CEA results

Nana b
Nana b Member Posts: 3,030 Member
in Colorectal Cancer #1
My CEA went from 13.1 to 13.3. Didnt double like the last time. Changes? I went back on my supplements and drinking green tea. I also added all the berries back on my diet. We shall see. Talk to you all in a month. Next check m

Comments

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #2
    Sounds like stable...
    which is not a bad thing. Way better than doubling. Sending hope your way that the dietary changes bring it down again. Hugs-Ann
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    #3
    Hoping that number starts to
    Hoping that number starts to creep the other way Rachel...I'm happy that it slowed for you!

    love ya,gail
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #4
    looking for Dr Goodwrench
    didn't double like last time
    Last year my wife's CEA had been stairstepping with several +- constant readings and then a double or +50% in a single reading over 2-4 weeks. At CEA reading of 13-14, got a CT and they frigging missed the massive para aortic lymph nodes! After 2nd radiologist's identification, I burned ground time to finally find a surgeon who would remove as much as possible. Surgery rather than count on chemo or radiation. Most surgeons refused, all oncologists sneered or pushed their particular service despite expected failure. Ramped up chemo slightly including the cimetidine, increased targeted supplements, some probably beyond most people's "max", made arangements with a lab for chemosensitivity testing (like Weisenthal Group or Rational Therapeutics) and got the surgery (on CIM-UFT chemo!) despite even the (co)operating surgeon's warnings on systemic disease in the lymph system and likely peritoneal spread/invasion (still none) from initial dx.

    I suspect each of her CEA stairstep to perhaps represent some stage of rapid development/escalation for each of her largest lymph nodes, 2 cm or more. Chopped 'em all out, ca 30-32 grams.

    Good last scan several months ago. Added more select supplements and immune stimulating PSK type mushroom extract, along with Biothera Wellmune WGP beta glucan. CEA has recently collapsed to 1.7, lowest since dx and post surgery CEA minimums.
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    #5
    plh4gail said:

    Hoping that number starts to
    Hoping that number starts to creep the other way Rachel...I'm happy that it slowed for you!

    love ya,gail

    thanks
    for letting us know i have been looking for your news everyday and wondering how it was going.glad to hear its not bad,you know you are still an inspiration to me,keep doing what you are doing and dont work so hard,enjoy life....Godbless.....johnnybegood
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #6
    johnnybegood said:

    thanks
    for letting us know i have been looking for your news everyday and wondering how it was going.glad to hear its not bad,you know you are still an inspiration to me,keep doing what you are doing and dont work so hard,enjoy life....Godbless.....johnnybegood

    Good it didn't jump
    Good it didn't jump much....now hopefully there will be a downward trend in your CEA :)
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #7
    CEA
    Of course it would have been better if it had gone down by .2 (or more) but the increase was slight.
    You can't go wrong with berries!
    -p
  • Nana b
    Nana b Member Posts: 3,030 Member
    #8
    PhillieG said:

    CEA
    Of course it would have been better if it had gone down by .2 (or more) but the increase was slight.
    You can't go wrong with berries!
    -p

    Supplements
    Really just
    Supplements

    Really just sticking with, Turmeric, Milk Thistle, D3, Calcium. Lots of Berries, Red Grapes, Pomegranates, and greens. Every now and then a remember to do the Aloe.

    Waking a lot at work. I have a plant and 2 huge warehouses that I walk each day, I could use a golf cart, but I don't. It's beneficial to me and and lets me interact with all the employees.

    My work goes by so fast, doesn't stress me out. I do wish that I had time to just do what I want each day, which work around my house, but I need my insurance and the money isn't bad to have. Maybe once I hear Chemo again, I will change my mind. The summer is coming up at it will be 12/7 for 3 months. I work for a great group of people/Company who are so understanding with their employees and their health.

    They aren't self insured with their medical plans so I'm sure that easing their mind just a bit. :0)
  • tommycat
    tommycat Member Posts: 790 Member
    #9
    Nana b said:

    Supplements
    Really just
    Supplements

    Really just sticking with, Turmeric, Milk Thistle, D3, Calcium. Lots of Berries, Red Grapes, Pomegranates, and greens. Every now and then a remember to do the Aloe.

    Waking a lot at work. I have a plant and 2 huge warehouses that I walk each day, I could use a golf cart, but I don't. It's beneficial to me and and lets me interact with all the employees.

    My work goes by so fast, doesn't stress me out. I do wish that I had time to just do what I want each day, which work around my house, but I need my insurance and the money isn't bad to have. Maybe once I hear Chemo again, I will change my mind. The summer is coming up at it will be 12/7 for 3 months. I work for a great group of people/Company who are so understanding with their employees and their health.

    They aren't self insured with their medical plans so I'm sure that easing their mind just a bit. :0)

    Thanks for posting. It was
    Thanks for posting. It was also a good reminder to take my supplements today. Hope things continue to be stable or better!
  • lauragb
    lauragb Member Posts: 370 Member
    #10
    Nana b said:

    Supplements
    Really just
    Supplements

    Really just sticking with, Turmeric, Milk Thistle, D3, Calcium. Lots of Berries, Red Grapes, Pomegranates, and greens. Every now and then a remember to do the Aloe.

    Waking a lot at work. I have a plant and 2 huge warehouses that I walk each day, I could use a golf cart, but I don't. It's beneficial to me and and lets me interact with all the employees.

    My work goes by so fast, doesn't stress me out. I do wish that I had time to just do what I want each day, which work around my house, but I need my insurance and the money isn't bad to have. Maybe once I hear Chemo again, I will change my mind. The summer is coming up at it will be 12/7 for 3 months. I work for a great group of people/Company who are so understanding with their employees and their health.

    They aren't self insured with their medical plans so I'm sure that easing their mind just a bit. :0)

    I had copied down your list
    I had copied down your list of supplements before, thinking about when I'm done with chemo.
    Thanks for posting your latest info. Although we don't know each other, I have been following your posts waiting for news. Stable is good. Maybe next time, there will be a downturn in numbers. Sounds like you are doing a lot of good things to stay healthy and it's always good to hear of understanding employers.

    Laura
  • peterz54
    peterz54 Member Posts: 341
    #11
    13.1 vs 13.3
    this might not mean a thing....all lab measuements have a certain amount of error associated with them. If they run the same blood sample through their analysis multiple times they will likely get a slightly different result each time. In this case we don't know the typical error, but the lab could provide if asked.


    peter
  • Nana b
    Nana b Member Posts: 3,030 Member
    #12
    lauragb said:

    I had copied down your list
    I had copied down your list of supplements before, thinking about when I'm done with chemo.
    Thanks for posting your latest info. Although we don't know each other, I have been following your posts waiting for news. Stable is good. Maybe next time, there will be a downturn in numbers. Sounds like you are doing a lot of good things to stay healthy and it's always good to hear of understanding employers.

    Laura

    I did my supplements while
    I did my supplements while on chemo. ONC said it was fine. May want to check with him.

    I am going to start my supreme greens and reds from Trader Joes. I forgot, that was i my regime too.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #13
    goodluck
    I am glad yours is stable, hoping for a fall.
    hugs,
    pete

    ps i goto to get mine tested, its over due, its been about 4 weeks.

    pps go organic if you can, i am now, all the way organic.

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