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  • Dianna9
    Dianna9 Member Posts: 11
    #22
    JulieL said:

    Hi Dianna
    Hope all going well for you after your first round of chemo. My PPC was diagnosed December 2011 and I have just had my 4th round of carboplatin/paxitaxol (3 weekly all day affair) and handling it all pretty well. Going in for debulking surgery on March 19th so looking forward to that, specially after reading posts re advantages of aggressive surgery! Any reduction in CA125 must be good and your drop massive! Mine has dropped with each round - 653 to 191 to 67 to 38.

    Yes I think the feeling of loneliness with this rather rare cancer is one that has struck many of us and the relief of finding this site for knowledge, information, support, friendship and love is a wonderful thing!

    My mantra is "Stay strong - stay positive".

    JulieL, Australia

    thank you
    Thanks
    I am having my next chemo the 15 of March.
    They called me today to tell me my WBC count is below normal.
    going to the grocery store to pick up some more good food.
    Hopefully the second one goes as well as the first no nausea only everything tasted odd.
    finally after almost a week the food taste a lot better.
    I am glad to see that yours ca125 is almost normal 35 is what they tell me but another friend of mine got hers down to 9 now and in remission she did her last chemo 2 weeks ago.
    So I am sure after your debulking yours will almost be gone if not gone already.
    Dianna
  • niccimarie
    niccimarie Member Posts: 2
    #23
    Hi I'm nicci I'm 32and just
    Hi I'm nicci I'm 32and just got diagnosed march 5 2012 i am so scared i have doctors that do explain but i still don't get it and what worriese the most is that i also have lupus a double whammy I'm just looking for ppl i cam really talk to that can explain things to me i didn't start any need yet I'm getting the port on the 12 and them the 20th i meet with a kemo doctor to figure out what kind i don't even know if there is different kinds well i don't know but thanks for letting me use am ear
  • JulieL
    JulieL Member Posts: 141
    #24
    Dianna9 said:

    thank you
    Thanks
    I am having my next chemo the 15 of March.
    They called me today to tell me my WBC count is below normal.
    going to the grocery store to pick up some more good food.
    Hopefully the second one goes as well as the first no nausea only everything tasted odd.
    finally after almost a week the food taste a lot better.
    I am glad to see that yours ca125 is almost normal 35 is what they tell me but another friend of mine got hers down to 9 now and in remission she did her last chemo 2 weeks ago.
    So I am sure after your debulking yours will almost be gone if not gone already.
    Dianna

    Hi Dianna
    All the best for March 15th and hope it all goes well for you. I found the strange taste only happened in the first round so hope it is for you too. Keep up the good food and lots of rest to help the WBC. Having your taste buds back to normal will help too. So glad you haven't had nausea. I have another CA125 test this week prior to my surgery so hoping I might dip below 30!
    Cheers, Julie.
  • Dianna9
    Dianna9 Member Posts: 11
    #25
    JulieL said:

    Hi Dianna
    All the best for March 15th and hope it all goes well for you. I found the strange taste only happened in the first round so hope it is for you too. Keep up the good food and lots of rest to help the WBC. Having your taste buds back to normal will help too. So glad you haven't had nausea. I have another CA125 test this week prior to my surgery so hoping I might dip below 30!
    Cheers, Julie.

    Hi Julie
    2nd round done.
    I had to have the Neulasta for the WBC count being down. They told me to take Claritin 20 mg. a day for the side effects of the bones hurting it works so far I only hurt really bad in my ribs the first night. I still hate being sick hair almost all gone. I don't even let my husband see me with out a wig anymore.Im pretty bummed about it.
    The good side is I did not get nauseated at all only shakes in the morning. My hands are red and raw, I thought I was washing them too much, but I had my nails done and she put my hands under ultraviolet light to dry them BOY WAS THAT A MISTAKE, now my hands are really red and burned I call the DR and they said they thought they told me not to get my nails done. HUM even my husband told me that they did not cover it. Is there anything else I should not do that is so simple. I really dont know anymore. I will be so glad when this is all over. my CA125 wend down to 1102. to 178 to 159.
    If I had something to wish for it would be 10 on the next test. I GOTTA WISH BIG.
  • Dianna9
    Dianna9 Member Posts: 11
    #26
    JulieL said:

    Hi Dianna
    All the best for March 15th and hope it all goes well for you. I found the strange taste only happened in the first round so hope it is for you too. Keep up the good food and lots of rest to help the WBC. Having your taste buds back to normal will help too. So glad you haven't had nausea. I have another CA125 test this week prior to my surgery so hoping I might dip below 30!
    Cheers, Julie.

    Hi Julie
    2nd round done.
    I had to have the Neulasta for the WBC count being down. They told me to take Claritin 20 mg. a day for the side effects of the bones hurting it works so far I only hurt really bad in my ribs the first night. I still hate being sick hair almost all gone. I don't even let my husband see me with out a wig anymore.Im pretty bummed about it.
    The good side is I did not get nauseated at all only shakes in the morning. My hands are red and raw, I thought I was washing them too much, but I had my nails done and she put my hands under ultraviolet light to dry them BOY WAS THAT A MISTAKE, now my hands are really red and burned I call the DR and they said they thought they told me not to get my nails done. HUM even my husband told me that they did not cover it. Is there anything else I should not do that is so simple. I really dont know anymore. I will be so glad when this is all over. my CA125 wend down to 1102. to 178 to 159.
    If I had something to wish for it would be 10 on the next test. I GOTTA WISH BIG.

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