19 yr survivor and NEED ADVICE! please
Comments
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2nd opinion
Hi cweber,
Wow what a story you have lived! Congratulations on 19 years of being a survivor! I'm sorry I don't have ANY experience with the surgery you are inquiring about, but I am an advocate for second opinions no matter what type of surgery or treatment. Is there a major hospital or university hospital near you? You can start there or get a referral from your primary care physician. You may also want to check out the head & neck board, it seems to be a common procedure and there are many who have had it done.
Best Wishes!
Cat0 -
I totally agree with catwink - 2nd opinioncatwink22 said:2nd opinion
Hi cweber,
Wow what a story you have lived! Congratulations on 19 years of being a survivor! I'm sorry I don't have ANY experience with the surgery you are inquiring about, but I am an advocate for second opinions no matter what type of surgery or treatment. Is there a major hospital or university hospital near you? You can start there or get a referral from your primary care physician. You may also want to check out the head & neck board, it seems to be a common procedure and there are many who have had it done.
Best Wishes!
Cat
I am so sorry that you have been and are continuing to go through so much stress and worry with your surgeries and possible reprocussions of the next one. I totally agree that for this kind of situation a 2nd opinion is necessary and would suggest you think seriously about having another specialist/surgeon have a look see.
All the best with whatever you decide to do and do keep us posted.
Blessings,
Bluerose0 -
A Second Opinion? ABSOLUTELY!!
I will only add to the above excellent comments by saying that you could get even more advice from your university medical center or a hospital such as Mayo Clinic or Cleveland Clinic. I don't believe your current doctor is "scarey", but he may be painting the risks too heavily and not giving enough attention to the benefits. Many doctors will do this. It may be the doctors method of making you weigh your options and determine what is best for yourself, after all, it's your life that depends on his skill.
As a side note, when I had my surgery I was given a 60% chance of not living through it. I figured a 40% chance of living well was worth more than a 100% chance of living longer but dieing miserably. (For what it's worth.)0 -
I agree with cat, you should
I agree with cat, you should consider having the second opinion from the nearest university hospital, before you decide anything.0 -
second opinion
What a story you have! I don't have experience with rhabdomysarcoma but I do think, like some of the other posters here, that you should get a second opinion from another doctor about the risks and benefits of the surgery. In my experience it always helps to get more than one perspective before you do anything--especially anything surgery related. Keep us posted on everything! I hope you get better.0 -
second opinion
What a story you have! I don't have experience with rhabdomysarcoma but I do think, like some of the other posters here, that you should get a second opinion from another doctor about the risks and benefits of the surgery. In my experience it always helps to get more than one perspective before you do anything--especially anything surgery related. Keep us posted on everything! I hope you get better.0
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