My mom has appendix cancer...don't know what to do

I'm stage 4 Appendix cancer survivor
I'm 4 years out from my diagnosis and doing great. Mine had spread all over my belly, ovaries, omentum. I had multiple surgeries and chemo.

Is your mom seeing an appendix cancer specialist? If not, see if she can send her records to one. I see Dr. Paty at Memorial Sloan Kettering in NYC. There are others scattered around the country. Here is a link to a partial listing: http://www.appendix-cancer.com/article.php?article=28.

My daughter is 24, my son is 28 - I understand your situation.

Yes, appendix cancer is very serious. However, a lot of us are doing well. It is critical that she see a specialist, however, in order to give her the best chance.

Wishing you well,
Alice

hpsquad said:

appendix cancer
My heart goes out to you and your family. I have stage IV signet ring cell appendix cancer, had a couple surgeries, on a new round of chemo... and praying alot. I agree that you need to see a specialist. At first when they thought it was colon cancer, my sister found a specialist at one of the leading hospitals in Chicago. When the diagnosis changed to appendix cancer, my oncologist said it's treated the same as colon cancer so we stayed with him. I had gotten much advice here that Appendix is a unique cancer and I needed to find a oncologist and surgeon that specializes in appendix cancer. I recently went for a 'second opinion" to MD Anderson and they found a new tumor. They have dealt with many many cases like mine, treated me like a partner, spoke in language that was easier to follow, have knowledgeable, wonderful teams, and are realistic. You don't want to take any chances...contact a specialist. They may suggest the same treatments and protocols, but they may have more insight.
Prayers are with you,
Bette N

Appendix cancer
Hi, I was diagnosed with stage 4 appendix cancer, signet cell in 2010, spent last year in chemo and surgery. Your message from last year gives me hope. Have you found a diet that works well? I'm not finding very much about nutrition for this cancer. Ann

My mother has a serious cancer too
I am new to this blog. I joined this month because my mother was recently diagnosed with spindle cell cancer. It was a lump on her cheek. It's been removed and she has completed 20 days of radiation. Now she has a staph infection on her face from the radiation. This is not her first cacer or even her first illness. She has had shingles, valley fever, basil, squamous, and melanoma skin cancers. She has pulmonary arterial hypertension and now this rare aggressive spindle cell cancer. Through it all she has kept her spirits up bravely. I feel everything you are feeling about your mother. I cry when I think about it too much. I'm angry because she has had to endure one serious diagnosis after another. And I don't know how to help. I feel helpless because I live in CA and she lives in AZ. She lives with my father and he takes good care of her. I am going to stay with them in June. Before I go I am going to Kaiser for information about how to support her, and my father. And I know the are suffering through it without any support. Their generation did not ask for help and they still don't. I just want to hold my mom and tell her everything will be ok.

abrub said:

I'm stage 4 Appendix cancer survivor
I'm 4 years out from my diagnosis and doing great. Mine had spread all over my belly, ovaries, omentum. I had multiple surgeries and chemo.

Is your mom seeing an appendix cancer specialist? If not, see if she can send her records to one. I see Dr. Paty at Memorial Sloan Kettering in NYC. There are others scattered around the country. Here is a link to a partial listing: http://www.appendix-cancer.com/article.php?article=28.

My daughter is 24, my son is 28 - I understand your situation.

Yes, appendix cancer is very serious. However, a lot of us are doing well. It is critical that she see a specialist, however, in order to give her the best chance.

Wishing you well,
Alice

Hi my name is Janessa and my

Hi my name is Janessa and my mom has just been diagnosed with stage 4 appendix cancer,  I read your comment and seen you are a survivor. I guess I'm just looking for any advice on the road ahead. Also of you dont mind me asking, how was your cancer found? Thanks.