14 year survivor - bad PET scan rsults

24

Comments

  • jnl
    jnl Member Posts: 3,869 Member
    #22
    VickiSam said:

    Kay, Gentle hugs and prayers for you ..
    good information from our Sisters in PINK -- living with a recurrence, or as some
    stated a "chronic disease", also known as breast cancer.

    Please keep us posted -- as we are a family, united by the will to Survivor the
    beast.

    Strength, Courage and HOPE for a Cure.

    Vicki Sam

    How are you doing Kay?
    How are you doing Kay? Thinking of you and sending prayers.


    Hugs, Leeza
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    #23
    kmikola2 said:

    If my bone biopsy shows up
    If my bone biopsy shows up as ER+, my doctor is suggesting Aromasin and monthly XGEVA shots. He says he's had women on this regemine for 10+ years. But this just doesn't sound like enough. Isn't there more aggressive treatment?

    If its ER-, he says chemo. Because I only had AC 14 years ago, He says there are lots that we can try.

    I had a friend whose sister did some sort of bone marrow procedure after bone mets 18 years ago, and is still here. Is this a possibility? I'm thinking of asking for a second opinion.

    I know I am getting way ahead of myself, but I'm trying to gather information.

    Thanks for any input,

    Kay

    When is your bone biopsy
    When is your bone biopsy scheduled Kay?
  • kmikola2
    kmikola2 Member Posts: 29
    #24
    DebbyM said:

    When is your bone biopsy
    When is your bone biopsy scheduled Kay?

    Bone biopsy scheduled for Thursday
    Thursday is the day...sounds like just SO much fun. I really am trying to take it one step at a time...
    Any helpful suggestions?
  • kmikola2
    kmikola2 Member Posts: 29
    #25
    jnl said:

    How are you doing Kay?
    How are you doing Kay? Thinking of you and sending prayers.


    Hugs, Leeza

    Thanks for the prayers...one day at a time
    Plan is bone biopsy Thursday, should get results by early next week (which the doctor assured me he would call me with if he gets it before our appointment on Wednesday); based on the results, develop a plan. Praying for ER+ (my original cancer was VERY ER+)...I also decided to get a second opinion from a friends oncologist, just to hear another opinion. I don't expect a different answer, just want to be sure I covered my bases.

    I think once I develop a plan, I'll feel better. All this uncertainty is brutal.

    I really am taking it one day at a time...very emotional one minute, strong the next. The doctor did prescribe some xanax, but I'm thinking of asking for some anti-depressants. Don't think I can live like this.

    I'll keep you informed...Thanks for all the support!
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #26
    mom62 said:

    Mets
    Hi,

    I have mets too. I do hormone therapy too. Arimidex and every three months Lupron shot. Mine is original from BC. I had recurrance and had most of sternum and 3 ribs removed as it had grown into the bones. I did chemo after surgery and am now on the hormone therapy for mets that grew while I was given chemo so I don't think chemo helped me at all.

    Terry

    I am so sorry Kay that that
    I am so sorry Kay that that your scan turned out like this. My prayers to you.


    Hugs, Jan
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #27
    kmikola2 said:

    Thanks for the prayers...one day at a time
    Plan is bone biopsy Thursday, should get results by early next week (which the doctor assured me he would call me with if he gets it before our appointment on Wednesday); based on the results, develop a plan. Praying for ER+ (my original cancer was VERY ER+)...I also decided to get a second opinion from a friends oncologist, just to hear another opinion. I don't expect a different answer, just want to be sure I covered my bases.

    I think once I develop a plan, I'll feel better. All this uncertainty is brutal.

    I really am taking it one day at a time...very emotional one minute, strong the next. The doctor did prescribe some xanax, but I'm thinking of asking for some anti-depressants. Don't think I can live like this.

    I'll keep you informed...Thanks for all the support!

    We will continue to pray for
    We will continue to pray for you Kay. Good luck Thursday.


    Hugs, Jan
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    #28
    Bummer
    Bummer that it is back. If it turns out to be the bc instead of some other form of cancer then it has taken a heck of a long time to return. It might mean you have a good many years ahead of you despite it's return. Will put you on the prayer list.
  • Megan M
    Megan M Member Posts: 3,000
    #29
    laughs_a_lot said:

    Bummer
    Bummer that it is back. If it turns out to be the bc instead of some other form of cancer then it has taken a heck of a long time to return. It might mean you have a good many years ahead of you despite it's return. Will put you on the prayer list.

    Praying for you Kay!
    Praying for you Kay!
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #30
    kmikola2 said:

    Thanks for the prayers...one day at a time
    Plan is bone biopsy Thursday, should get results by early next week (which the doctor assured me he would call me with if he gets it before our appointment on Wednesday); based on the results, develop a plan. Praying for ER+ (my original cancer was VERY ER+)...I also decided to get a second opinion from a friends oncologist, just to hear another opinion. I don't expect a different answer, just want to be sure I covered my bases.

    I think once I develop a plan, I'll feel better. All this uncertainty is brutal.

    I really am taking it one day at a time...very emotional one minute, strong the next. The doctor did prescribe some xanax, but I'm thinking of asking for some anti-depressants. Don't think I can live like this.

    I'll keep you informed...Thanks for all the support!

    Good luck with the bone
    Good luck with the bone biopsy. Please post your results when you can. And, I like your getting a 2nd opinion!

    Hoping the xanax will help you thru this Kay.


    Sue :)
  • kmikola2
    kmikola2 Member Posts: 29
    #31
    laughs_a_lot said:

    Bummer
    Bummer that it is back. If it turns out to be the bc instead of some other form of cancer then it has taken a heck of a long time to return. It might mean you have a good many years ahead of you despite it's return. Will put you on the prayer list.

    Like the way you think..
    Actually, the doctor did suggest that if it is the same cancer, the fact that it has been so long is a good sign. I'll take anything I can get.

    Thanks! Kay
  • Alexis F
    Alexis F Member Posts: 3,598
    #32
    kmikola2 said:

    Like the way you think..
    Actually, the doctor did suggest that if it is the same cancer, the fact that it has been so long is a good sign. I'll take anything I can get.

    Thanks! Kay

    Be sure and keep us updated
    Be sure and keep us updated Kay! Hugs!
  • kmikola2
    kmikola2 Member Posts: 29
    #33
    Alexis F said:

    Be sure and keep us updated
    Be sure and keep us updated Kay! Hugs!

    Bone biopsy complete
    Had the bone biopsy today. It actually went very well...doctor and nurses were very nice and caring. A little sore now, but nothing horrible. They said 5 days to find out the results, but my doctor said more like 3. We'll see. Pray that the results are good (I guess relatively good).

    Thanks for all the support...

    Kay
  • susie09
    susie09 Member Posts: 2,930
    #34
    kmikola2 said:

    Bone biopsy complete
    Had the bone biopsy today. It actually went very well...doctor and nurses were very nice and caring. A little sore now, but nothing horrible. They said 5 days to find out the results, but my doctor said more like 3. We'll see. Pray that the results are good (I guess relatively good).

    Thanks for all the support...

    Kay

    So glad your bone biopsy is
    So glad your bone biopsy is done now. I hope the soreness goes away quickly. Praying for good results Kay!
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #35
    susie09 said:

    So glad your bone biopsy is
    So glad your bone biopsy is done now. I hope the soreness goes away quickly. Praying for good results Kay!

    I will be praying for you
    I will be praying for you Kay.


    Hugs, Diane
  • kmikola2
    kmikola2 Member Posts: 29
    #36
    DianeBC said:

    I will be praying for you
    I will be praying for you Kay.


    Hugs, Diane

    Thanks for all the prayers
    Thanks everybody for the prayers and support...this limbo is horrible...
  • Angie2U
    Angie2U Member Posts: 2,991
    #37
    kmikola2 said:

    Thanks for all the prayers
    Thanks everybody for the prayers and support...this limbo is horrible...

    I can't imagine how you feel
    I can't imagine how you feel Kay. The limbo is horrible, I know. I am praying for you!



    Hugs, Angie
  • Ann2800103
    Ann2800103 Member Posts: 31
    #38
    i'M 14 years out had recurrence three years ago doing great now
    Hi Had breast cancer in 1998 December 10. Had all chemo and radiation and Tamoxifen. After all those years my hip started to hurt. I had a scan and I was pending fracture. Ithad eaten almost through the hip and 3/4 down my femur.
    Had hip replaced no chemo this time radiation three years ago. I do not even have a limp
    and feeling great@@ Because my cancer lives on estrogen I am taking Lupron shots every six weeks hardly any side affects to speak of and I walk without a limp (: I was very sad also but fought like you know what said no chemo just rad because organs are fine.
    Keep in touch or you can send me emails on here. I am here foryou if you have any questions.
    I feel better now then I have in years.....I am on heavy Vit D. Make sure your Vit D stays up.
    Blessings to you my dear...Its not always what you think...I almost gave up. Now I'm keeping my grand daughter I am disabled because once it comes back they told me not to work
    and they approved disability right away. I worked since I was 14 so my disability is enough for me to live on. They felt stress of working would not be good.
    Huggs Annie
  • Ann2800103
    Ann2800103 Member Posts: 31
    #39
    i'M 14 years out had recurrence three years ago doing great now
    Hi Had breast cancer in 1998 December 10. Had all chemo and radiation and Tamoxifen. After all those years my hip started to hurt. I had a scan and I was pending fracture. Ithad eaten almost through the hip and 3/4 down my femur.
    Had hip replaced no chemo this time radiation three years ago. I do not even have a limp
    and feeling great@@ Because my cancer lives on estrogen I am taking Lupron shots every six weeks hardly any side affects to speak of and I walk without a limp (: I was very sad also but fought like you know what said no chemo just rad because organs are fine.
    Keep in touch or you can send me emails on here. I am here foryou if you have any questions.
    I feel better now then I have in years.....I am on heavy Vit D. Make sure your Vit D stays up.
    Blessings to you my dear...Its not always what you think...I almost gave up. Now I'm keeping my grand daughter I am disabled because once it comes back they told me not to work
    and they approved disability right away. I worked since I was 14 so my disability is enough for me to live on. They felt stress of working would not be good.
    Huggs Annie
  • Ann2800103
    Ann2800103 Member Posts: 31
    #40
    mom62 said:

    Mets
    Hi,

    I have mets too. I do hormone therapy too. Arimidex and every three months Lupron shot. Mine is original from BC. I had recurrance and had most of sternum and 3 ribs removed as it had grown into the bones. I did chemo after surgery and am now on the hormone therapy for mets that grew while I was given chemo so I don't think chemo helped me at all.

    Terry

    Lupron
    How is the Lupron doing for you? I have been on it almost three years. Seems to be doing well. on Femara also..... How are your side affects? I am feeling pretty good.

    Huggs
    Annie
  • Ann2800103
    Ann2800103 Member Posts: 31
    #41
    mom62 said:

    Mets
    Hi,

    I have mets too. I do hormone therapy too. Arimidex and every three months Lupron shot. Mine is original from BC. I had recurrance and had most of sternum and 3 ribs removed as it had grown into the bones. I did chemo after surgery and am now on the hormone therapy for mets that grew while I was given chemo so I don't think chemo helped me at all.

    Terry

    Lupron
    How is the Lupron doing for you? I have been on it almost three years. Seems to be doing well. on Femara also..... How are your side affects? I am feeling pretty good.

    Huggs
    Annie

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