Dry mouth : how did you deal with it?

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Comments

  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #22
    Sam999 said:

    Thanks so much for all the
    Thanks so much for all the helpful replies. I will be ordering xylimelts and some lemon drops too.

    Marty, my doc said they could give me something after the treatment.

    Apparantely radiation on thorat kills both the major salivery glands. Ones on the cheek will be spared maybe 30%, so i am looking at a lifetime of dry mouth.

    Right now i am having problem making a conversation while walking, looks like xylimelts will help in that.


    Sam

    keep
    keep in mind the lemon drops have lots of sugar that is not good for the teeth.

    keep those teeth clean

    john
  • osmotar
    osmotar Member Posts: 1,006
    #23
    fisrpotpe said:

    keep
    keep in mind the lemon drops have lots of sugar that is not good for the teeth.

    keep those teeth clean

    john

    Sugar Free
    We have a market here called sprouts...I found sugar free...but agree with your comment about the the sugar aspect.

    Linda
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    #24
    NikiSmith said:

    AS Saliva Orthana, effective relief for dry mouth
    Hi, here in the UK we have AS Saliva Orthana which is formed from a naturally occurring mucin, its possibly the closest thing to human saliva available . . . . Does any one know if it is available in America?

    AS Saliva Orthana.
    I just ordered two spray bottles from the UK, as a Brit living in the US and
    having bad dry mouth from treatment I'll give it a try. It cost me £16.50
    inc shipping, I will try anything as my mouth feels like someone keeps
    shovelling sand in it.......lol

    God bless
    Tonsil dad,

    Dan.
  • phrannie51
    phrannie51 Member Posts: 4,716
    #25
    Tonsil Dad said:

    AS Saliva Orthana.
    I just ordered two spray bottles from the UK, as a Brit living in the US and
    having bad dry mouth from treatment I'll give it a try. It cost me £16.50
    inc shipping, I will try anything as my mouth feels like someone keeps
    shovelling sand in it.......lol

    God bless
    Tonsil dad,

    Dan.

    Do you have to have a prescription to get it?
    or can I just order off the internet? Where did you order it, Dan?
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    #26
    phrannie51 said:

    Do you have to have a prescription to get it?
    or can I just order off the internet? Where did you order it, Dan?

    NO.
    Hi Phrannie, no you don't need a script. I googled the product and the first
    one ASPHARMA.CO.UK click on that - then on products. I bought two small
    sprays which is around $30 with shipping, just in case its like all the rest.

    Anyway nice to here you are doing well and nearing the end ( of treatment)
    Only positive thoughts & plenty of faith.

    God bless
    Tonsil dad,

    Dan.
  • Sam999
    Sam999 Member Posts: 319 Member
    #27
    Tonsil Dad said:

    NO.
    Hi Phrannie, no you don't need a script. I googled the product and the first
    one ASPHARMA.CO.UK click on that - then on products. I bought two small
    sprays which is around $30 with shipping, just in case its like all the rest.

    Anyway nice to here you are doing well and nearing the end ( of treatment)
    Only positive thoughts & plenty of faith.

    God bless
    Tonsil dad,

    Dan.

    This looks really good. I
    This looks really good. I would definately like to give it a try. Thanks NikiSmith about telling us about that.

    Dan, could you let us know whe you get it and if you like it? I will order after you give us your review.

    Thanks,
    Sam
  • nick770
    nick770 Member Posts: 195
    #28
    Sam999 said:

    This looks really good. I
    This looks really good. I would definately like to give it a try. Thanks NikiSmith about telling us about that.

    Dan, could you let us know whe you get it and if you like it? I will order after you give us your review.

    Thanks,
    Sam

    I just did my first 6
    I just did my first 6 treatments this week (rad) and im really surprised how much it hurts my jaw and dry mouth, these are some excellent ideas
    stoppers 4
    Xylimelts
    are going on order thanks

    -Nick
  • Sam999
    Sam999 Member Posts: 319 Member
    #29
    nick770 said:

    I just did my first 6
    I just did my first 6 treatments this week (rad) and im really surprised how much it hurts my jaw and dry mouth, these are some excellent ideas
    stoppers 4
    Xylimelts
    are going on order thanks

    -Nick

    Yes i got stoppers 4 and
    Yes i got stoppers 4 and xylimelts...like them both. I also got biotene dry mouth chewable gum, like that too. Really helps when going for walks and stuff.

    I am also using biotene dry mouth mouth wash and biotene dry mouth toothpaste (PBF)

    I totally hate this dry mouth anc throat, it feels so damn dry...never realized the importance of saliva untill now!


    Sam
  • NikiSmith
    NikiSmith Member Posts: 4
    #30
    Tonsil Dad said:

    NO.
    Hi Phrannie, no you don't need a script. I googled the product and the first
    one ASPHARMA.CO.UK click on that - then on products. I bought two small
    sprays which is around $30 with shipping, just in case its like all the rest.

    Anyway nice to here you are doing well and nearing the end ( of treatment)
    Only positive thoughts & plenty of faith.

    God bless
    Tonsil dad,

    Dan.

    AS Saliva Orthana
    Hi, Ive posted this on another thread but would like to pass this on to everyone I can.

    One quick tip, DONT just spray onto your tongue or to the back of your throat as the product will quickly be swallowed and the effect lost.

    Spray inside both of your cheeks, and UNDER your tongue. This will replicate the action of your own salivary glands and create a coating over your tongue, cheeks, teeth and palate offering longer relief.

    I really hope this works for you all, it certainly made a difference to my best friend.

    Please share this tip on other threads where applicable or maybe I should start a new thread headed 'Spray It Right?!'

    Take care all

    NikiSmith
  • phrannie51
    phrannie51 Member Posts: 4,716
    #31
    NikiSmith said:

    AS Saliva Orthana
    Hi, Ive posted this on another thread but would like to pass this on to everyone I can.

    One quick tip, DONT just spray onto your tongue or to the back of your throat as the product will quickly be swallowed and the effect lost.

    Spray inside both of your cheeks, and UNDER your tongue. This will replicate the action of your own salivary glands and create a coating over your tongue, cheeks, teeth and palate offering longer relief.

    I really hope this works for you all, it certainly made a difference to my best friend.

    Please share this tip on other threads where applicable or maybe I should start a new thread headed 'Spray It Right?!'

    Take care all

    NikiSmith

    Thanks for the advice Niki...
    good things to know!

    p
  • Sam999
    Sam999 Member Posts: 319 Member
    #32
    phrannie51 said:

    Thanks for the advice Niki...
    good things to know!

    p

    Yes, this makes sense, our
    Yes, this makes sense, our salivery glands are in cheeks. Thanks so much for this nice tip.
  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #33
    Worked for me
    Hi Sam,

    I’ve tried the Biotene and Xylitol sprays and they help along with a pool full of water. Remember lots of water doesn’t hurt (but don’t drown yourself). For me, going to bed at night, with the quest for as long a sleep as I could, I always started it off with 5 or 10 mls. of “Magic Mouth Wash”. The mouth wash calmed everything down for at least an hour and by then I was fast asleep. Normally, it was I had to go to the bathroom (pool full of water) that would cause me to wake up. Then, another swish of mouth wash and asleep I go.

    You just have to experiment and see what works best for you. At least with CSN you can cover ground fast on new ideas.

    Best of luck,

    Matt

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