An Introduction I Wish I Didn't Have To Make :o)

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  • tuffenuff
    tuffenuff Member Posts: 277
    #22
    jtl said:

    Welcome and I am sorry you
    Welcome and I am sorry you are here. You will most likely need/want some type of chemo. Unlike some other cancers, chemo for scchn is not used to cure the cancer but rather to excite the cancer cells so that they respond better to radiation. You have some choices but most on here get some form of cisplatin, I did not and opted for a newer drug with less of a history, I guess it would be if it is newer. You will have plenty of friends on this site to give you good advice. Did you get tested for HPV?
    John

    Yes, they tested for HPV
    Yes, they tested for HPV but I didn't get the pathology report yet. My cervical cancer was HPV related so I suspect this is also.
  • tuffenuff
    tuffenuff Member Posts: 277
    #23
    Skiffin16 said:

    Welcome....
    Similar Dx for myself in January 2009...

    I wouldn't get wrapped around not wanting chemo, actually it was the easier part.

    As far as the comment above concering chemo utilized only to jump excite the cells for better radiation results.

    I think that might only be a half truth....yes it does in the case of concurrent, which I had seven weeks of weekly Carboplatin with 35 daily rads.

    But I also had nine weeks (three week cycles) of chemo no radiation. that was with Cisplatin, taxotere anf 5FU...

    You should do fine, many survivors have walked the road before you.

    Best,
    John

    I guess the bottom line is I
    I guess the bottom line is I will do whatever I have to and hopefully keep a smile on my face through it all. To be quite honest, I probably would be afraid to not get some kind of chemo anyway. No stone unturned, so to speak...
  • tuffenuff
    tuffenuff Member Posts: 277
    #24
    D Lewis said:

    Hi Tuff
    Welcome to the club. This is a great place to come for support and information. I didn't have cervical cancer, but I was diagnosed with cervical carcinoma-in-situ some 20 years ago or so. Damn you, HPV 16/18.

    Deb

    Right? It's crazy. This
    Right? It's crazy. This virus wreaks havoc and the stigma connected to it (created by the media in my opinion) is ridiculous. And I don't really like that my spell check keeps correcting it to HIV lol...
  • tuffenuff
    tuffenuff Member Posts: 277
    #25
    nwasen said:

    Tuff
    with a name like tuff enough...I can tell you have a good sense of humor
    I am also curious if your cancer was tested for HPV?
    I was terrified of chemo and it was the easiest part of my treatment. The docs at the James in Columbus like to combine radiation and chemo for head and neck if lymph nodes are involved.
    I am 18 months out of treatment and feel wonderful. My Doc says I am the perfect example of the outcome they like to see. (on that note I have to add I was leaving a co op the other day and almost got run over by a bus). I kidded everyone that would be just the shits to go thru all the treatments etc. only to be killed by a bus backing over me!
    Stay in contact Tuff and we will all be here to help!!!
    Nancy aka toughcookie

    Lol, watch out for that
    Lol, watch out for that bus!

    My cervical cancer was hpv related so I suspect this also. The pathology results weren't in on the hpv test when I went in the other day but I'm going to call the doc tomorrow and check.
  • tuffenuff
    tuffenuff Member Posts: 277
    #26
    ratface said:

    1 in 400,000
    Nancy, The chance of getting hit by a municipal bus, 1 in 400,000, just some useless information to store away.

    My friends call me the queen
    My friends call me the queen of useless knowledge so I appreciate this. But seriously... Is it really useless when I KILL at Jeopardy and Trivial Pursuit? I think not!
  • tuffenuff
    tuffenuff Member Posts: 277
    #27
    Kent Cass said:

    Tuffenuff
    Get all the specifics for us, please, to let us help all we can. And, yes, welcome. This is 2012, and the survival for H&N is off the charts to the Positive- so keep it there- in the Positive. You will survive this. Know it, and

    Believe

    kcass

    I could really use a "LIKE"
    I could really use a "LIKE" button on here. :o)
  • tuffenuff
    tuffenuff Member Posts: 277
    #28
    Greend said:

    welcome tuff
    16 year survivor tonsil cancer....you will do it too.

    I love this post! Thanks for
    I love this post! Thanks for chiming in :o)

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