Hello my name is Fishknees and I have kidney cancer.

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  • Fishknees
    Fishknees Member Posts: 73
    #22
    j_rod said:

    Here is what I am hearing...
    ...and I will use this information. I will go in on Tues. at 10:30 am Central time in the USA. I will immediately tell them that I do not want to experience any pain. I will tell them pain management is my number one concern. I will tell them that getting home is my number two concern. I live 150 miles away from Chicago where my surgery is scheduled. My sister is going with me. We will drive up there the day before and stay in a hotel. That day I am to have only a clear liquid diet. No solid food. That night I am to shower from head to toe. Then I am to wait one hour and decontaminate myself with the 'special' bacteria killing cloths they gave me. Then when I get up Tuesday morning, I am to repeat the bacteria killing cloths one hour before I arrive at the hospital. They told me the operation will begin at noon, and I will be released at noon the next day. Considering my long car ride, I had already asked if I could stay one more day to make sure everything is ok. You see, I live in a rural area. The nearest hospital is 20 miles away - and their reputaion is poor. So...I will stay as long as I need until I am comfortable with leaving. I don't want to go home and have anything go wrong. I will demand the pain meds. So will you. It is our right to be comfortable as possible. I can't remember the wife of a nephrectomy patient who just started a new thread. They operated one day and sent him home the next - and he is having a bad time with pain. I do not want that to happed because I will be home alone most of the day. Be demanding....it will pay off.

    This sounds like a good plan
    This sounds like a good plan to me. I would stay at least one more night and two if you need it. Believe me I have worked at hospitals and they can't throw you out. I think I am going to tell the anesthesiologist the same thing.

    Good luck on your surgery. I wish I was having mine done when you are. You are going to be up and going before I go in. Today, I start thinking two weeks from now I will be home. You are going to do great. I am wonder about the bacteria killing cloths they gave you. I don't know about those.

    Good luck I will be thinking and praying for you. I got a day calendar and have been putting everyones names on their surgery day so I don;t forget to say a prayer for anyone that has been on since I joined. I think it all helps.

    A trip to the big City should be fun. I have two boys living there and they love it.

    Fishie
  • Fishknees
    Fishknees Member Posts: 73
    #23
    Texas_wedge said:

    Morphine pump
    The night before last, after my op, I inadvertently tore the pump insert out of my hand. Got blood all over the bedclothes -> bed linen change and no pump for hours. Had it yesterday and last night but have just showered and won't go back on the pump.

    I have to ask - are there a lot of Fishkneeses in your neck of the woods or do you come from Atlantis?

    So sorry!
    I am so sorry about your pain pump and no pain meds. I hope you are doing better this a.m.

    This sounds like another group I belong to. What goes on at night stays at night. A lot of us on then I see.

    Yes I am a water girl and I think it might be Atlantis. At least to me it is the beach and beautiful. Lots of frolicking with the dolphins in the Sea of Cortez. They love fishknees.
  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #24
    Fishknees said:

    So sorry!
    I am so sorry about your pain pump and no pain meds. I hope you are doing better this a.m.

    This sounds like another group I belong to. What goes on at night stays at night. A lot of us on then I see.

    Yes I am a water girl and I think it might be Atlantis. At least to me it is the beach and beautiful. Lots of frolicking with the dolphins in the Sea of Cortez. They love fishknees.

    Private messaging
    fishie,

    A few posts ago you asked about private messaging. Hit the icon in the upper left where it says CSN Email and you will be there. Beware of any strange posts today as it is April Fools day. Your next big holiday is Friday the 13th which they are moving to a Thursday this year.

    Icemantoo
  • alice124
    alice124 Member Posts: 896 Member
    #25
    Fishknees said:

    Oh Wow!
    I just got on the computer and read all your posts. Thank you all so much. I never expected so much support. My family doesn't get it. They are worried but they never had cancer so they don't know the "fear that strikes in the hearts" of men and women with that diagnosis.

    I am still very afraid. I am more afraid of the pain than the cancer. I have had melanoma stage 3. No cure. It could have gone either way but I was lucky and I am still here. My next door neightbor died of melanoma last year at 42 with two boys 9 and 10. So I am spooked.

    Could I ask what everyone had right after surgery for pain. I was in recovery 8 hours with the hysterectomy and 24 hours in extreme pain after I went to the room. Later I found out my doctor did not like to use narcotics. He was sued previously and was afraid to use much for pain.

    I explained I was afraid of pain to the surgeon and he said he uses Toradol. I have found out I can not use that. It is a NSAID(SP) which I can not have because I had a nissen fundoplication for a hiatus hernia and no NSAIDs allowed. I did not know that Toradol was a NSAID so I will have see what else he has up his sleeve. I did ask for an anesthesia consult because I have vasalvagal syndrome. I am fine during surgery but after surgery when your(collective you) blood pressure goes up (often how they know you need pain meds when you are out) mine goes down and they are afraid to give pain meds. The doctors and anesthesia are not; but, after I get handed off to others they don't want to give anything. It seems the message never gets passed along. The only thing that will bring up my blood pressure is the pain medication. It is like the fight or flight thing. You guys fight, blood pressure and temp go up. I have everything go down. It really doesn't hurt me other than if the message doesn't get passed along I don't get any pain meds. What a mess. (Sorry for TMI)

    Also surgery is scheduled Friday the 13th.(I have to assume now that is my lucky day)

    I am really picky. I will have weekend nurses. I have worked at a hospital for 15 years and find out they are usually not as good. (sorry for generalizing and if I offend anyone I am sorry but it is often true) The doctor is working me in and if I wait for another date it will be the end of May. I just will not make it that long. I figured that is how he worked me in, no one wanted surgery on Friday the 13th.

    I am so sorry to be such a baby. I am trying to hold the gallbladder together, not freak out and extreme fear of pain because of many medical problems as a child. You know if you are in your 50's or 60's the pain care was not there then.


    Thanks so much for the support. You all are doing so great with so much more. I really don't want to be a baby; but, I am scared to death of the pain.

    Neen, all you have been through, just all of you, are so great and I am complaining with a little tumor.


    Thanks again for all the responses. You guys are the greatest.

    Have a great day!
    Fishie

    Frightented - sure everyone is
    Fishknees - I know the anxiety is hard but think how incredibly lucky you are to have inadvertently found this very early. There are not too many that are that fortunate as most inadvertently find it in late stages.

    I agree with Gary; you're on a roll and you'll do fine. You have an angel peeking over your shoulders and plenty of new friends cheering you onward!
  • Fishknees
    Fishknees Member Posts: 73
    #26
    alice124 said:

    Frightented - sure everyone is
    Fishknees - I know the anxiety is hard but think how incredibly lucky you are to have inadvertently found this very early. There are not too many that are that fortunate as most inadvertently find it in late stages.

    I agree with Gary; you're on a roll and you'll do fine. You have an angel peeking over your shoulders and plenty of new friends cheering you onward!

    Thanks
    Thanks Iceman for the PM information. I think I found what I need to do.

    Alice. I am very thankful for finding my cancer early. It was during an ultra sound for my gallbladder.

    I just came back from Mexico. A friend and I were shopping in a store and a lady came up and read our palms. She was very accurate with my friend. She said she was working on her heart. She recently had open heart surgery.

    She read mine and it was pretty good. She did say I have angeles all around me. She also said I would not have Gallbladder surgery this year. She was right about that. Just kind of missed the kidney stuff. She did say I had a very long life line that went all the way around by thumb. I don't know much about it; but, I will take the angels and long like line.

    One comment. If I am on a roll, why did I not win that $560,000.00 lottery? Then I could have paid everyones bills. (LOL)

    Thanks everyone, you have been very supportive. I am glad to have found you all.

    Have a wonderful day everyone!
    Fishie
  • littledarlin
    littledarlin Member Posts: 102
    #27
    Fishknees said:

    Thanks
    Thanks Iceman for the PM information. I think I found what I need to do.

    Alice. I am very thankful for finding my cancer early. It was during an ultra sound for my gallbladder.

    I just came back from Mexico. A friend and I were shopping in a store and a lady came up and read our palms. She was very accurate with my friend. She said she was working on her heart. She recently had open heart surgery.

    She read mine and it was pretty good. She did say I have angeles all around me. She also said I would not have Gallbladder surgery this year. She was right about that. Just kind of missed the kidney stuff. She did say I had a very long life line that went all the way around by thumb. I don't know much about it; but, I will take the angels and long like line.

    One comment. If I am on a roll, why did I not win that $560,000.00 lottery? Then I could have paid everyones bills. (LOL)

    Thanks everyone, you have been very supportive. I am glad to have found you all.

    Have a wonderful day everyone!
    Fishie

    Fishie...Love it..
    Just want to let you know that your positive way of seeing this is very contagious.
    You're going to great and I think that I am going to too..

    Thanks
    Littledarlin..

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