane

    feeling the pink love
    Thanks to everyone for the good thoughts and prayers! Just wanted to let you all know the docs have decided to biopsy both nodes! My appt is on June 5! I go from wishing the days away to saying I don't want to go! lol Believe it or not I got my pet scan done on a Monday and by the next day the nurse was calling me with the results! Now I could let myself say that might be a bad sign they are in a hurry but I am refusing to allow that thought! Please make room on that pink bus!



     

     
  • debi.18
    debi.18 Member Posts: 850 Member
    waffle8 said:

    feeling the pink love
    Thanks to everyone for the good thoughts and prayers! Just wanted to let you all know the docs have decided to biopsy both nodes! My appt is on June 5! I go from wishing the days away to saying I don't want to go! lol Believe it or not I got my pet scan done on a Monday and by the next day the nurse was calling me with the results! Now I could let myself say that might be a bad sign they are in a hurry but I am refusing to allow that thought! Please make room on that pink bus!



     

     

    More
    More good thoughts and prayers on the way!

    Hugs, Debi
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    debi.18 said:

    More
    More good thoughts and prayers on the way!

    Hugs, Debi

    Waffle .. Continuing to keep you in good thoughts
    and prayers. I will also be driving our PINK Support bus on the 5th ... I know we will
    have to pick up Nancy .. and a few others on the way.

    Continued strength, and peace for you during this most difficult waiting time.

    Vicki Sam
  • Lynne Logan
    Lynne Logan Member Posts: 105 Member

    The pathology after my
    The pathology after my bilateral/axillary dissection showed that 12 of 14 nodes were positive. In fact, my cancer was found because of swelling in my armpit, not because of changes in breast. A year later I had a local recurrence and was dx'd with mets to the lymph nodes between my lungs at that time. The mets would not have been found if not for additional tests done with the local recurrence. The mets by themselves cause no symptoms.

    All of the symptoms and issues I have (fatigue and neuropathy) are a result of the treatments, not the cancer. I have been on chemo for 8 months now. I started with Xeloda for 2 months, it didn't work for me. So we switched to weekly Abraxane, I've done 6 months of that, it's keeping the cancer stable.

    I truly hope the swelling is something else. Our lymph systems help to fight all kinds of infection and inflammation, so there is every possibility that it is not cancer. I know the waiting is hard, but we'll be here with you. Please let us know what's happening.

    Hugs,

    Linda

    So much
    Linda, you have been through so much! I do admire you so and you have such a wonderful attitude always helping others.
    I too just discovered a hard bump under my arm and pray it isn't a node since surgery was only 3 weeks ago.
    Since you're so supportive of all of us, I'd just like to let you know I think you're one very brave Warrior!!!
    XXXXX
    Lynne
  • sbmly53
    sbmly53 Member Posts: 1,522
    My dear friend
    Like Jean, I was thinking about you recently and saw your post. I have been doing all the things I can think of (prayers, positive thoughts, wishing...) I do hope it helps.

    June 5 is marked on my calendar. I'll be there, in the front of the bus with my new favorite thing - those frozen slushy wine cooler in a juice bag things and chocolate. Maybe some Belgian Waffles in your honor.

    Big hugs and so much love,

    Sue
  • Kylez
    Kylez Member Posts: 3,761 Member
    waffle8 said:

    feeling the pink love
    Thanks to everyone for the good thoughts and prayers! Just wanted to let you all know the docs have decided to biopsy both nodes! My appt is on June 5! I go from wishing the days away to saying I don't want to go! lol Believe it or not I got my pet scan done on a Monday and by the next day the nurse was calling me with the results! Now I could let myself say that might be a bad sign they are in a hurry but I am refusing to allow that thought! Please make room on that pink bus!



     

     

    I will be on the pink bus
    I will be on the pink bus for you waffle on June 5th!
  • StaceyPMD1121
    StaceyPMD1121 Member Posts: 65
    Hope Your Biopsy Is Negative!


    Hi Waffle8,


    I don't exactly know what you are going through, but my prayers are with you. I have asthma, sarcoidosis(which is inflammation of the lymph nodes and parts of the body).Now stage 2 breast cancer-IDC. My lymph node under my arm was swollen at the time of biopsy, but came back clear. Right now my throat hurts and is irritated (too much air conditioning)had tonsilectomy last year at 46 years old. Just be positive, say your prayers, and relax. Go have fun while you are waiting. Know that your pink sisters have your back. Please let us know how you are doing?

    Peace,Blessing, Hugs, & Laughter,
    Stacey