SCARED!!!!

Dee2005
Dee2005 Member Posts: 24
in Bladder Cancer #1
Hi! I usually visit the anal cancer board as I am a survivor, diagnosed in November 2005. Went through a long hard battle with that cancer and just a year ago the oncologists released me. I wound up with a permanent colostomy and other problems. The reason I'm here is for the past few months I've been very fatigued, losing weight, dizzy and so on. Then last night I started urinating blood with clots in it, very painful. Went to the doctor and I do not have an infection, they've scheduled an ultrasound for Thursday and have plans for me to see an urologist for a citoscope. (sorry if I misspelled) At this point the doctor really hasn't said what the possiblities are, but after doing some research on my own I AM SCARED!!! Am I freaking out to soon? Are my doctors following the correct course of action? Any comments would be appreciated. Thank you

Comments

  • kathrynjenkins
    kathrynjenkins Member Posts: 9 Member
    #2
    Urology appointment
    Hi Dee,
    I am an 11 yr. survivor of bladder cancer. Please don't jump to any conclusions as it takes so much energy when you do that it becomes exhausting. Just wait until your cystoscope and see what's going on. Cystos aren't much fun but at least they don't last but a few minutes. You may be worrying needlessly and I'll be thinking about you and sending good thoughts your way.
  • Dee2005
    Dee2005 Member Posts: 24
    #3
    kathrynjenkins said:

    Urology appointment
    Hi Dee,
    I am an 11 yr. survivor of bladder cancer. Please don't jump to any conclusions as it takes so much energy when you do that it becomes exhausting. Just wait until your cystoscope and see what's going on. Cystos aren't much fun but at least they don't last but a few minutes. You may be worrying needlessly and I'll be thinking about you and sending good thoughts your way.

    Thanks Kathryn
    I was reminded just to breathe! Thank you for responding so quickly. And your good thoughts are very much appreciated.
  • u4art
    u4art Member Posts: 52
    #4
    Dee2005 said:

    Thanks Kathryn
    I was reminded just to breathe! Thank you for responding so quickly. And your good thoughts are very much appreciated.

    scared
    the unknown is the scariest ...waiting to find out the facts is torture
    once you know..you can take on a plan of action...

    23 yr survivor ..lost bladder and kidneys
    ..... "Baggies make better Lovers"

    ...and....remember ...double baggies have twice the fun

    ...cheers .... Art
  • chloe2757
    chloe2757 Member Posts: 1
    #5
    u4art said:

    scared
    the unknown is the scariest ...waiting to find out the facts is torture
    once you know..you can take on a plan of action...

    23 yr survivor ..lost bladder and kidneys
    ..... "Baggies make better Lovers"

    ...and....remember ...double baggies have twice the fun

    ...cheers .... Art

    bladder cancer (they think)
    I'm freaking out!! I just got home from work and after an appointment with his doctor due to blood and clots in his urine am told his doctor thinks he has bladder cancer. I don't know what to say to him. I have told him to not freak and to wait to see what the tests say but it sounds so pathetic to my ears. I just don't know how to console him... I think that it is advanced. I wante him to go to the doctor long ago after he had problems with urgency and small narrow stools I thought it might be an enlarged prostate. Now it seems like all my fears have come true 10 fold. Does anyone have any suggestions? I feel so bad but need some advice..
  • u4art
    u4art Member Posts: 52
    #6
    chloe2757 said:

    bladder cancer (they think)
    I'm freaking out!! I just got home from work and after an appointment with his doctor due to blood and clots in his urine am told his doctor thinks he has bladder cancer. I don't know what to say to him. I have told him to not freak and to wait to see what the tests say but it sounds so pathetic to my ears. I just don't know how to console him... I think that it is advanced. I wante him to go to the doctor long ago after he had problems with urgency and small narrow stools I thought it might be an enlarged prostate. Now it seems like all my fears have come true 10 fold. Does anyone have any suggestions? I feel so bad but need some advice..

    (they think)
    ..... can't worry about a non-fact..

    .....get the facts ....then work with doc to format a plan for a solution

    .....at this stage .....the odds that, whatever they think it is, will be fatal
    are less than that of crossing the street.

    ....cancer ( especially of the bladder ) is no longer considered terminal

    ...just be supportive of him, talk about both your feelings ....

    .....avoiding the subject is a formula for a destructive emotional crash

    for both of you.
  • wilsel
    wilsel Member Posts: 38
    #7
    u4art said:

    (they think)
    ..... can't worry about a non-fact..

    .....get the facts ....then work with doc to format a plan for a solution

    .....at this stage .....the odds that, whatever they think it is, will be fatal
    are less than that of crossing the street.

    ....cancer ( especially of the bladder ) is no longer considered terminal

    ...just be supportive of him, talk about both your feelings ....

    .....avoiding the subject is a formula for a destructive emotional crash

    for both of you.

    Try this website...more traffic
    Hi:

    I am providing a website address that you might want to visit. It is the Bladder Cancer Advocacy Network and you'll get the answers and support to all of your questions. Many bladder cancer survivors on this site all the time. Simply copy and paste into your browser address bar.

    http://www.inspire.com/groups/bladder-cancer-advocacy-network/

    I had my bladder removed due to bladder cancer on June 30, 2010 and am doing fine. It was advanced and staged at 3a.

    Wish you well.
    C U,
    Bill

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