14 year survivor - bad PET scan rsults

mom62 said:

Mets
Hi,

I have mets too. I do hormone therapy too. Arimidex and every three months Lupron shot. Mine is original from BC. I had recurrance and had most of sternum and 3 ribs removed as it had grown into the bones. I did chemo after surgery and am now on the hormone therapy for mets that grew while I was given chemo so I don't think chemo helped me at all.

Terry

Ann2800103 said:

i'M 14 years out had recurrence three years ago doing great now
Hi Had breast cancer in 1998 December 10. Had all chemo and radiation and Tamoxifen. After all those years my hip started to hurt. I had a scan and I was pending fracture. Ithad eaten almost through the hip and 3/4 down my femur.
Had hip replaced no chemo this time radiation three years ago. I do not even have a limp
and feeling great@@ Because my cancer lives on estrogen I am taking Lupron shots every six weeks hardly any side affects to speak of and I walk without a limp (: I was very sad also but fought like you know what said no chemo just rad because organs are fine.
Keep in touch or you can send me emails on here. I am here foryou if you have any questions.
I feel better now then I have in years.....I am on heavy Vit D. Make sure your Vit D stays up.
Blessings to you my dear...Its not always what you think...I almost gave up. Now I'm keeping my grand daughter I am disabled because once it comes back they told me not to work
and they approved disability right away. I worked since I was 14 so my disability is enough for me to live on. They felt stress of working would not be good.
Huggs Annie

kmikola2 said:

No news yet...
Appointment scheduled for Wednesday, but he assured me he would call if he got the results before. Freak out every time I think of it.

Hugs right back,

Kay

survivorbc09 said:

I am very glad that you
I am very glad that you won't have to do traditional chemo again too Kay. And, glad that this doctor does have a plan in place for you. Please let us know what the next doctor says.

Praying,

Jan

kmikola2 said:

Recurrent breast cancer with bone mets....ER 90%+/PR 20% .../HER results not in yet....so the plan is Faslodex 500 mg for two weeks, then monthly/500 mg monthly Xgeva 120mg sub q. Will start the first shots next week.

If the HER comes back positive, he will also administer HER...

So, as horrible as this whole thing is, I'm glad I don't have to do traditional "chemo" again. He says we'll do another PET scan in 6 months...could do it sooner, but while bone is healing, he said everything will "light up" as the bone heals. Get a more accurate reading in 6 months. He said we will go on this indefinitely, as long as it works, which in his opinion can be years.

Glad there is a plan in place. I am going to a different doctor tomorrow to get a different opinion.

Thanks for all the prayers and positive thoughts.

I'll let you know what doctor #2 says.

Hugs,

Kay

kmikola2 said:

Dr #2 confirms Dr #1 plan
Went and saw Dr #2 today...he was actually VERY good. He recommended the same treatment plan that Dr #1 suggested. This made me feel better. He said he expected me to do very well, and that I had a good prognosis. Have every hope to be around MANY years....keep praying! Hugs!

Angie2U said:

Glad you feel so well Kay!
Glad you feel so well Kay! Do you have anything to take for the achy feeling?

Hugs, Angie

mollyz said:

Wonderful news!!!!
As i read thru the post it was as if i was holding my breath waiting for a a out come and thank God it is a good one for you,good luck and as always you and all the pink sisters have my prayers ~~MollyZ~~