Blood numbers rising - ugh! CAT scan today - update

Kathleen808
Kathleen808 Member Posts: 2,342 Member
edited April 2012 in Colorectal Cancer #1
Hi Friends,
I haven't been on much lately, trying to live a bit without cancer always at the front of our minds. **** had a NED scan in January but stayed on reduced chemo. He has had increased pain in his back (he does have L4 - L5 bad disks) and his CEA which has never been above 2.8 is at 3.2. Also his liver numbers are a bit high (by about 14 numbers). So onc ordered CAT today and then bone scan on Wednesday. Ohhhhhhhhh I hate this. I hate living on the roller coaster.
Our daughter had her senior prom over the weekend and that went great. That is one reason we haven't shared this with others. She graduates from high school in June. It has been hard having a dad with cancer her entire time in high school. I just pray we can get through the next few months with grace.
Please pray for all of us. Pray that we deal with the results with grace and courage.
Thank you. Your love and support mean the world to me.

Aloha,
Kathleen

UPDATE:


Aloha Friends,

Thank you for your warm thoughts and prayers. You are wonderful, loving people and I soooo appreciate you. As you know jumping on the roller coaster is totally exhausting. Good news is the bone scan is clear of cancer. The onc said the pain he is having is from his herniated disks and arthritis caused by the chemo. He will be getting physical therapy to help with the pain.

The CAT also was good in that the liver and everything other than the lungs looked clear. The radiologist thought there was so growth in the things we thought were dead mets (nothing lit up in February on a PET) The biggest thing he saw went from 5mm in August 2011 to 7mm. The onc is looking at the CAT himself and we have another friend radiologist looking at it too. We hope the lungs aren't active again. I'll update when we know. We are relieved everything else was clear.

Aloha,
Kathleen

Comments

  • dmdwins
    dmdwins Member Posts: 454 Member
    #2
    Thinking of you
    Dear Kathleen ,
    I was just thinking about you, ****, and your
    family today and wondering how **** was doing. I
    hadn't checked in for awhile myself.

    I am sorry for the anxiety that you are all feeling
    right now. I am hopeful that with **** just
    having a normal scan in January that all is good.

    I will be praying for your family and for positive
    news these next few days.

    Dawn
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #3
    Dear Kathleen
    So very sorry that you and **** are once again having to deal with all the scans and labs.

    Praying for the best, but if the news is not good praying that this will prove to be the least that it can be.

    You receive what you give, so you know that you have the love and support of us all.

    Hugs to you and the family,

    Marie who loves kitties
  • jjaj133
    jjaj133 Member Posts: 867 Member
    #4
    Hi Kathleen & ****,
    My back
    Hi Kathleen & ****,
    My back is really hurting, & My cea was 2.-- 3 months ago and is now 3.1.
    I just had a ct which showed now evidence of disease. The back is probably from osteoporosis.
    So I will be praying for similar results for you. (NED, not osteo!!)
    Just wanted you to know it can be good news.

    good luck.
    Judy
  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #5
    I have a ct scan today as
    I have a ct scan today as well. I feel your pain. It doesnt get any easier after 6 1/2 years
  • maglets
    maglets Member Posts: 2,576 Member
    #6
    jjaj133 said:

    Hi Kathleen & ****,
    My back
    Hi Kathleen & ****,
    My back is really hurting, & My cea was 2.-- 3 months ago and is now 3.1.
    I just had a ct which showed now evidence of disease. The back is probably from osteoporosis.
    So I will be praying for similar results for you. (NED, not osteo!!)
    Just wanted you to know it can be good news.

    good luck.
    Judy

    Best of Everything Kath
    Oh Kathleen: sorry you starting into scans again. Have faith you two....maybe normal life but we all know how hard it is.....well next to impossible not to worry.

    So glad your daughter had a good grad.....sometimes that can be fraught too.....our daughter did not get along with her date and it was a big mess. ahhh and it is so important to kids that age.

    okay Kathleen and ****.....sending prayers and love

    mags
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    #7
    janderson1964 said:

    I have a ct scan today as
    I have a ct scan today as well. I feel your pain. It doesnt get any easier after 6 1/2 years

    so glad
    you two have been trying to live a normal life but i also know you and **** are strong people and i believe you can handle what ever comes your way.i will be thinking of you and remember this ride is rough so just hold on....Godbless....johnnybegood
  • tommycat
    tommycat Member Posts: 790 Member
    #8
    Hello from
    Hello from California.....
    Will be thinking of both of you today and will be looking for your updated report.
    Take care~
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #9
    K & D
    If it is something, Kathleen, it is already a foregone conclusion that you and **** will address it accordingly in the same fashion that you've always handled things. Make no mistake about that - nothing will change in that regard.

    Wishing you good results:)

    -Craig
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #10
    grace and courage on the way
    As well as prayers.
    Breathe and smile, come what may another dawn is on the way.
    Senior prom, congratulations your girl is blessed, better a loving dad, than no dad.
    Hugs,
    Pete
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #11
    pete43lost_at_sea said:

    grace and courage on the way
    As well as prayers.
    Breathe and smile, come what may another dawn is on the way.
    Senior prom, congratulations your girl is blessed, better a loving dad, than no dad.
    Hugs,
    Pete

    Kath Hope the best in today,s scan .
    3.2 is still a safe area so hope there is nothing in there.Will pray for you both today!
    Hugs and good luck.
  • lesvanb
    lesvanb Member Posts: 905
    #12
    Lots of hugs and prayers for you and your family
    Kathleen and ****! love, Leslie


    from World Prayers website:
    http://www.worldprayers.org/

    It gets better.
    Stay in between my synapses
    tap it out in Morse code
    if need be.

    It gets better.
    Take me outside to look
    at the birds flying in unison
    taste the salty air
    by the boundless ocean
    feel the sand between clenched toes.

    It gets better.
    Take my mind off what I know
    is too big for me
    this thing I always dance around
    and never mention.

    That's why there is faith.
    It's the bridge between
    the impossible and the infinite.
    Please get me and mine safely across.

    danse macabre - ruth williams - 2010
  • Joy1216
    Joy1216 Member Posts: 290 Member
    #13
    Praying
    I'm praying for good results from the CT scan and bone scan.
    Joy
  • Nana b
    Nana b Member Posts: 3,030 Member
    #14
    Joy1216 said:

    Praying
    I'm praying for good results from the CT scan and bone scan.
    Joy

    Thinking about you.....Hang
    Thinking about you.....Hang in there!
  • toyfox
    toyfox Member Posts: 158 Member
    #15
    Hoping and Praying
    Hoping and praying that scans are good.
    My husbands cea was stable a 1.5 then jumped
    to 3.4. Three months later it went back down
    to 2.8. He has a stable liver lesion and had
    a blood clot in his liver ...which is ok now.
    It is so hard not to worry. My husband is ned
    for now in spite of problems along the way.
    Praying it works out well for you husband.
    Take care....Linda

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