Big Day Tomorrow

mixleader
mixleader Member Posts: 267 Member
I haven't posted here in a while. I have been battling pain, depression,, anxiety and a host of other problems. I had a full body CT scan on Monday and tomorrow I meet with my cancer Doc to see if the chemo drug is still shrinking the tumors in my face, lungs, and spine. This is the second scan since chemo started and the first scan was encouraging, so I am hopeful that this will be good as well. I have been on chemo for five months now and I am really getting sick of it. The constant fatigue and pain have been a major challenge for me. So, on goes the game face tonight and after an Ativan or two tomorrow, I can talk to my oncologist to see how much more trouble I am in. Man, I hate cancer.

Roger
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Comments

  • CaKat
    CaKat Member Posts: 28
    I agree!
    I've only been on chemo for 9 weeks, but the side effects are tough. Waiting for the results of tests is another difficult "side effect." Please know that others will be sending you positive and healing thoughts. Hang in there! Let us know how it goes.
  • kimmygarland
    kimmygarland Member Posts: 312
    CaKat said:

    I agree!
    I've only been on chemo for 9 weeks, but the side effects are tough. Waiting for the results of tests is another difficult "side effect." Please know that others will be sending you positive and healing thoughts. Hang in there! Let us know how it goes.

    Thinking of you
    Thinking of you Roger and hoping for a good report!
  • kimmygarland
    kimmygarland Member Posts: 312
    CaKat said:

    I agree!
    I've only been on chemo for 9 weeks, but the side effects are tough. Waiting for the results of tests is another difficult "side effect." Please know that others will be sending you positive and healing thoughts. Hang in there! Let us know how it goes.

    Thinking of you
    Thinking of you Roger and hoping for a good report!
  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    agree.
    Wishing you well. Here's to a good tomorrow.

    Pat
  • Hal61
    Hal61 Member Posts: 655
    Amen Roger
    Hi Roger, you said a mouth full. Chemo for five months absolutely sucks. I'm surprised your head isn't shrunk by now, but, I bet the tumors are. Fatigue was tough for me too. I alwys felt like I'd just been out way too long in the sun. Everything was heavy. Depression too. Went to a counselor who was a good listener, but so's my TV. I was taking antidepressant but it wasn't doing squat. A doc said, well lets double the dose. I was on low dose antidepressant, but had high grade depression. It made all the difference in the world for me.

    hatin' it with you, and hoping hard for a good report tomorrow,
    best, Hal
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Kick Butt...
    Thinking of you Roger.....

    Thoughts and prayers for some good news to come your way...

    Best,
    John
  • hawk711
    hawk711 Member Posts: 566
    Skiffin16 said:

    Kick Butt...
    Thinking of you Roger.....

    Thoughts and prayers for some good news to come your way...

    Best,
    John

    Roger
    will be thinking about you Roger. I join you in hating this f**^^ cancer. Added you to my prayers big guy....keep us posted on the results from your scan.
    Steve
  • Pam M
    Pam M Member Posts: 2,196
    Was Wondering About You
    Hating cancer with you. Hoping your chemo is picking up steam, and kicking cancer a$$. I didn't do chemo as long as you have, and it wore me down. Sending strength - wanting a second wind for you.
  • Greg53
    Greg53 Member Posts: 849
    Pam M said:

    Was Wondering About You
    Hating cancer with you. Hoping your chemo is picking up steam, and kicking cancer a$$. I didn't do chemo as long as you have, and it wore me down. Sending strength - wanting a second wind for you.

    Roger
    With you brother, hate cancer too! Wishing you nothing but the best news! Positive thoughts and energy headed your way!

    Greg
  • mixleader
    mixleader Member Posts: 267 Member
    Scan Results
    My wife and I met with my oncologist today to discuss the results of the full body CT scan I had on Monday. It was a good news/bad news kind of thing, but I think it was more positive than negative. Some of my lung tumors shrunk, some stayed the same, and some grew a bit. Since the last time when all of them had shrunk, we had reduced my cancer med a bit to try and hurt me less. Since this drug is still working, the Doc says we are going back to full concentration to try and batter these little demons into submission. But, this time we will do a three week course instead of a 4 week course. We are hopeful that this will not cause me such terrible side effects. The other good news here is that the cancer has not spread to any other organs, so that is very good news. So, now I get a two week break after Sunday and then when I start back again, it will be at the full strength of this drug. Then, in about 3 months, they will scan me again to see how things are going. If I absolutely cannot tolerate this, then we will move to another drug. I am not anxious to do that because this one is working and I have at least learned what it does to me. So, I have my license to live for another 90 days and I am going to go and do exactly that.

    Roger
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    mixleader said:

    Scan Results
    My wife and I met with my oncologist today to discuss the results of the full body CT scan I had on Monday. It was a good news/bad news kind of thing, but I think it was more positive than negative. Some of my lung tumors shrunk, some stayed the same, and some grew a bit. Since the last time when all of them had shrunk, we had reduced my cancer med a bit to try and hurt me less. Since this drug is still working, the Doc says we are going back to full concentration to try and batter these little demons into submission. But, this time we will do a three week course instead of a 4 week course. We are hopeful that this will not cause me such terrible side effects. The other good news here is that the cancer has not spread to any other organs, so that is very good news. So, now I get a two week break after Sunday and then when I start back again, it will be at the full strength of this drug. Then, in about 3 months, they will scan me again to see how things are going. If I absolutely cannot tolerate this, then we will move to another drug. I am not anxious to do that because this one is working and I have at least learned what it does to me. So, I have my license to live for another 90 days and I am going to go and do exactly that.

    Roger

    Good News...
    Not great, but good....

    Being somewhat stable and nothing new, that is great.....

    You definitely have my thoughts and prayers during this 90 days of waiting....

    Best,
    John
  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    mixleader said:

    Scan Results
    My wife and I met with my oncologist today to discuss the results of the full body CT scan I had on Monday. It was a good news/bad news kind of thing, but I think it was more positive than negative. Some of my lung tumors shrunk, some stayed the same, and some grew a bit. Since the last time when all of them had shrunk, we had reduced my cancer med a bit to try and hurt me less. Since this drug is still working, the Doc says we are going back to full concentration to try and batter these little demons into submission. But, this time we will do a three week course instead of a 4 week course. We are hopeful that this will not cause me such terrible side effects. The other good news here is that the cancer has not spread to any other organs, so that is very good news. So, now I get a two week break after Sunday and then when I start back again, it will be at the full strength of this drug. Then, in about 3 months, they will scan me again to see how things are going. If I absolutely cannot tolerate this, then we will move to another drug. I am not anxious to do that because this one is working and I have at least learned what it does to me. So, I have my license to live for another 90 days and I am going to go and do exactly that.

    Roger

    license to live
    I'm glad to hear this news, Roger. That license is all any of us had, on temporary loan. The window between treatments, however brief, will be wonderful for you too. Here's to you, sir.

    pat
  • Hondo
    Hondo Member Posts: 6,636 Member
    Hi Roger
    My prayers are with you today that the news is good.

    God blessing to you my friend
    Hondo
  • jim and i
    jim and i Member Posts: 1,788 Member
    praying for you
    Roger, praying this works and the side effects are minimal.

    Debbie
  • robinleigh
    robinleigh Member Posts: 297
    jim and i said:

    praying for you
    Roger, praying this works and the side effects are minimal.

    Debbie

    With you
    My husband is in pretty much the same place as you and the chemo is getting rougher since it is cumulative. Lots of fatigue. His tumors are responding, as well, so we will definitely complete the 8 cycles allowed. He just finished cycle 5 and ct scan showed more shrinkage. His tumors are in the liver. Btw...Andy is on carboplatin, paclitaxel, and a trial drug. Any similarities to your cocktail?
    Wishing you the best through your continued treatment and hoping for more good tumor response!
  • mixleader
    mixleader Member Posts: 267 Member

    With you
    My husband is in pretty much the same place as you and the chemo is getting rougher since it is cumulative. Lots of fatigue. His tumors are responding, as well, so we will definitely complete the 8 cycles allowed. He just finished cycle 5 and ct scan showed more shrinkage. His tumors are in the liver. Btw...Andy is on carboplatin, paclitaxel, and a trial drug. Any similarities to your cocktail?
    Wishing you the best through your continued treatment and hoping for more good tumor response!

    Chemo sucks
    Hi, Robin. Thanks for the reply and the encouragement. I hope your husband continues to improve against this horrible disease. My chemo is actually in pill form and it is called Sutent. This was chosen for me by a genetic sequencing done with a sample of a tumor from one of my lungs. My doctor was not sure how to treat this very rare cancer, so the genetic sequencing was important to give him a starting point. So far, the results are promising after being given a virtual death sentence from some cancer experts at a major university. I try to remain hopeful, but I have so many things going on at once that it is very hard to picture any kind of a future.

    Roger
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    mixleader said:

    Chemo sucks
    Hi, Robin. Thanks for the reply and the encouragement. I hope your husband continues to improve against this horrible disease. My chemo is actually in pill form and it is called Sutent. This was chosen for me by a genetic sequencing done with a sample of a tumor from one of my lungs. My doctor was not sure how to treat this very rare cancer, so the genetic sequencing was important to give him a starting point. So far, the results are promising after being given a virtual death sentence from some cancer experts at a major university. I try to remain hopeful, but I have so many things going on at once that it is very hard to picture any kind of a future.

    Roger

    I Can See Clearly....
    Think and stay positive bro.....

    I can see clearly a picture of you in the future.....cancer free....you need to keep looking for that picture brother.

    Best,
    John
  • Hal61
    Hal61 Member Posts: 655
    mixleader said:

    Scan Results
    My wife and I met with my oncologist today to discuss the results of the full body CT scan I had on Monday. It was a good news/bad news kind of thing, but I think it was more positive than negative. Some of my lung tumors shrunk, some stayed the same, and some grew a bit. Since the last time when all of them had shrunk, we had reduced my cancer med a bit to try and hurt me less. Since this drug is still working, the Doc says we are going back to full concentration to try and batter these little demons into submission. But, this time we will do a three week course instead of a 4 week course. We are hopeful that this will not cause me such terrible side effects. The other good news here is that the cancer has not spread to any other organs, so that is very good news. So, now I get a two week break after Sunday and then when I start back again, it will be at the full strength of this drug. Then, in about 3 months, they will scan me again to see how things are going. If I absolutely cannot tolerate this, then we will move to another drug. I am not anxious to do that because this one is working and I have at least learned what it does to me. So, I have my license to live for another 90 days and I am going to go and do exactly that.

    Roger

    Keep extending that lease
    I'm glad to hear they are trying something different on you Roger. Take a break and start biting back again. Your results are encouraging. Keep it on the run.

    best, Hall
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    Skiffin16 said:

    I Can See Clearly....
    Think and stay positive bro.....

    I can see clearly a picture of you in the future.....cancer free....you need to keep looking for that picture brother.

    Best,
    John

    Roger
    I'm holding the same picture as John; you in the future ... cancer free... Find the picture!

    Deb
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    Roger
    Still thinking of you, you're always in my prayers.