Newbie to the forums

Welcome Nick
Sorry you had to find this group but you will be blessed to have. I just started treatment for Base of Tongue tumor. Im sure the main thing you will hear about from the vets on this form will be information about feeding tubes, known as a PEG. Skiffin will likely post the Superthread where you can get lots of general information and specifically about the Peg. I have just had one Chemo down 10 lbs. Generally I was anti PEG but being this early in my treatment Im seriously consindering the Peg. Either way welcome again lot of good folks, prays and we are open 24 7. Kick back and meet your new friends who will be responding to your question.

nick770 said:

super thread
thanks for the warm welcomes.

Yep i found the super thread and i did get the tube "installed" about 2 weeks ago. it still hurts some days and it feels full after 1 can of stuff.

I was like you....I started at 93 lbs and knew I
had no weight to spare. Glad to hear you got your PEG in place already. I got one before I even started treatment. So far I've maintained my weight after 5 weeks of amifostine and rads, plus two chemo treatments.

You hit the jackpot finding this group of people......the knowledge and the support here can't be found anywhere else on the internet.

p

Irishgypsie said:

A road less traveled!!
Hey, Nick, this is definitley going to be the hardest thing you have ever had to do; but you can do it! Utilize your support system; try to take in as much calories as you can; most importantly stay hydrated! I sent you my contact info; feel free to txt or call!! God Bless!

Charles

Welcome !
Hello Nick,welcome to the group. Glad you already found the Superthread--very good info in there. (It is a labor of love by one of our posters "Sweetblood" a/k/a Dawn). also you can go back and read older posts to get good info. You can do this. As others have said, not easy but very doable and you are still very young. Stay strong, keep coming back here for info and to ask any questions you have. I am glad you already have a feeding tube installed, but you will definitely need to use more than 1 can. I had to have 6-7 cans a day and I weighed lots more than you. Try and slow down the tube feedings and you won't feel so full. Best of Luck to You !

Grandmax4 said:

900 calories
Nick, you're going to be fine, trust your surgeon and his team and trust God

The is a mix ( I can only find it on Amazon ) called Scandishake that adds 900 calories per serving...it is so yummy, when blended with ice it taste just like a frosty or milkshake

I just ordered some of this....
thanks Grandma!!

p

phrannie51 said:

I just ordered some of this....
thanks Grandma!!

p

I hope
you like it , and that it helps keep your weight even.
Finally, put up a picture, with the three reasons I strive to live ( along with the Hubs and my son & daughter, of course)

Welcome
I also got a PEG installed before tx (not given a choice), and used exclusive from the end of week #1-#8, and a little beyond. Good safety net to have in place. Soap and water is advised to keep the area clean (Dial is good).

Nick, don't take this wrong, but I say this to most all newbies: You're gonna survive this thing, so get used to it! Yeah, this is 2012, and we all survive the initial tx, and beyond. The going will get as the going gets, Nick. Everybody's different. Some of us had real bad times, and others made it thru better than others. The Drs will keep it all acceptable to you- that is very much part of their jobs, and they know it. Just keep them in the Loop as to how you're handling it, and it'll all be okay.

Believe

kcass

Skiffin16 said:

Welcome Nick,
Looks like you have already been any good advice I can offer at the moment.

At 130#, I think you've made an excellent choice on getting the PEG.

Best,
John

Welcome Nick
Nothing to add ...all the advice from all the above posts covers everything...sorry you had to join our club ....but you did find a great bunch of folks.

Keep us posted ...Laralyn and Phrannie are almost at the end of their treatments and their posts are spot on as to what to expect for the norm...

USE that peg tube and watch your weight.

Best,

Tim

nick770 said:

thanks everyone for the warm
thanks everyone for the warm welcome, I have spent some time googling and reading posts and i'd have to say this is by far the best group of real people I have come across. You guys are true heroes to me , I've been keeping an eye on Phrannie's posts too

thanks on the tube tips, a friend of mine let us borrow their slow juicer and it has been really good for me my wife has been making me these healthy juices i don't imagine they taste good but they pour down the tube easy and make me feel pretty good.

Juicer...
Make sure you check the SuperThread, and Sweetblood22 (Dawn) has a lot of posts on juicers and recipes I believe.

JG