Does the dread of getting test results every get easier?

For me it varies.
Sometimes I get anxious for a few days before my blood draw and other times I feel kind of matter of fact. I quit calling for the results and wait for the letter in the mail which arrives about a week later. I got nervous waiting for the advice nurse to come back to the phone with the results.

I posted last week about my number tripling. It went from 8 to 23. I know that is not a huge rise but my onc is concerned as well. I will get another CA 125 on 6/10 and I know I will be jumping out of my skin until I get this result.

I am surprised any of us maintain our sanity while dealing with this disease. But as I have been from the start I am trying to take it a day at a time and not get ahead of myself. Sometimes it's not so easy to do but I don't want to give this disease more of myself than I have to.

Good luck with your results. You'll be in my thoughts.

Karen

mom2greatkids said:

Didn't make myself clear
I should have worded that differently. I have no symptoms. However, when it's "test" time I just know that every little pain, ache, etc. could be it. I know, it's crazy, but it's where I am. I don't let it consume me though like I did at the very beginning of diagnosis. I feel great, I really do!

I hope it gets easier with time...
Although I don't get overly anxious or nervous, I do breathe a sigh of relief after each blood test time, and am thankful that I continue to be NED (no evidence of disease).

Kelly

kikz said:

For me it varies.
Sometimes I get anxious for a few days before my blood draw and other times I feel kind of matter of fact. I quit calling for the results and wait for the letter in the mail which arrives about a week later. I got nervous waiting for the advice nurse to come back to the phone with the results.

I posted last week about my number tripling. It went from 8 to 23. I know that is not a huge rise but my onc is concerned as well. I will get another CA 125 on 6/10 and I know I will be jumping out of my skin until I get this result.

I am surprised any of us maintain our sanity while dealing with this disease. But as I have been from the start I am trying to take it a day at a time and not get ahead of myself. Sometimes it's not so easy to do but I don't want to give this disease more of myself than I have to.

Good luck with your results. You'll be in my thoughts.

Karen

why so long
When my numbers went from 6 to 22 two weeks later they checked it again and the continued to check it every two - three weeks until they realized the cancer was back now I will have blood work up every week before treatment. It's just me but I would ask if they can do it eery two weeks I know how hard it is for me br sitting here waiting to start my new treatmet and knowing I have womething growing inside me with nothing being done have to have test before I can start the trail medication, are you still on treatment?

Love, Hugs, and Prayers
Anne

twillits said:

I have only had two CA125
I have only had two CA125 draws, once before surgery, and one just last week, which I have not heard what the result was. I was supposed to have chemo, but couldn't cuz of low white count, so I left there with no results for the CA125. I am nervous to go back on Tuesday to not only find that out, but my white count as well so that I can continue on with my treatment. I am also still waiting on the genetic testing. It's all a big wait and see game. Seems like I do that alot. And tried to stay positive with every test!!
Just adds to the stress of the this disease!
(Didn't meant to go off there venting...but thanks for letting me)
Hugs to you all,

venting is what we all need to do
Don't ever worry about venting to us that is why we are here. I don't think any of us would open up and talk about the things going on with us unless we knew that the ladies here will help us through. That is the one thing I take from this site is all of you have been where I am going and know what to expect and it helps me make it threw the tought times. We are here to love you threw and prepare you for what to expect if we can. Please come often so we can help. You also will be able to help us and others so it is a win win thing. We are sister in this battle and that is a great thing to have.

Love, Hugs, and Prayers
Anne

chaotikc said:

It has been almost 13 years
It has been almost 13 years since I finished my treatments. I have never had a recurrence, but I have had many scares. I still see the GYN every 6 months for testing. I still experience a lot of anxiety while waiting for my results. I doesn't get any easier. I am not as paranoid as I used to be. I don't worry that every little ache, pain, or discomfort in my body means that it is back. But I can't shake the anxiety between when they run my tests and when I get the results.

Wow
You are an inspiration and source of hope for us. Thirteen years and counting and you are still so young. I am so happy for you.

Karen

kikz said:

For me it varies.
Sometimes I get anxious for a few days before my blood draw and other times I feel kind of matter of fact. I quit calling for the results and wait for the letter in the mail which arrives about a week later. I got nervous waiting for the advice nurse to come back to the phone with the results.

I posted last week about my number tripling. It went from 8 to 23. I know that is not a huge rise but my onc is concerned as well. I will get another CA 125 on 6/10 and I know I will be jumping out of my skin until I get this result.

I am surprised any of us maintain our sanity while dealing with this disease. But as I have been from the start I am trying to take it a day at a time and not get ahead of myself. Sometimes it's not so easy to do but I don't want to give this disease more of myself than I have to.

Good luck with your results. You'll be in my thoughts.

Karen

i agree
I liked your response "dont't give the disease more of myself than I have too". Words to live by, but hard to do! Kim