Newbie Needs Guidance On Posting to Group

TexasVet
TexasVet Member Posts: 1
in Head and Neck Cancer #1
I was diagnosed with Sqaumous Cell Carcinoma (SCC), Base of Tongue (BOT) cancer in late 2009.

I would very much like to tell my story in hopes of finding others who have experienced what I have gone through and am going through.

I have two goals in being here, one it to tell my story in the hopes that it may help others and the second is to find out from others who have gone through this what I may be facing.

I looked for a forum or group specifically for SCC BOT, but only see this Head and Neck Cancer board.

If I am in the wrong place to tell my tale and seek support please let me know and then I will start.

Thank you

Comments

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #2
    BOT...
    Never heard of it.....LOL, just teasin...

    I had to mess with you since you are from Texas.

    After all, Texas has the State Anti-Litter Slogan of "Don't Mess with Texas"...

    Oh, and my ex is from Texas too....LOL.

    You have found a great forum here....and there are more than a few folks that can relate and join your conversations and story on BOT Cancer.

    Best,
    John
  • Sooner79
    Sooner79 Member Posts: 29
    #3
    I am a
    2011 graduate of SCC BOT and I'm also in Texas. You've come to the right place so let it flow! We're all ears.
  • phrannie51
    phrannie51 Member Posts: 4,716
    #4
    You're on the right board :).........
    There are a number of BOT survivors here.....I'm not one, but do have SCC of the Naso Phranyx......

    Welcome to the board!! :)

    p
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #5
    phrannie51 said:

    You're on the right board :).........
    There are a number of BOT survivors here.....I'm not one, but do have SCC of the Naso Phranyx......

    Welcome to the board!! :)

    p

    Hello Texas!!
    I am Base of Tongue stage III with one lymph node / HPV+ ....dx in October 2011 and finished my last treatment January 2012 ...my first PET / CT scan after treatments was may 7th 2012 and I got the all clear from the doctors. ENT did a scope May 10th and said he saw no tumor and nothing of concern (as well as he looked at my scans and agreed)....

    ...so ask away, I might can share my stuff ...but you look like you had it from 2009 unless that is a typo?

    Welcome ....you are in the right place .... :)

    Tim
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    #6
    Tim6003 said:

    Hello Texas!!
    I am Base of Tongue stage III with one lymph node / HPV+ ....dx in October 2011 and finished my last treatment January 2012 ...my first PET / CT scan after treatments was may 7th 2012 and I got the all clear from the doctors. ENT did a scope May 10th and said he saw no tumor and nothing of concern (as well as he looked at my scans and agreed)....

    ...so ask away, I might can share my stuff ...but you look like you had it from 2009 unless that is a typo?

    Welcome ....you are in the right place .... :)

    Tim

    Texas Vet
    On your profile page (My CSN Space in the upper lefthand corner) you will find some options, being expressions, etc., and one of the is "blog." That is the best place to tell your complete story for other members to read, due to the space such a long story takes. I gather you are done with tx if you were diagnosed in 09, so there's probably a lot to tell. A number are currently in tx, but there are also some of us old timers who've been active on this board a couple years, and frequently post. And, a number of old timers occasionally stop in and post. Welcome to our family of H&N Survivors.

    kcass
  • Pam M
    Pam M Member Posts: 2,196
    #7
    Hello, TexasVet
    Hi - I was diagnosed with Stage IV BOT with 2 unilateral lymph nodes involved October 36, 2009. Finally got clean scans in April, 2011. I, too, appreciate the chance to compare notes (and, as always, see folks with winning attitudes).
  • ratface
    ratface Member Posts: 1,337 Member
    #8
    Pam M said:

    Hello, TexasVet
    Hi - I was diagnosed with Stage IV BOT with 2 unilateral lymph nodes involved October 36, 2009. Finally got clean scans in April, 2011. I, too, appreciate the chance to compare notes (and, as always, see folks with winning attitudes).

    There are two good places
    The OCF Board (oral cancer Board) active and filled with great information and this place, for oral cancer. The Lance Armstrong website has a BOT specific forum but it's not active enough. Welcome, myself I'm BOT stage 4 with lymph node involvement on the right, treated with 39 rads, cisplatin, and a neck dissection.
  • mls351w
    mls351w Member Posts: 90
    #9
    ratface said:

    There are two good places
    The OCF Board (oral cancer Board) active and filled with great information and this place, for oral cancer. The Lance Armstrong website has a BOT specific forum but it's not active enough. Welcome, myself I'm BOT stage 4 with lymph node involvement on the right, treated with 39 rads, cisplatin, and a neck dissection.

    Hello fellow Texican
    Welcome to the best (imho) site out there. Wish I had found it before my treatment started in 2006. I had EXACTLY same condition and treatment that ratface had (except for 1 additional rad treatment).
    I think you will be glad you found us!
    Best wishes to you.

    Mark S.
    Commerce, TX

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