Cancer cells in urine

davevg
davevg Member Posts: 114
in Ovarian Cancer #1
So my wife has been having blood in her urine. They tested and found found a UTI. After 2 rounds of antibiotics she was still having problems so they tested for it again and it came back negative for a UTI but positive for ovarian cancer cells. Prior to these findings her Dr had already decided she should see a urologist which by the way moved up her appt a day and broke all this news to us. I went in with her for the procedure and during it he said the bladder looked suspicious but there were no obvious tumors showing. Little disappointed in the onc at the moment. She will go for a biopsy on Tuesday. Funny threw all this her CA 125 has been at 7.5 for months and that has always been a good marker for her. We were beyond shocked to say the least and still are. Anyone ever had or heard of this?????

Dave VG
«13

Comments

  • mopar
    mopar Member Posts: 1,972 Member
    #2
    SORRY TO HEAR THIS, DAVE
    And I'm sorry I can't offer any info on 'cancer cells' in the urine. But I will be keeping both you and your wife in prayer. Please let us know after her biopsy Tuesday, when you have a moment.

    (((HUGS))) & Prayers,
    Monika
  • davevg
    davevg Member Posts: 114
    #3
    mopar said:

    SORRY TO HEAR THIS, DAVE
    And I'm sorry I can't offer any info on 'cancer cells' in the urine. But I will be keeping both you and your wife in prayer. Please let us know after her biopsy Tuesday, when you have a moment.

    (((HUGS))) & Prayers,
    Monika

    Thank you Monika,
    She was scheduled for her last chemo in a couple of weeks and we were both so so confident that the chemo was working due to her low CA 125. That said she is extremely devastated by this news. She has not even gotten out of bed today. I was texting her from work and she seemed like she wanted to talk but did not want to bother me at work so I surprised her and came home from work to spend sometime with her. We talked and she cried quite a bit and I think it helped because she is finally getting some sleep. So I figured I would check back here.
  • mopar
    mopar Member Posts: 1,972 Member
    #4
    davevg said:

    Thank you Monika,
    She was scheduled for her last chemo in a couple of weeks and we were both so so confident that the chemo was working due to her low CA 125. That said she is extremely devastated by this news. She has not even gotten out of bed today. I was texting her from work and she seemed like she wanted to talk but did not want to bother me at work so I surprised her and came home from work to spend sometime with her. We talked and she cried quite a bit and I think it helped because she is finally getting some sleep. So I figured I would check back here.

    YOU'RE WELCOME, DAVE
    I wish I could offer more consolation for you both. But there is still a chance that all will be okay - please hold on to your faith and hope.

    What exactly will they be doing a biopsy on? I hope the procedure goes easily for your wife.

    That was so sweet of you to come home from work. You sound just like my husband - that's something he would do for me. So maybe between now and Tuesday you can both take your minds off of this and do some things that you both enjoy.

    Hugs and Prayers to you both.
    Monika
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #5
    davevg said:

    Thank you Monika,
    She was scheduled for her last chemo in a couple of weeks and we were both so so confident that the chemo was working due to her low CA 125. That said she is extremely devastated by this news. She has not even gotten out of bed today. I was texting her from work and she seemed like she wanted to talk but did not want to bother me at work so I surprised her and came home from work to spend sometime with her. We talked and she cried quite a bit and I think it helped because she is finally getting some sleep. So I figured I would check back here.

    Dave Thank you so much
    It is so nice to see how much you love and are caring for her. As a person with cancer (stage 4 overian cancer) we could not make it without our supporters. I will be keeping you ande your wife in my prayers. Thank you for being so good to her. She will need it for a while as she works throught this.

    Love, Hugs, and Prayers
    Anne
  • davevg
    davevg Member Posts: 114
    #6
    mopar said:

    YOU'RE WELCOME, DAVE
    I wish I could offer more consolation for you both. But there is still a chance that all will be okay - please hold on to your faith and hope.

    What exactly will they be doing a biopsy on? I hope the procedure goes easily for your wife.

    That was so sweet of you to come home from work. You sound just like my husband - that's something he would do for me. So maybe between now and Tuesday you can both take your minds off of this and do some things that you both enjoy.

    Hugs and Prayers to you both.
    Monika

    Monika
    They are doing one on her bladder. But I just got off the phone with her onc and he says she needs to get right into her onc/gyn now as in next week I'm thinking. If I sound a little lost and all over the place its because I am. The urologist set an appt up with her onc/gyn up for April. Her onc was pissed as I said he wants her in now and is calling her personally.
  • mopar
    mopar Member Posts: 1,972 Member
    #7
    davevg said:

    Monika
    They are doing one on her bladder. But I just got off the phone with her onc and he says she needs to get right into her onc/gyn now as in next week I'm thinking. If I sound a little lost and all over the place its because I am. The urologist set an appt up with her onc/gyn up for April. Her onc was pissed as I said he wants her in now and is calling her personally.

    I KNOW YOUR FRUSTRATION
    Sometimes these doctors have you coming and going. Both of you must be so frazzled, and now with this new development, even more concerned.

    We recently had a situation with my husband and the doctors had us so bewildered and concerned. They just couldn't all seem to be on the same page, and in three days time we got 4 different answers from 4 different doctors. The same thing happened about 3 years ago. I think part of the problem is that the medical field is so 'specialized' that you may see 2 or 3 doctors for the same problem, and you can never get them to communicate together.

    Sure wish I could say or do something to ease this situation for you both. Just know that my prayers continue. And although I know your wife must be so physically and emotionally tired, please tell her we're here for her if she'd like to chat.

    Till later. . .
    Monika
  • davevg
    davevg Member Posts: 114
    #8
    Ok so things are moving fast
    Talked with the onc Friday and he already had a call into my wifes onc/gyn. She called my wife at 9:00 this morning and shoe horning her in today at 2 for an internal exam. Hopefully we get some answers today. I'm thinking second look surgery depending on what they find today. According to the onc this appointment was more important than the one for the biopsy's at the urologist. Not sure why. He expressed to me that he is very concerned. I did not tell my wife that part. I knew it was going to be a very difficult weekend for her as it was. Shame on me I know just couldn't bring myself to tell her that part.
  • davevg
    davevg Member Posts: 114
    #9
    davevg said:

    Ok so things are moving fast
    Talked with the onc Friday and he already had a call into my wifes onc/gyn. She called my wife at 9:00 this morning and shoe horning her in today at 2 for an internal exam. Hopefully we get some answers today. I'm thinking second look surgery depending on what they find today. According to the onc this appointment was more important than the one for the biopsy's at the urologist. Not sure why. He expressed to me that he is very concerned. I did not tell my wife that part. I knew it was going to be a very difficult weekend for her as it was. Shame on me I know just couldn't bring myself to tell her that part.

    So I'm also going to assume
    So I'm also going to assume that this is rare due to very few responses.
  • mopar
    mopar Member Posts: 1,972 Member
    #10
    davevg said:

    Ok so things are moving fast
    Talked with the onc Friday and he already had a call into my wifes onc/gyn. She called my wife at 9:00 this morning and shoe horning her in today at 2 for an internal exam. Hopefully we get some answers today. I'm thinking second look surgery depending on what they find today. According to the onc this appointment was more important than the one for the biopsy's at the urologist. Not sure why. He expressed to me that he is very concerned. I did not tell my wife that part. I knew it was going to be a very difficult weekend for her as it was. Shame on me I know just couldn't bring myself to tell her that part.

    YOU DID THE RIGHT THING, DAVE
    I'm sure you're wife is already agonizing over the possibilities, so telling her the doctor is 'very concerned' would not help her. Unfortunately, you are bearing this burden alone. But hopefully, coming to the board to 'vent' will help a little.

    Don't know what time zone you're in, but keep us posted once you have something to tell us. I know sitting at a computer will not be priority for you, so I'll try to be patient.

    Prayers.
    Monika
  • mopar
    mopar Member Posts: 1,972 Member
    #11
    davevg said:

    Ok so things are moving fast
    Talked with the onc Friday and he already had a call into my wifes onc/gyn. She called my wife at 9:00 this morning and shoe horning her in today at 2 for an internal exam. Hopefully we get some answers today. I'm thinking second look surgery depending on what they find today. According to the onc this appointment was more important than the one for the biopsy's at the urologist. Not sure why. He expressed to me that he is very concerned. I did not tell my wife that part. I knew it was going to be a very difficult weekend for her as it was. Shame on me I know just couldn't bring myself to tell her that part.

    YOU DID THE RIGHT THING, DAVE
    I'm sure you're wife is already agonizing over the possibilities, so telling her the doctor is 'very concerned' would not help her. Unfortunately, you are bearing this burden alone. But hopefully, coming to the board to 'vent' will help a little.

    Don't know what time zone you're in, but keep us posted once you have something to tell us. I know sitting at a computer will not be priority for you, so I'll try to be patient.

    Prayers.
    Monika
  • lulu1010
    lulu1010 Member Posts: 367
    #12
    mopar said:

    YOU DID THE RIGHT THING, DAVE
    I'm sure you're wife is already agonizing over the possibilities, so telling her the doctor is 'very concerned' would not help her. Unfortunately, you are bearing this burden alone. But hopefully, coming to the board to 'vent' will help a little.

    Don't know what time zone you're in, but keep us posted once you have something to tell us. I know sitting at a computer will not be priority for you, so I'll try to be patient.

    Prayers.
    Monika

    Doesnt seem to be the usual
    This does not seem to be the usual course of things but everyone is different. Maybe it wont turn out to be as bad as imagined. I know it is hard to wait for answers but they will come soon and then you can process the info and develop the best plan. You are doing an outstanding job as caregiver and advocate. Do keep us in the loop as to what is going on. Prayers and hugs
  • Mwee
    Mwee Member Posts: 1,338
    #13
    Hi Dave
    I've been following your thread and am waiting to hear what your wife's biopsy shows. I wish I had expertice I could pass along, but I don't. I'm hoping that her excellent CA-125 marker continues to be the good indication that it has been in the past.
    (((HUGS to you both!))) Maria
  • davevg
    davevg Member Posts: 114
    #14
    Mwee said:

    Hi Dave
    I've been following your thread and am waiting to hear what your wife's biopsy shows. I wish I had expertice I could pass along, but I don't. I'm hoping that her excellent CA-125 marker continues to be the good indication that it has been in the past.
    (((HUGS to you both!))) Maria

    Thanks everyone
    So the gyn could not feel any masses and did do a pap smear. She told us there are only a handful of areas the cells could be coming from, the bladder, vagina, colon or ureter. Biopsies on the bladder later today. She is not looking forward to that. Thank you all for listening to my ramblings and thank you for responses. Will keep you posted.

    Dave vg
  • carolenk
    carolenk Member Posts: 907 Member
    #15
    davevg said:

    Thanks everyone
    So the gyn could not feel any masses and did do a pap smear. She told us there are only a handful of areas the cells could be coming from, the bladder, vagina, colon or ureter. Biopsies on the bladder later today. She is not looking forward to that. Thank you all for listening to my ramblings and thank you for responses. Will keep you posted.

    Dave vg

    Chemo side effect?
    I am having a hard time following your wife's story. I looked up "ovarian cancer cells in urine" online & it doesn't look like that is even a standard lab test.

    Is it possible the hematuria is from a kidney stone or even that the blood in the urine is a chemo side effect? I am following this story like it is a great mystery. Yeah, it is mysterious.
  • davevg
    davevg Member Posts: 114
    #16
    carolenk said:

    Chemo side effect?
    I am having a hard time following your wife's story. I looked up "ovarian cancer cells in urine" online & it doesn't look like that is even a standard lab test.

    Is it possible the hematuria is from a kidney stone or even that the blood in the urine is a chemo side effect? I am following this story like it is a great mystery. Yeah, it is mysterious.

    Not a standard test and was ordered special.
    I'm kind of lost as well and can find nothing on it.Thats why I'm asking here.

    Dave VG
  • mopar
    mopar Member Posts: 1,972 Member
    #17
    davevg said:

    Not a standard test and was ordered special.
    I'm kind of lost as well and can find nothing on it.Thats why I'm asking here.

    Dave VG

    ANXIOUSLY AWAITING WORD
    Thoughts and prayers are with you and your wife, Dave.
    Monika
  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #18
    davevg said:

    Thanks everyone
    So the gyn could not feel any masses and did do a pap smear. She told us there are only a handful of areas the cells could be coming from, the bladder, vagina, colon or ureter. Biopsies on the bladder later today. She is not looking forward to that. Thank you all for listening to my ramblings and thank you for responses. Will keep you posted.

    Dave vg

    I'm under the impression...
    I'm under the impression that most people with cancer have caner cells in their blood, even after treatment ends. So, if there is blood in her urine, there would also likely be cancer cells. Sure, it is important to find the source of the blood, but the cancer cells could just be carried into the urine with the blood.
  • davevg
    davevg Member Posts: 114
    #19
    Tethys41 said:

    I'm under the impression...
    I'm under the impression that most people with cancer have caner cells in their blood, even after treatment ends. So, if there is blood in her urine, there would also likely be cancer cells. Sure, it is important to find the source of the blood, but the cancer cells could just be carried into the urine with the blood.

    Not sure about this Tethys41
    If it was indeed normal I'm not sure they would be making such a big deal about it but maybe. Like I said I'm lost as well and can't find anything on this. The biopsies are done. He took like 6 or seven samples. There were a few spots one in particular that looked funny and he took 2 samples from there. Her urine sample taken directly form the bladder by catheter during the last visit was not in yet which the Dr made it sound like that was not a good thing. Hard to get a good read on this guy but it seamed obvious. On a good note her pap came back negative. We see her onc next Tuesday and should get many of these questions answered hopefully.

    Dave vg
  • mopar
    mopar Member Posts: 1,972 Member
    #20
    davevg said:

    Not sure about this Tethys41
    If it was indeed normal I'm not sure they would be making such a big deal about it but maybe. Like I said I'm lost as well and can't find anything on this. The biopsies are done. He took like 6 or seven samples. There were a few spots one in particular that looked funny and he took 2 samples from there. Her urine sample taken directly form the bladder by catheter during the last visit was not in yet which the Dr made it sound like that was not a good thing. Hard to get a good read on this guy but it seamed obvious. On a good note her pap came back negative. We see her onc next Tuesday and should get many of these questions answered hopefully.

    Dave vg

    THE WAITING GAME
    Now you have to wait through another weekend PLUS. So sorry, Dave. But that is very encouraging that the Pap test is negative. And that is something to hold on to. So, once again sending prayers to you both, and I'll be exercising much needed patience. Hang in there.

    Monika
  • davevg
    davevg Member Posts: 114
    #21
    mopar said:

    THE WAITING GAME
    Now you have to wait through another weekend PLUS. So sorry, Dave. But that is very encouraging that the Pap test is negative. And that is something to hold on to. So, once again sending prayers to you both, and I'll be exercising much needed patience. Hang in there.

    Monika

    Thank you Monika and everyone for the prayers
    Monika... my wife is holding onto the pap test as a good sign but still realizes the cancer cells are coming form somewhere. I'm thinking the bladder from what I saw during the biopsies but then again I'm no Dr just know the spots he was concentrating on were not consistent with the rest of the bladder. I'm hoping I'm wrong. And yes it seems like Tuesday is a year away and is going to be an excruciating wait. You know its not like its bad enough women have to go through all the woman things in life but then to get thrown into a mess like this. My heart goes out to each and every one of you going through this and also to the care givers. Prayers to you all.

    Dave VG

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