End of week number 4....

phrannie51
phrannie51 Member Posts: 4,716
rads and amifostine......phew! That brings me over half way....YEAH!! Taste has taken a dramatic downturn...not that things taste bad, like metal or salty....just blah...but I'm still eating what I want, and haven't lost any weight. Second chemo is under my belt, and only 3 more weeks of rads...

Now I'm waiting to hear Laralyn's report for week number 5...and what my expectations for next week might be.

I will say this......thank God for MuGuard!! I swear it has spared me much of the pain I was about to enter into...

p

Comments

  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    Happy for you Phrannie ....
    ...I don't recall seeing a post lately from Laralyn .....?? I'm sure she is doing well....thinking of you both as you go thru all this...

    Tim
  • sonyk728
    sonyk728 Member Posts: 124
    Good to hear
    Sounds like you are faring well. Best to you, Phrannie!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    GroundHog Days....
    Same ole.....every day.

    You are doing great.....

    JG
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    Skiffin16 said:

    GroundHog Days....
    Same ole.....every day.

    You are doing great.....

    JG

    Phrannie
    Sounds very encouraging. Not much longer...

    kcass
  • Mikemetz
    Mikemetz Member Posts: 465 Member
    Keep going strong
    Nice to get another good report--you are now 'heading home' with a lot of strength.

    Mike
  • Mrs. Sarge
    Mrs. Sarge Member Posts: 206 Member
    Mikemetz said:

    Keep going strong
    Nice to get another good report--you are now 'heading home' with a lot of strength.

    Mike

    Good job phrannie
    It's good to hear how well you're doing. Not losing the 40-70 lbs. others have is so good!!! I know it's not a cake-walk but you're surviving!!!!! Yeah!!!! You go girl!

    I'm doing fine. My throat is getting progressively worse but not unbearable, yet! But my treatment is WAY easier than most on this boards, as I only have radiation and a low dose at that, but I'm sure it's going to get a little tougher as I go, ;( Keep posting your progress, phrannie, we care!!
  • Sam999
    Sam999 Member Posts: 319 Member

    Good job phrannie
    It's good to hear how well you're doing. Not losing the 40-70 lbs. others have is so good!!! I know it's not a cake-walk but you're surviving!!!!! Yeah!!!! You go girl!

    I'm doing fine. My throat is getting progressively worse but not unbearable, yet! But my treatment is WAY easier than most on this boards, as I only have radiation and a low dose at that, but I'm sure it's going to get a little tougher as I go, ;( Keep posting your progress, phrannie, we care!!

    Phrannie,
    So good to hear

    Phrannie,

    So good to hear about you as it gives a hope to us who are just starting. I am hoping mugard works for me too. Statisitcally, it works for 40% of the people. Which day did u see mouth sore appear?

    Mrs. Sarge, i am same as you, only radiation and regular dose. What day of radiation are u and what side affects do you have?

    Actuallly let me make a new thread where we all put our experienes.

    Sam
  • phrannie51
    phrannie51 Member Posts: 4,716
    Sam999 said:

    Phrannie,
    So good to hear

    Phrannie,

    So good to hear about you as it gives a hope to us who are just starting. I am hoping mugard works for me too. Statisitcally, it works for 40% of the people. Which day did u see mouth sore appear?

    Mrs. Sarge, i am same as you, only radiation and regular dose. What day of radiation are u and what side affects do you have?

    Actuallly let me make a new thread where we all put our experienes.

    Sam

    Sam......I was about one week into rads
    and a week past my first chemo, when the mouth sores started lining my lower lip....owie. I started with L-Glutamine to clear them up, then started the MuGuard. It has kept them at bay...I can feel one start up, then blessedly disappear. I'm using it 4 to 6 times a day. MuGuard sent me 6 bottles so I'm not being stingy with it. I haven't gotten ANY on my tongue (tho the stinging from the MuGuard tells me my tongue is very tender and would like hatch a sore or two). So far it's worked for me....part of the lucky 40%???

    p
  • Sam999
    Sam999 Member Posts: 319 Member

    Sam......I was about one week into rads
    and a week past my first chemo, when the mouth sores started lining my lower lip....owie. I started with L-Glutamine to clear them up, then started the MuGuard. It has kept them at bay...I can feel one start up, then blessedly disappear. I'm using it 4 to 6 times a day. MuGuard sent me 6 bottles so I'm not being stingy with it. I haven't gotten ANY on my tongue (tho the stinging from the MuGuard tells me my tongue is very tender and would like hatch a sore or two). So far it's worked for me....part of the lucky 40%???

    p

    Hi Phrannie,
    How do you use

    Hi Phrannie,

    How do you use glutanime? You mix 5g (1 teaspoon) into water and swoosh it? Do you also swallow?

    Thanks,
    Sam
  • meaganb
    meaganb Member Posts: 244 Member

    Sam......I was about one week into rads
    and a week past my first chemo, when the mouth sores started lining my lower lip....owie. I started with L-Glutamine to clear them up, then started the MuGuard. It has kept them at bay...I can feel one start up, then blessedly disappear. I'm using it 4 to 6 times a day. MuGuard sent me 6 bottles so I'm not being stingy with it. I haven't gotten ANY on my tongue (tho the stinging from the MuGuard tells me my tongue is very tender and would like hatch a sore or two). So far it's worked for me....part of the lucky 40%???

    p

    Phrannie, how much
    Phrannie, how much L-glutamine did you use and how long did it take for it to clear the sores?
  • Laralyn
    Laralyn Member Posts: 532
    Hey Phrannie! Glad to hear you're doing well!
    You're definitely ahead of the game, so keep it up! I'm just about to post my update. :-)
  • phrannie51
    phrannie51 Member Posts: 4,716
    meaganb said:

    Phrannie, how much
    Phrannie, how much L-glutamine did you use and how long did it take for it to clear the sores?

    My L-Glutamine came with a little scoop....
    I would say I use a tablespoon and a half into an 8 oz glass....keep swirling it to keep it from settling, swish for 30 to 60 seconds, then swallow it (it's good for digestion, too)...I swished till I finished the glass...I did it 3 times a day...it took two days for it clear my lips enough to use the MuGuard.

    p
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    Laralyn said:

    Hey Phrannie! Glad to hear you're doing well!
    You're definitely ahead of the game, so keep it up! I'm just about to post my update. :-)

    Your getting there.!!
    Keep strong and positive Phrannie it will soon be over and
    you will be on the road to recovery,

    KEEP CALM and CARRY ON.

    God bless
    Tonsil dad,

    Dan.
  • staceya
    staceya Member Posts: 720

    Your getting there.!!
    Keep strong and positive Phrannie it will soon be over and
    you will be on the road to recovery,

    KEEP CALM and CARRY ON.

    God bless
    Tonsil dad,

    Dan.

    So GLAD for you!!
    Moving right along and doing so well!!
    Sending you hugs!!
    Stacey
  • LeoS2323
    LeoS2323 Member Posts: 160
    staceya said:

    So GLAD for you!!
    Moving right along and doing so well!!
    Sending you hugs!!
    Stacey

    Hi phrannie
    Keep going - we are all behind you!! Like I said, cancer has no chance...:-)

    All the best

    Leo
  • jim and i
    jim and i Member Posts: 1,788 Member
    Now you are on the downside.
    Now you are on the downside. Keep strong.

    Debbie