this chemo is so hard

poopergirl14052
poopergirl14052 Member Posts: 1,183 Member
in Ovarian Cancer #1
Cisplatin/Gemzar..I have one chemo one day for 5 hours and then one chemo 7 days later. Before I had carbo/taxol for 12 infusions. Two done and 4 more to go. I get to keep my hair but I am in bed a good week feeling like..well you know. Just wish this was over and the end of cancers...wishing you all blessings...val
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Comments

  • Mwee
    Mwee Member Posts: 1,338
    #2
    I know...
    I'm glad you'll be done after 4 more. I, too, am in bed for the week after the cisplatin/gemzar and then it's off to get the gemzar. The digestive problems and fatique are so tough to endure time after time. BUT... it's keeping me stable and that's alot. I'm so glad that you posted today for I've been thinking of you and wondering how the chemo was going. Hang tough............ (((HUGS))) Maria
  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #3
    Mwee said:

    I know...
    I'm glad you'll be done after 4 more. I, too, am in bed for the week after the cisplatin/gemzar and then it's off to get the gemzar. The digestive problems and fatique are so tough to endure time after time. BUT... it's keeping me stable and that's alot. I'm so glad that you posted today for I've been thinking of you and wondering how the chemo was going. Hang tough............ (((HUGS))) Maria

    Dear Val and Maria
    You both have endured so much and at the same time have selflessly provided so much love and support to the women here. I wish I could take away all of the chemo side effects.

    Sending you both big hugs and good thoughts and prayers.

    Kelly
  • undertreatment2012
    undertreatment2012 Member Posts: 126
    #4
    so hard
    O honey, I can tell you are deflated and discouraged by all this chemo and I feel your pain. I have not been through nearly as much as you--- yet. But last night I was up late, I could not sleep because of pain in my abdomen, sick of seeing myself without hair, sick of being tired just angry about everything. There is nothing anyone can say when you feel like this. The only thing they can do is just "be there", no words are necessary. People can walk your journey WITH you, but no one can walk it FOR you. We understand here. Prayers and hugs
  • carolenk
    carolenk Member Posts: 907 Member
    #5
    undertreatment2012 said:

    so hard
    O honey, I can tell you are deflated and discouraged by all this chemo and I feel your pain. I have not been through nearly as much as you--- yet. But last night I was up late, I could not sleep because of pain in my abdomen, sick of seeing myself without hair, sick of being tired just angry about everything. There is nothing anyone can say when you feel like this. The only thing they can do is just "be there", no words are necessary. People can walk your journey WITH you, but no one can walk it FOR you. We understand here. Prayers and hugs

    One day at a time
    I feel for ya. (((hugs)))
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #6
    carolenk said:

    One day at a time
    I feel for ya. (((hugs)))

    Thank you for the kind words
    ,,they help a lot. I miss working and living my "normal" life. I want to take care of my patients and feel useful..as now I feel useless. Can bearlt do housework or go shoppinf or cook. Hubby does most of it. I must not feel sorry for myself. I have wonderful friends and family..but I do wish cancer would be gone and stay gone. I will keep up the fight for sure.....God bless..val
  • LoveButterflies
    LoveButterflies Member Posts: 74
    #7
    poopergirl14052 said:

    Thank you for the kind words
    ,,they help a lot. I miss working and living my "normal" life. I want to take care of my patients and feel useful..as now I feel useless. Can bearlt do housework or go shoppinf or cook. Hubby does most of it. I must not feel sorry for myself. I have wonderful friends and family..but I do wish cancer would be gone and stay gone. I will keep up the fight for sure.....God bless..val

    Stay strong Val and Maria!
    Stay strong Val and Maria! You ladies are always so giving to the rest of us on this board. Always there willing to listen and give us words of encouragement. God bless you both and may he give you strength, courage and relief of any discomforts. Let your family and friends take care of you and rest when you need it.

    You are in my prayers and sending both of you big (((hugs))) and love!

    Carmen
  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    #8
    poopergirl14052 said:

    Thank you for the kind words
    ,,they help a lot. I miss working and living my "normal" life. I want to take care of my patients and feel useful..as now I feel useless. Can bearlt do housework or go shoppinf or cook. Hubby does most of it. I must not feel sorry for myself. I have wonderful friends and family..but I do wish cancer would be gone and stay gone. I will keep up the fight for sure.....God bless..val

    hang in there
    Rest when you need it. Let the sleep help renew your energy. Soon life will look brighter. Try and enjoy the moments you can. Remember this will pass and hang in there for sunnier skies. Kim
  • jbeans888
    jbeans888 Member Posts: 313
    #9
    kimberly sue 63 said:

    hang in there
    Rest when you need it. Let the sleep help renew your energy. Soon life will look brighter. Try and enjoy the moments you can. Remember this will pass and hang in there for sunnier skies. Kim

    Val, I know it is hard but
    Val, I know it is hard but you have done it before and you will do it again. Lots of love.
    Joyce
  • zinaida
    zinaida Member Posts: 221
    #10
    Hi Val! 14 month non stop
    Hi Val! 14 month non stop chemo. One week in bed, two weeks good to go... Just remember we do it to live longer and we have more good weeks than bad?... Love you my teal sisters, Zina :)
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #11
    yes it's hard..but you can do it
    Hey Val,

    Cisplatin is as tough as the chemo gets.....if you get 2 good weeks you're doing well...hang in there....
  • sandyinmi
    sandyinmi Member Posts: 17
    #12
    You are such a trooper!
    Val
    I'm a relative newcomer, but already I've seen you be so encouraging to others on this board. You are such a warrior, and inspire all of us. Hopefully this round of chemo will give you lots of cancer free time. In the meantime, hang in there and be kind to yourself.
    Sandy
  • clamryn
    clamryn Member Posts: 508
    #13
    Sweet Val
    I know what you are feeling. I am so sorry you have to go through this again. You are such an inspiration to those on the boards. We all have a right to get upset. I spend a lot of time in the bed too. My little grandkids don't understand why I don't get well. I get so mad sometimes that I just don't know what to do anymore. I am a fighter and will continue to fight but my body just seems to be wearing out. All my love and prayers to you Val. You will get through it.

    ((((hugs))))
    Linda
  • srwruns
    srwruns Member Posts: 343
    #14
    Thinking of you.

    Thinking of you.
  • davevg
    davevg Member Posts: 114
    #15
    Val
    Very good to see you posting again. Sorry to hear your having a difficult time as of late. That Cisplatin is bad bad stuff but works well. That is one of the first ones my wife Tina had IP paired up with IV Taxall. The Dr said its side effects are bad but its top shelf stuff. Hope you get a very lengthy remission out of it.

    Prayers and good luck to you

    Dave & Tina
  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    #16
    I don't post to much but I
    I don't post to much but I wanted to encourage you. You can do this. I get cisplatnin 2 times in an 8 day period plus taxol on day 2. I also give myself I've fluids for about 3 days following the chemo. Home health brings them to me. My port stays accessed after chemo for this. Renders me useless for at least 3 to 4 days but I do come out of it! And you will too.
    Prayers to you
    Shawnna
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #17
    2timothy1 7 said:

    I don't post to much but I
    I don't post to much but I wanted to encourage you. You can do this. I get cisplatnin 2 times in an 8 day period plus taxol on day 2. I also give myself I've fluids for about 3 days following the chemo. Home health brings them to me. My port stays accessed after chemo for this. Renders me useless for at least 3 to 4 days but I do come out of it! And you will too.
    Prayers to you
    Shawnna

    IV fliuds
    I will be getting more fliuds via my port at home the day after chemo,,as I told my Dr, I was in bed got 5 days and really couldn't ear or drink and I became dehydrated. I hope this will will help ease the nausea. My next chemo will be first week in May..I wamt to feel good for Mothers Day, Thank you all for your continued love and support..val
  • kikz
    kikz Member Posts: 1,345 Member
    #18
    poopergirl14052 said:

    IV fliuds
    I will be getting more fliuds via my port at home the day after chemo,,as I told my Dr, I was in bed got 5 days and really couldn't ear or drink and I became dehydrated. I hope this will will help ease the nausea. My next chemo will be first week in May..I wamt to feel good for Mothers Day, Thank you all for your continued love and support..val

    I am sorry
    for what you are going through. I hope you are feeling fine for Mother's Day. I think about you and tell people about the funny stuff you put on facebook. I bet your patients loved having you as their nurse.

    I always tell people you seem like you would be so much fun to hang out with.

    Keep up the fight as I know you will.

    Karen
  • VictoriaSF
    VictoriaSF Member Posts: 165
    #19
    poopergirl14052 said:

    IV fliuds
    I will be getting more fliuds via my port at home the day after chemo,,as I told my Dr, I was in bed got 5 days and really couldn't ear or drink and I became dehydrated. I hope this will will help ease the nausea. My next chemo will be first week in May..I wamt to feel good for Mothers Day, Thank you all for your continued love and support..val

    sending prayers
    Hello Val! I am sorry this chemo so hard on you, but lets pray it will put you in remission again! I will say prayers for you and sending good vibes!
    Stay strong!
    (((hugs))
    Victoria
  • kayandok
    kayandok Member Posts: 1,202 Member
    #20
    Val,
    cis/gem was the worst chemo combo I ever did. I was supposed to do 8 and stopped after 6 (I still wonder if I had gone a couple more if my remission would have been longer) because I was almost suicidal. In Japan, they make you stay in the hospital to hydrate for 4 days, and I stayed at least 5 because I could not eat or drink. Then, wen I came home, I still could hardly eat for a few days, although the nausea went away slowly. None of the anti-nausea worked and I took them all!

    I feel for you, and am so sorry you have to go through this. Hang in there, it will pass. Is it working????

    Love and warm hugs from across the ocean❤

    kathleen
  • kayandok
    kayandok Member Posts: 1,202 Member
    #21
    Mwee said:

    I know...
    I'm glad you'll be done after 4 more. I, too, am in bed for the week after the cisplatin/gemzar and then it's off to get the gemzar. The digestive problems and fatique are so tough to endure time after time. BUT... it's keeping me stable and that's alot. I'm so glad that you posted today for I've been thinking of you and wondering how the chemo was going. Hang tough............ (((HUGS))) Maria

    Maria,
    how many more do you have to do? I can't believe you are still on this chemo. I am so sorry. It is the worst, spelled HELL.

    I am glad to hear you are stable. You always have such a positive attitude and are such an inspriation to me!!!!

    Hugs,
    kathleen

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