Lupus

Lighthouse_7 · February 2012

I got the results of blood work, looks like early Lupus. I guess my antibodies are suspect.
Just watching for now to see if any other symptoms arise. I'll keep you posted on bone scan results Thursday.
Thanks for checking.
Wanda

Kylez · February 2012

Thanks for letting us know
Thanks for letting us know Wanda. Praying for your bone scan results to be good. Please post when you know something about them.

Big hugs,

Kylez

New Flower · February 2012

Kylez said:
Thanks for letting us know
Thanks for letting us know Wanda. Praying for your bone scan results to be good. Please post when you know something about them.

Big hugs,

Kylez

Lupus????
Wanda,
Did your doctor said early Lupus? I hope both of you are mistaken.
Hugs

carkris · February 2012

New Flower said:
Lupus????
Wanda,
Did your doctor said early Lupus? I hope both of you are mistaken.
Hugs

Is this a good news/bad news
Is this a good news/bad news thing. Dont know if i should say yay? anyway hopefully good news is an early diagnosis, means they can keep it to a dull roar . fingers crossed for a good bone scan result

grams2jc · February 2012

Hoping for good bone scan results!
Then you will be able to evaluate exactly what you are facing.

Sending you positive thoughts and prayers, and keeping my fingers crossed for rechecking blood work and finding nothing,

Jennifer

Double Whammy · February 2012

grams2jc said:
Hoping for good bone scan results!
Then you will be able to evaluate exactly what you are facing.

Sending you positive thoughts and prayers, and keeping my fingers crossed for rechecking blood work and finding nothing,

Jennifer

Huh?
Lupus? Why do they think lupus? What blood test indicated that? Why did they do the test?

I had a low level positive ANA test 9 months ago as part of evaluating my hair thing. My pcp said a low level positive ANA is nonspecific. I decided I didn't want to know any more but it sometimes worries me that she might be on the watch for any symptoms or other abnormal labs that might come up with me. It's unlike me to bury my head in the sand and I probably should ask for more information the next time I see her.

Hope everything turns out ok for you.

Suzanne

Lighthouse_7 · February 2012

Double Whammy said:
Huh?
Lupus? Why do they think lupus? What blood test indicated that? Why did they do the test?

I had a low level positive ANA test 9 months ago as part of evaluating my hair thing. My pcp said a low level positive ANA is nonspecific. I decided I didn't want to know any more but it sometimes worries me that she might be on the watch for any symptoms or other abnormal labs that might come up with me. It's unlike me to bury my head in the sand and I probably should ask for more information the next time I see her.

Hope everything turns out ok for you.

Suzanne

Well, there is no test for
Well, there is no test for Lupus per se, but they look at how many symptoms and if anti bodies are high or low. The reason for the visit to the Rhemotoligist (spelling) was for the reason I keep getting swelling and fluid in my joints. Remember my post about my hip effusion?
Anyway if it is early Lupus he will treat me with meds but wants to wait and test again in a few months and also to see if I get anymore fluid. My daughter just got dx'd with this also. So weird to me. She is 36 years old and has joint issues and the rash that Lupus is famous for and is on meds. She goes to a different doctor. I have also had several boats with mysterious rashes through the years.
Anyway, sorry for the length of this post but I figured I would let you all know why I went to him. My PC doc sent me there.

The bone scan is the final test to see of course if the beast is causing any of this.
Hugs,
Wanda

Lighthouse_7 · February 2012

New Flower said:
Lupus????
Wanda,
Did your doctor said early Lupus? I hope both of you are mistaken.
Hugs

OMG..I hope you don't think
OMG..I hope you don't think I want to hear early Lupus. Of course he said that. Wasn't my idea

stacy_harp · February 2012

Lighthouse_7 said:
Well, there is no test for
Well, there is no test for Lupus per se, but they look at how many symptoms and if anti bodies are high or low. The reason for the visit to the Rhemotoligist (spelling) was for the reason I keep getting swelling and fluid in my joints. Remember my post about my hip effusion?
Anyway if it is early Lupus he will treat me with meds but wants to wait and test again in a few months and also to see if I get anymore fluid. My daughter just got dx'd with this also. So weird to me. She is 36 years old and has joint issues and the rash that Lupus is famous for and is on meds. She goes to a different doctor. I have also had several boats with mysterious rashes through the years.
Anyway, sorry for the length of this post but I figured I would let you all know why I went to him. My PC doc sent me there.

The bone scan is the final test to see of course if the beast is causing any of this.
Hugs,
Wanda

I'm new here
I sure hope everything goes well for you. I have a friend that went through treatment or cervical cancer and is now being tested for lupus and/or MS symptoms. She is really struggling and it is not easy to go from one battle to the next. Hang in there and post when ya know more

Lighthouse_7 · February 2012

stacy_harp said:
I'm new here
I sure hope everything goes well for you. I have a friend that went through treatment or cervical cancer and is now being tested for lupus and/or MS symptoms. She is really struggling and it is not easy to go from one battle to the next. Hang in there and post when ya know more

Thanks so much Stacy,
It
Thanks so much Stacy,
It really helped to read your post. Please tell your friend that I know what she's going through and I send her all my best.
Hugs,
Wanda

jnl · February 2012

Lighthouse_7 said:
OMG..I hope you don't think
OMG..I hope you don't think I want to hear early Lupus. Of course he said that. Wasn't my idea

Wanda, I am so sorry.
Wanda, I am so sorry. Praying for you and sending you a big hug!

Love, Leeza

survivorbc09 · February 2012

stacy_harp said:
I'm new here
I sure hope everything goes well for you. I have a friend that went through treatment or cervical cancer and is now being tested for lupus and/or MS symptoms. She is really struggling and it is not easy to go from one battle to the next. Hang in there and post when ya know more

I am so sorry Wanda that you
I am so sorry Wanda that you have lupus. You've already been through so much. I will pray for you.

Hugs, Jan

Lighthouse_7 · February 2012

survivorbc09 said:
I am so sorry Wanda that you
I am so sorry Wanda that you have lupus. You've already been through so much. I will pray for you.

Hugs, Jan

Thanks so much Jan,
Hugs,
Wanda

Noel · February 2012

Double Whammy said:
Huh?
Lupus? Why do they think lupus? What blood test indicated that? Why did they do the test?

I had a low level positive ANA test 9 months ago as part of evaluating my hair thing. My pcp said a low level positive ANA is nonspecific. I decided I didn't want to know any more but it sometimes worries me that she might be on the watch for any symptoms or other abnormal labs that might come up with me. It's unlike me to bury my head in the sand and I probably should ask for more information the next time I see her.

Hope everything turns out ok for you.

Suzanne

I'm very sorry Wanda that
I'm very sorry Wanda that you are facing lupus now. Hugs and positive thoughts!

VickiSam · March 2012

Noel said:
I'm very sorry Wanda that
I'm very sorry Wanda that you are facing lupus now. Hugs and positive thoughts!

so so so sorry, Miss Wanda ....
What a turn of events -- isn't it enough that we suffered thru breast cancer -- ??
I hate hearing this, but more importantly, I hate that you are facing more doctor
visitors, testing, scans and lupus --

so sorry dear Wanda.

Strength, Courage and Hope.

Vicki Sam

DianeBC · March 2012

Lighthouse_7 said:
Well, there is no test for
Well, there is no test for Lupus per se, but they look at how many symptoms and if anti bodies are high or low. The reason for the visit to the Rhemotoligist (spelling) was for the reason I keep getting swelling and fluid in my joints. Remember my post about my hip effusion?
Anyway if it is early Lupus he will treat me with meds but wants to wait and test again in a few months and also to see if I get anymore fluid. My daughter just got dx'd with this also. So weird to me. She is 36 years old and has joint issues and the rash that Lupus is famous for and is on meds. She goes to a different doctor. I have also had several boats with mysterious rashes through the years.
Anyway, sorry for the length of this post but I figured I would let you all know why I went to him. My PC doc sent me there.

The bone scan is the final test to see of course if the beast is causing any of this.
Hugs,
Wanda

If it is early Lupus Wanda,
If it is early Lupus Wanda, I hope that you can be treated easily with meds that will have no side effects for you. Good luck with the bone scan and please post your results for us.

Big hugs,

Diane

Ritzy · March 2012

VickiSam said:
so so so sorry, Miss Wanda ....
What a turn of events -- isn't it enough that we suffered thru breast cancer -- ??
I hate hearing this, but more importantly, I hate that you are facing more doctor
visitors, testing, scans and lupus --

so sorry dear Wanda.

Strength, Courage and Hope.

Vicki Sam

Oh no Wanda! I am sorry
Oh no Wanda! I am sorry that you might have lupus now, so very sorry. I am sending lots of cyber hugs to you today and good luck on your scan.

Sue

Lupus

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