PEG TUBE

bjw1955
bjw1955 Member Posts: 67
in Head and Neck Cancer #1
THIS IS EMBATASSING FOR ME TO TALK ABOUT, BUT I'M SURE THERE IS SOMEONE THAT HAD THE SAME PROBLEM I;M HAVING. THIS MAKES MY SECOND PEG TUBE IN A YEAR AND I TAKE JEVITY THROUGH MY TUBE AND I HAVE THE WORST SMELL WHEN I PASS GAS AND IT STINKS.

Comments

  • phrannie51
    phrannie51 Member Posts: 4,716
    #2
    Maybe a different formula would be better?
    I haven't had to use my tube yet, so I know I'm not much help. But I do know that with my pups, that one small change in dogfood can make living with them easier. Just seems that something in Jevity isn't agreeing with your intestinal tract. I'm thinking that maybe Boost Plus or maybe even having someone cook up a real meal for tubes might alleviate your problem?

    This is a link for fixing homemade tube meals...

    http://lucysrealfood.com/

    p
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #3
    Beano?
    Sorry, couldn't help myself. But, even folks who don't use a PEG and Jevity will have this kind of problem. I never needed Beano, but I was able to crush up all my pills, and use a syringe to get them in through my PEG. You might consider trying this, Couldn't hurt.

    Deb
  • bjw1955
    bjw1955 Member Posts: 67
    #4
    phrannie51 said:

    Maybe a different formula would be better?
    I haven't had to use my tube yet, so I know I'm not much help. But I do know that with my pups, that one small change in dogfood can make living with them easier. Just seems that something in Jevity isn't agreeing with your intestinal tract. I'm thinking that maybe Boost Plus or maybe even having someone cook up a real meal for tubes might alleviate your problem?

    This is a link for fixing homemade tube meals...

    http://lucysrealfood.com/

    p

    THANK YOU
    THANK YOU FOR THE INFO. I GO IN MAY TO HAVE MY TRACH REPLACED WITH A NEW ONE AND GO FOR ANOTHER SWALLOW TEST AND HOPE I PASS IT SO I CAN START EATING AGAIN AND HOPING THE SWELLING IN MY NECK HAS WENT DOWN MORE SO MY ENT ONCOLOGIST CAN DO LASER SURGERY ON ME TO OPEN MY AIR WAY UP SO I CAN GET MY TRACH OUT FOR GOOD.THE RADIATION KILLED MY CANCER BUT WEAKENED MY AIR WAY.GOD BLESS
  • bjw1955
    bjw1955 Member Posts: 67
    #5
    D Lewis said:

    Beano?
    Sorry, couldn't help myself. But, even folks who don't use a PEG and Jevity will have this kind of problem. I never needed Beano, but I was able to crush up all my pills, and use a syringe to get them in through my PEG. You might consider trying this, Couldn't hurt.

    Deb

    THANK YOU
    DEB THANK YOU FOR THE INFO I WILL GET ME SOME BEANO. GOD BLESS

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