gemzar may be working for me....ca125 update

karen1951
karen1951 Member Posts: 103
in Ovarian Cancer #1
hello all.....i hope i'm not getting excited prematurely. last friday at chemo i asked the nurse what my latest ca125 number was....march 1st it was 1382. she told me the latest number is 750!!! i can hardly believe i could have a drop of over 600 points in a 2 week period. i have a petscan tomorrow and am hoping the results back up this latest number. hallelujah!

Comments

  • Mwee
    Mwee Member Posts: 1,338
    #2
    YEAH!
    Now that's good news to wake up to. Best wishes for a good result on that PET scan.
    (((HUGS))) Maria
  • garden gal
    garden gal Member Posts: 212 Member
    #3
    Mwee said:

    YEAH!
    Now that's good news to wake up to. Best wishes for a good result on that PET scan.
    (((HUGS))) Maria

    amazing
    How wonderful is that. Keep up the good work. I am so happy for you. Kathy
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #4
    Awesome !
    This is wonderful!
    Colleen
  • JoWin615
    JoWin615 Member Posts: 150 Member
    #5
    Fantastic!
    Great news - i'll be rooting for you tomorrow. Cheers, Jo
  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #6
    JoWin615 said:

    Fantastic!
    Great news - i'll be rooting for you tomorrow. Cheers, Jo

    Terrific news, Karen!
    I am so, so happy for you! Hoping you have a good petscan tomorrow too!

    Kelly
  • Gottalovelife
    Gottalovelife Member Posts: 45
    #7
    That sounds wonderful
    I pray that your numbers keep coming down and that the pet scan is even better than what you expect.

    Cindy
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #8
    doing the happy dance for you
    I am so glad your numbers are dopping don't worry about rejoice to early when numbers drop there is always a reason to rejoice. I will be praying that you petscan goes well. I have my catscan next tuesday and the a week later I will have my petscan so I am hoping that in two weeks I will know if the cancer is back. I am so praying it is not but if it is I will fight it with all I have again.

    Love, Hugs, and Prayers
    Anne
  • zinaida
    zinaida Member Posts: 221
    #9
    Very good! Let Gemzar work
    Very good! Let Gemzar work this way all way down! (((HUGS))) Zina
  • LoveButterflies
    LoveButterflies Member Posts: 74
    #10
    Woohoo!
    That's great news! Keep on dropping!

    Carmen
  • carolenk
    carolenk Member Posts: 907 Member
    #11
    LoveButterflies said:

    Woohoo!
    That's great news! Keep on dropping!

    Carmen

    Good for you!
    I am so happy to hear you are responding to therapy. : )
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member
    #12
    Hello Karen
    I am so pleased to hear your numbers have dropped. We are in similar positions as my numbers were 1370 after I finished Topotecan. I am now due to have Doxorubicin (Doxil in the States) for the first time. Just before I had my chemo I had a blood test and I asked about my numbers. They are now 1096 and have dropped 300 in a month WITHOUT CHEMO.

    What is that all about????????????

    So we both have some positive news and I hope your pet scan is good too.

    Tina xxx
  • karen1951
    karen1951 Member Posts: 103
    #13
    Tina Brown said:

    Hello Karen
    I am so pleased to hear your numbers have dropped. We are in similar positions as my numbers were 1370 after I finished Topotecan. I am now due to have Doxorubicin (Doxil in the States) for the first time. Just before I had my chemo I had a blood test and I asked about my numbers. They are now 1096 and have dropped 300 in a month WITHOUT CHEMO.

    What is that all about????????????

    So we both have some positive news and I hope your pet scan is good too.

    Tina xxx

    hi tina.....my oncologist
    hi tina.....my oncologist told me that the higher the ca125 # is, the bigger the swing can be so maybe it's not unusual to have that big of a drop...who knows?? im glad to hear that you will be getting doxil....it is apparently scarcer than hen's teeth .. i will be switching to a new doctor next week who has put in an appeal to my ins. co to put me at the top of the list for doxil when and if it becomes available here....he's also putting me in the queue for a clinical trial. all this will be moot if the gemzar i'm on is indeed working. if that's the case, i will just continue on the gemzar until it decides to stop working for me. i'm holding my breath for this friday's appt to get the petscan results....i hope what he has to say backs up the ca125 number. i always watch for your posts...we certainly have a lot of the same issues....all the best...karen xoxoxo
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member
    #14
    karen1951 said:

    hi tina.....my oncologist
    hi tina.....my oncologist told me that the higher the ca125 # is, the bigger the swing can be so maybe it's not unusual to have that big of a drop...who knows?? im glad to hear that you will be getting doxil....it is apparently scarcer than hen's teeth .. i will be switching to a new doctor next week who has put in an appeal to my ins. co to put me at the top of the list for doxil when and if it becomes available here....he's also putting me in the queue for a clinical trial. all this will be moot if the gemzar i'm on is indeed working. if that's the case, i will just continue on the gemzar until it decides to stop working for me. i'm holding my breath for this friday's appt to get the petscan results....i hope what he has to say backs up the ca125 number. i always watch for your posts...we certainly have a lot of the same issues....all the best...karen xoxoxo

    Hi Karen
    I too am switching to a new doctor. I have completely lost faith in my oncologist. the first thing was he never noticed I had ascites a few months ago (he never examines me when ever I g to clinic) I requested an ultra sound and they discovered ascites and I ended up having nearly 3 litres drained. The second thing was he prescribed caelyx (The UK version of Doxil) for me last week and never knew the manufacturers had stopped making it. I found out when the pharmacy at my hospital got the prescription on the day of my chemo. I have since started on a chemo similar called Doxorubicin which I believe has an element of doxil in it (not too sure though)

    Keep strong and like you I always look out for your posts. Love Tina xxx
  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    #15
    Wow, what a drop. I'm very
    Wow, what a drop. I'm very happy for you. Have read some of your posts. You've been through so much! Glad you have some good news!!!
    Shawnna
  • kikz
    kikz Member Posts: 1,345 Member
    #16
    2timothy1 7 said:

    Wow, what a drop. I'm very
    Wow, what a drop. I'm very happy for you. Have read some of your posts. You've been through so much! Glad you have some good news!!!
    Shawnna

    Great
    news Karen. I hope it keeps dropping.

    Karen

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