Osteosarcoma

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  • Unknown
    Unknown
    #22
    This comment has been removed by the Moderator
  • Victor 69
    Victor 69 Member Posts: 3
    #23
    Hou6591 said:

    Osteosarcoma
    Hi BradsMom! My 14 year old daughter was diagnosed with osteosarcoma in her right tibia this past March, she did chemo until July and then she had limb salvage surgery. Now she's going through more chemo. Her tumor was located about 5 inches below her right knee and we ultimately agreed to proceed with an allograft, although she seriously considered amputation because of her previous sports involvement. I cannot emphasize enough the need to be as fully informed of all of your options as possible, of course you may have already asked all of the questions but we examined titanium prosthetics, allografts, and amputation at length and discussed them with my daughter's surgeon in great detail. Good luck to you, your son, and your family!

    Osteosarcoma
    Hi, Im Victor69 who has had the first sucessful tibia transplant. I was operated in Memorial Slone Kettering in New York. I recomed that if anyone needs treatment for any type of cancer to go there. My grandmother had colon cancer and she was also saved their in 1991, she has passed since but she didnt die from it. She was cured for 7 years before her death. I believe anyone can be saved their, God willing...
  • Victor 69
    Victor 69 Member Posts: 3
    #24
    Hou6591 said:

    Osteosarcoma
    Hi BradsMom! My 14 year old daughter was diagnosed with osteosarcoma in her right tibia this past March, she did chemo until July and then she had limb salvage surgery. Now she's going through more chemo. Her tumor was located about 5 inches below her right knee and we ultimately agreed to proceed with an allograft, although she seriously considered amputation because of her previous sports involvement. I cannot emphasize enough the need to be as fully informed of all of your options as possible, of course you may have already asked all of the questions but we examined titanium prosthetics, allografts, and amputation at length and discussed them with my daughter's surgeon in great detail. Good luck to you, your son, and your family!

    Osteosarcoma
    Hi, Im Victor69 who has had the first sucessful tibia transplant. I was operated in Memorial Slone Kettering in New York. I recomed that if anyone needs treatment for any type of cancer to go there. My grandmother had colon cancer and she was also saved their in 1991, she has passed since but she didnt die from it. She was cured for 7 years before her death. I believe anyone can be saved their, God willing...
  • Victor 69
    Victor 69 Member Posts: 3
    #25
    Hou6591 said:

    Osteosarcoma
    Hi BradsMom! My 14 year old daughter was diagnosed with osteosarcoma in her right tibia this past March, she did chemo until July and then she had limb salvage surgery. Now she's going through more chemo. Her tumor was located about 5 inches below her right knee and we ultimately agreed to proceed with an allograft, although she seriously considered amputation because of her previous sports involvement. I cannot emphasize enough the need to be as fully informed of all of your options as possible, of course you may have already asked all of the questions but we examined titanium prosthetics, allografts, and amputation at length and discussed them with my daughter's surgeon in great detail. Good luck to you, your son, and your family!

    Osteosarcoma
    Hi, Im Victor69 who has had the first sucessful tibia transplant. I was operated in Memorial Slone Kettering in New York. I recomed that if anyone needs treatment for any type of cancer to go there. My grandmother had colon cancer and she was also saved their in 1991, she has passed since but she didnt die from it. She was cured for 7 years before her death. I believe anyone can be saved their, God willing...
  • Roxanne_20
    Roxanne_20 Member Posts: 1
    #26
    Victor 69 said:

    Osteosarcoma
    Hi, Im Victor69 who has had the first sucessful tibia transplant. I was operated in Memorial Slone Kettering in New York. I recomed that if anyone needs treatment for any type of cancer to go there. My grandmother had colon cancer and she was also saved their in 1991, she has passed since but she didnt die from it. She was cured for 7 years before her death. I believe anyone can be saved their, God willing...

    Someone please help:(
    First off, i am new to this site.i do not have cancer.but here's my story and i hope maybe someone can respond to my question.i am a healthy 20 year old female.a few months ago, i nocticed a strange lump on my right leg just on the side of my tibia bone.i didnt pay much attention to it because it didn't hurt.but recently, it has gotten painful especially at night.(right now it is 11:55 p.m and i have not been able to fall asleep because of the pain on my shins).i also discovered another lump on my left shin, but this lump is smaller than the one on my right.i went to the doctor about a month ago and they did an xray on my right leg but the doc said "oh its nothing.everyone gets bumps and lumps."he sent me to go see another doctor but my appt. isn't until May 7th.the pain is getting unbearable at night:(.please give me an opinion.can this be cancer?
  • chump4040
    chump4040 Member Posts: 4
    #27
    Roxanne_20 said:

    Someone please help:(
    First off, i am new to this site.i do not have cancer.but here's my story and i hope maybe someone can respond to my question.i am a healthy 20 year old female.a few months ago, i nocticed a strange lump on my right leg just on the side of my tibia bone.i didnt pay much attention to it because it didn't hurt.but recently, it has gotten painful especially at night.(right now it is 11:55 p.m and i have not been able to fall asleep because of the pain on my shins).i also discovered another lump on my left shin, but this lump is smaller than the one on my right.i went to the doctor about a month ago and they did an xray on my right leg but the doc said "oh its nothing.everyone gets bumps and lumps."he sent me to go see another doctor but my appt. isn't until May 7th.the pain is getting unbearable at night:(.please give me an opinion.can this be cancer?

    Ak amputee
    Hi I am just about 18 and am battling osteosarcoma since I was 16. I was like ur story so far. Had pain in my knee and went to doctor. They said nothin was wrong, they were wrong!! Make sure u get a x ray or MRI and hav a well recommended doctor. Will save u trouble if u hav cancer and found out early. I almost found out to late and am very lucky to be alive. If i found out early I would not hav my leg gone or hav cancer in both lungs( left lung surgery).
  • virama
    virama Member Posts: 1
    #28
    chump4040 said:

    Ak amputee
    Hi I am just about 18 and am battling osteosarcoma since I was 16. I was like ur story so far. Had pain in my knee and went to doctor. They said nothin was wrong, they were wrong!! Make sure u get a x ray or MRI and hav a well recommended doctor. Will save u trouble if u hav cancer and found out early. I almost found out to late and am very lucky to be alive. If i found out early I would not hav my leg gone or hav cancer in both lungs( left lung surgery).

    hi..
    Hi chump i went through your story. i'm also osteo sarcoma survivor. The tumor was on right leg and affected bone was removed after 6 chemo and a major operation. Anyways how are you now? you told that your lungs are also get affected, so again went throgh chemo and surgery? how is your lungs now?
  • levilong
    levilong Member Posts: 1
    #29
    Amputation

    Hello I was diagnosed when I was 17 I had 6 mo of chemo followed by surgery to remove 3/4 of my femur, knee joint and partial tibia.  I followed my surgery by another 6 months of Chemo.  After a year I was forced to go back into surgery again due to the implant in my hip coming loose.   I was then put into surgery experimental at the time that did not work being on crutches for a year.  I was asked and told multiple times by multiple Doctors that I should just amputate my leg to save my self the trouble.  After 2 specialists 3 more surgeries a better technique and 16 years I still have my leg!  I do know at some point in my life this will not be the case.  How does this apply to your case I’m not sure but maybe it will give you hope..

  • Seasons123
    Seasons123 Member Posts: 1
    #30
    hello

    my story sounds a lot like many of yours. My son had a large swollen ankle, told it was definitely begnine, no question about it. Surgeon removes it, a week later we get call saying it’s osteosarcoma. Now he’s facing amputation or if possible a fuzzed ankle. Just started chemotherapy, and trying to find a doctor with a better surgery outcome. We live in ohio and my son is 17. Im sure i feel like everyone here , just wanting the best for our children. 

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