Signet Ring Cell colon cancer survivors?

Hi there ...
Hi Paul - sorry to hear about your diagnosis. I can't offer any specific information on this topic that may be helpful, but I was wondering since you haven't had surgery yet, how you've already been given your specific TNM information (T3N1M0)?

Signet Cell
Hi Paul! My daughter has signet ring cell colon cancer and she's still here 2 years after diagnosis. One thing to remember is you have to be your own advocate. Question everything because you have to stay one step ahead of the cancer!

Here is another forum where you will find several signet cell survivors: The Colon Club
http://coloncancersupport.colonclub.com/index.php

And here is a link to a long term (10 years) signet cell appendix cancer survivor:
http://appendix-cancer.blogspot.com/

Ask if you have any more questions!
Janet

SRC
I had been diagnosed in Sept 2007 with SRC to the colon. I have had surgery in Sept 2007 and again in Nov 2007. Third Surgery in June 2010, followed by 6 months of FolFox chemo. Which put me in the hospital twice. My CEA was 1125 in June 2010, and is now 3.4.

Keep up a good attitude, and we will make 5 Years together!
Best Always, mike

PaulZA said:

SRC update
I just saw this earlier post of mine and thought I'd give an update.

The operation on 3/9 (left hemicolectomy) went well. Unfortunately the surgeon discovered tht the tumour had invaded the bladder and the abdominal wall, making it a T4. He removed the affected piece of bladder, which still works fine by the way, and marked where the tumour had attached to the abdominal wall with clips.

The removed piece of colon was tested an 10 out of 11 lymph nodes were found to be affected. :-(

So it is now T4N2M0 or stage IIIc

Nnext steps are radiation therapy for one month combined with one hour of 5FU per day for week 1 and 3. This is going to start next week.

After this it is the usual 6 months of FOLFOX.

So, there we are. I guess I had no choice but to ride it out, and maybe find a HIPEC surgeon in my neck of the woods, just in case.

Glad all went well!
When
Glad all went well!

When looking for articles about treatment of Signet Ring Cell, be sure to read the date before reading the article. Pre 2007 the diagnosis was not positive. The change in treatments and refining of FolFox has improved greatly.

Diet, attitude, exercise, etc... will also have a large impact on how well everything goes. Chemo is a terrible experience, but can made bearable with good attitude. My wife went with me for most treatments, else a long term friend went with me. That made the trips and experience less traumatic. Having someone there to drive me home, and get food, or just talk to me during treatments was a real benefit.

I met several people facing chemo on their own, and one could see the pain in their faces during treatments. Could I have done Chemo by myself, Yes, but it would have been much more difficult.

Best Always, mike

signet ring cell cancer survivors

My daughter was diagnosed in 2013 at age 13. its come back and she will going through chemo and radation.

 

im curious if there any survivors and what treatments you used? i am desperate to find answers.

 

thank you

marbleotis said:

Hi - I was stage 3b singet cell - NED 4 years in Jan

Hi,

 

Sorry you are here.  My story may help you.

I was dx'ed Jan 2012 with stage 3b signet cell in the ascending colon.  I had the surgery to remove followed by 6 months of 5fu (chemo).

I am happy to say that as of Jan 2016 I will be 4 years NED.  I have had scans every 3 then 6 months, then annual post surgery and CEA blood tests with that same schedule.  I also have annual colonoscopies.  All results have been really good and my Onc was expecially happy when I passed the 3 year mark as NED.  Apparently with signet cell the 3 year mark of NED is more telling then a 5 year....go figure.

You will get through all of this.  It is very over-whelming at first.  Breathe, bring a notebook to all Dr appointments and keep posting us with your progress.

The CSN was a great resource for me all through my journey.  You may send me a private message if you need to.

 

All the best

 

Stage IIIB SRC

I was diagnosed with SRC colon cancer almost a year ago and have had surgery and Chemo with 5FU.  My CEA is going up, up, up! 375 now.  I don't even know what to do next...My onc says my situation is "very concerning."  Any thoughts?