new to this n confussed bout what been told :(

Hi xxkristyxx
Hi xxkristyxx,
Really sorry that your here but welcome to the group. Sometimes it takes time for the docs to get the right diagnosis, it happened to me. At first I was told I had Follicular but months later I found out I had Splenic Marginal Zone Lymphoma. I know it can be very stressful especially when you're in the waiting mode! Just hang in there and hopefully your doctors will give you the correct diagnosis soon! I will be keeping you in my thoughts that everything goes well for you. Take care and please let us know how things are going for you.

Sincerely,
Liz

Hi Kristy
A few years ago I was diagnosed with Sarcoidosis. My CT scan showed spots on my lungs. I had a cough for a couple of months, but for the first 6 weeks, I had a fever, nausea, night sweats and severe joint pain especially my knees, ankles and feet. I never took any medication for it. I had CT scans every 3 months for a year. All the symptoms went away and the scans cleared up. My husband currently has lymphoma. He never had any symptoms except a swollen tonsil. He finished chemo and his repeat PET scan showed no sign of cancer. He's in the middle of radiation now and he's doing OK. He has continued to work throughout treatment.
I guess what I'm saying is, either way, it's curable. I know the waiting is torture, but you will get through it. Stay positive.
Keep in touch.

Hi Kristy
I am a long term survivor of lymphoma and know how you feel about the confusion of diagnosis in the beginning. It's not easy, that's for sure but with support from sites like this and hopefully friends and family who understand and suppot you you will make it through just fine.

Having said that there are things that you can do to help yourself as well when trying to get to the bottom of a diagnose and for me the main one is to realize that you have a right to ask as many questions as you want til you are satisfied with the answers and understand them all completely. My advise at this point is to make sure that you make a good list of questions about your situation before you go to the doctors and make sure that you get answers that you understand. Ask them in a polite way so the doctors don't get irritated and try to keep them short but I found that the only power I felt was based in knowledge as to what was going on with me, right from the beginning. Keep a pad of paper and pen near you, or use your computer and when you think of a question you need answered then write it down over the days before your appointment and don't forget to take the list with you when you go see your doctor. It should help a great deal, if you don't already do this already. Dont' be afraid to ask questions - it's your life.

Also think about getting a second opinion if you at all can. Why not? It's important to have input about something as potentially serious as this and that may help too. You may find another doctor who you even feel more comfortable with if you don't feel that already with the one you have. Regardless second opinions can be a wise step. It's all very hard to do I know though when you are so worried in the first place but it also keeps you busy and feeling that you are in control of the situation by looking for more answers and hopefully finding them.

I want to wish you all the best and hope that all will be resolved for you in a positive way very soon. I am not online much anymore but will try to stop by now and then to see how you are doing if you update.

Take good care.

Blessings,

Bluerose