More stinking bad news
So, 24 hours a day, 7 days a week with the infamous chemo-pump. Joy...
--Jerry
Comments
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=(
So sorry to hear this - I'm praying that the cancer shrinks and shrivels with the 24/7 treatment.0 -
Jerry, so sorry to hear
Jerry, so sorry to hear this. I also "hate" cancer-It cuts life so short-hits all ages ( my pastors 2 month old, who passed at 3 1/2 yrs)and hurts the lives of all connected with it.
I thank God for what He has done so far in my life, and pray for the cure for all cancer.
Hugs and prayers, Sandra0 -
Super stinky
Well I was wondering about the lump but didn't think the jaw infection would be a tumor! That sneaky cancer really stinks! I hope the new chemo helps. Sorry to hear this news Jerry!0 -
Not What I Wanted to Hear!
Jerry, I am so sorry to hear this. I have followed you closely, perhaps because I am a teacher, too. Anyway, I was truly hoping this was nothing. This is such a horrible beast of a cancer. Keep on fighting--hopefully there will be a chemo cocktail that works wonders for you.
As always, my thoughts and prayers are with you.
In Chantal's and Judy's words, cuck fancer and FEC!!!!
Melinda
DX October 2009: T3N1M0
November and December 2009: chemo (Cisplatin and 5 FU) and radiation
February 2010: Ivor Lewis surgery0 -
Phooey is pretty mild for what I am wanting to say
Jerry:
Everyone has said everything I would want to say to you. I am sorry this is happening to you and along with William and Loretta and all the others here supporting you as much as we can, we will be praying for God to help the doctors and you find a path that will work for you.
I never dreamed that your pain the jaw would be cancer - I really thought it would be an abcess. I don't know how you manage to stay so strong but I sure am glad you do.
Sending you and Mrs. Wright a ton of hugs, prayers and positive thoughts.
Hugs,
Judy0 -
Well, dang, Jerry!! I justJReed said:Phooey is pretty mild for what I am wanting to say
Jerry:
Everyone has said everything I would want to say to you. I am sorry this is happening to you and along with William and Loretta and all the others here supporting you as much as we can, we will be praying for God to help the doctors and you find a path that will work for you.
I never dreamed that your pain the jaw would be cancer - I really thought it would be an abcess. I don't know how you manage to stay so strong but I sure am glad you do.
Sending you and Mrs. Wright a ton of hugs, prayers and positive thoughts.
Hugs,
Judy
Well, dang, Jerry!! I just know your spirit and sense of humor are big pluses for you in this battle. What chemo will you be getting 24/7? Do you have to travel for that or can you do it locally?
You and your wife are in my thoughts and prayers for sure!
Angie0 -
Don't know yet what chemoAngieD said:Well, dang, Jerry!! I just
Well, dang, Jerry!! I just know your spirit and sense of humor are big pluses for you in this battle. What chemo will you be getting 24/7? Do you have to travel for that or can you do it locally?
You and your wife are in my thoughts and prayers for sure!
Angie
I'll find out on Thursday when the new regimen starts. Hope I can keep my brain.
"Of all the things I've lost, I miss my mind the most..." --Mark Twain
--Jerry0 -
My "constant companion" for 16 weeks
Jerry,
Bummer that this round is not working!!! I am very familiar with the lovely chemo-pump "constant companion". After wearing it 24/7 for 16 weeks when I finally got it taken off each time I would get out of bed at night I would reach for the pump that I used to set on my nightstand when I was sleeping.
My biggest challenge was to figure out how to take a shower. Here is my process:
1. Cover the area where the pump goes into your port with plastic wrap (I found "Press and Seal" works best.
2. Hang the chemo pump over the shower partition (I set mine on a towel rack that was outside my shower).
3. Carefully get wet under the shower
4. Soap up
5. Carefully rinse off trying to keep the stream of water away from the "Press and Seal"
6 Dry the area over the "Press and Seal" first, and then dry off the rest.
I have a shower that is a combination standard shower head and hand shower so that helps to keep the shower stream away from the port area.
I hope the 24/7 approach works better than the last round. You will be in my daily prayers.
Best Regards,
Paul Adams
Grand Blanc, Michigan
DX 10/22/2009 T2N1M0 Stage IIB
12/03/2009 Ivor Lewis
2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
Two year survivor
Life may not be the party we hoped for, but while we are here we might as well dance!0 -
Jerry don't blame you for being bummedpaul61 said:My "constant companion" for 16 weeks
Jerry,
Bummer that this round is not working!!! I am very familiar with the lovely chemo-pump "constant companion". After wearing it 24/7 for 16 weeks when I finally got it taken off each time I would get out of bed at night I would reach for the pump that I used to set on my nightstand when I was sleeping.
My biggest challenge was to figure out how to take a shower. Here is my process:
1. Cover the area where the pump goes into your port with plastic wrap (I found "Press and Seal" works best.
2. Hang the chemo pump over the shower partition (I set mine on a towel rack that was outside my shower).
3. Carefully get wet under the shower
4. Soap up
5. Carefully rinse off trying to keep the stream of water away from the "Press and Seal"
6 Dry the area over the "Press and Seal" first, and then dry off the rest.
I have a shower that is a combination standard shower head and hand shower so that helps to keep the shower stream away from the port area.
I hope the 24/7 approach works better than the last round. You will be in my daily prayers.
Best Regards,
Paul Adams
Grand Blanc, Michigan
DX 10/22/2009 T2N1M0 Stage IIB
12/03/2009 Ivor Lewis
2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
Two year survivor
Life may not be the party we hoped for, but while we are here we might as well dance!
So sorry to hear this news Jerry. I read your other post and was hoping that those lumps were not cancer. You have every right to be bummed, 24/7 chemo is never easy. My thoughts and prayers are with you. Sometimes I think you have to get angry with this stupid EC. hugs,
Donna700 -
Hi Jerry, would just like tojgwright said:Don't know yet what chemo
I'll find out on Thursday when the new regimen starts. Hope I can keep my brain.
"Of all the things I've lost, I miss my mind the most..." --Mark Twain
--Jerry
Hi Jerry, would just like to wish you well as you continue your battle with this terrible cancer. Hope your next round of treatment will prove successful. You're in my thoughts and prayers.
Ann wife of Alan
Dx Sept 2009, T3N2M0
Ivor Lewis March 2010
Lost his battle Jan. 20120 -
You keep me smiling
Jerry,
I hate the news you have gotten, and the news is not what I am referring to when I say you keep me smiling. I love your choice of words and keep such a great attitude, that is what keeps me smiling about you.
Please know that I will be praying for you daily and will keep check here to get all the updates. keep up the positive attitude brother.0 -
Phooey?
That just doesn't seem like a strong enough word for this situation. I hope the next round will knock the socks off those little cancer buddies and the new jaw tumor.
I'm going with Judy's line....FEC
Rita0 -
Thanks Paul.paul61 said:My "constant companion" for 16 weeks
Jerry,
Bummer that this round is not working!!! I am very familiar with the lovely chemo-pump "constant companion". After wearing it 24/7 for 16 weeks when I finally got it taken off each time I would get out of bed at night I would reach for the pump that I used to set on my nightstand when I was sleeping.
My biggest challenge was to figure out how to take a shower. Here is my process:
1. Cover the area where the pump goes into your port with plastic wrap (I found "Press and Seal" works best.
2. Hang the chemo pump over the shower partition (I set mine on a towel rack that was outside my shower).
3. Carefully get wet under the shower
4. Soap up
5. Carefully rinse off trying to keep the stream of water away from the "Press and Seal"
6 Dry the area over the "Press and Seal" first, and then dry off the rest.
I have a shower that is a combination standard shower head and hand shower so that helps to keep the shower stream away from the port area.
I hope the 24/7 approach works better than the last round. You will be in my daily prayers.
Best Regards,
Paul Adams
Grand Blanc, Michigan
DX 10/22/2009 T2N1M0 Stage IIB
12/03/2009 Ivor Lewis
2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
Two year survivor
Life may not be the party we hoped for, but while we are here we might as well dance!
The alternative was to be unwashed and horribly offensive. I'll follow your recommendations. They sound good. I have one of those portable shower heads on a long flexible tube, so I should be "cool".
"It's always something..." --Gilda Radner.
--Jerry0 -
Choice of Words...ritawaite13 said:Phooey?
That just doesn't seem like a strong enough word for this situation. I hope the next round will knock the socks off those little cancer buddies and the new jaw tumor.
I'm going with Judy's line....FEC
Rita
Robert Heinlein had a line in one of his books. "Profanity wasn't strong enough, so I just said, 'Oh my...'"
The only time I used profanity was when I got my first diagnosis as a Stage IV. My wife and I got in the elevator, and I used the impolite term for fecal material about five times. It didn't help. (Of course, in reality that isn't "profanity", but rather (at least theoretically) obscenity. Actually, it is just crudity.)
Heavy sigh...
--Jerry0 -
choice of wordsjgwright said:Choice of Words...
Robert Heinlein had a line in one of his books. "Profanity wasn't strong enough, so I just said, 'Oh my...'"
The only time I used profanity was when I got my first diagnosis as a Stage IV. My wife and I got in the elevator, and I used the impolite term for fecal material about five times. It didn't help. (Of course, in reality that isn't "profanity", but rather (at least theoretically) obscenity. Actually, it is just crudity.)
Heavy sigh...
--Jerry
you're entitled. I'm so sorry we are going through this. I have been so impressed with you, continuing to work through this ordeal.
Last night my husband's right arm puffed up with fluids. The cancer between his shoulder and clavicle is likely blocking something. Game ender? who knows. It's scary, ugly, and so unfair.0
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