Two Years NED

Tethys41
Tethys41 Member Posts: 1,382 Member
edited February 2012 in Ovarian Cancer #1
It has been two years since I completed chemo and my test results indicated I was NED.
My original CA-125 at diagnosis was 4,600, now it is 2.
My diagnosis was stage IIIc papillary serous adenocarcinoma.
My surgery results were suboptimal.
I had a total of 80 liters of ascites drained during the two months following debulking.
I was on 24 hour IV nutrition (TPN) for three months, starting a couple of months after surgery.
I have taken an integrative approach to this disease since my first chemo;
still do so with diet and lifestyle.
Thinking it's all helping.
Life is wonderful these days. :)
Don't give up, teal sisters!

Comments

  • mopar
    mopar Member Posts: 1,972 Member
    #2
    HOW WONDERFUL!
    Such an inspiration to all of us, especially those who recently have been given such solemn news (and there are many). God bless you and give you continued NED! I believe in doing everything we can (everything that we deem reasonable) to fight this disease. Keep up the good fight!

    (((HUGS)))
    Monika
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #3
    Great News !
    So happy for you !Love to hear happy stories to balance the not so good ones, it give me hope !
    Colleen
  • carolenk
    carolenk Member Posts: 907 Member
    #4
    Cafewoman53 said:

    Great News !
    So happy for you !Love to hear happy stories to balance the not so good ones, it give me hope !
    Colleen

    Congratlations!
    Keep on dancing with NED...on and on and on.
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #5
    carolenk said:

    Congratlations!
    Keep on dancing with NED...on and on and on.

    so happy
    for you,,you give us all hope. There are many new teal family's here and I hope they read your posts and know there is always a reason to keep up the good fight and never lose focus...val
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #6
    carolenk said:

    Congratlations!
    Keep on dancing with NED...on and on and on.

    so happy
    for you,,you give us all hope. There are many new teal family's here and I hope they read your posts and know there is always a reason to keep up the good fight and never lose focus...val
  • Mwee
    Mwee Member Posts: 1,338
    #7
    Dance on and on
    Life is wonderful and NED is even better! ((( HUGS ))) Maria
  • praising
    praising Member Posts: 3
    #8
    Great News
    So happy for you. You give me hope. I have been on the journey for 2 1/2 yrs. Trying different chemos. Will start a different combination on Tues. What was your diet all about? Have been positive in the beginning but getting alittle discouraged at this point.
    I am a lllC also, was in the lymph nodes. Had a good PET after the first series of chemo but it was back in 3 months. Have been driving 1 hr, one way, every week for treatment and that is getting old. Tell me what you do with diet and lifestyle that might help me and others.
    Thanks and a big congrats!!
  • carolenk
    carolenk Member Posts: 907 Member
    #9
    praising said:

    Great News
    So happy for you. You give me hope. I have been on the journey for 2 1/2 yrs. Trying different chemos. Will start a different combination on Tues. What was your diet all about? Have been positive in the beginning but getting alittle discouraged at this point.
    I am a lllC also, was in the lymph nodes. Had a good PET after the first series of chemo but it was back in 3 months. Have been driving 1 hr, one way, every week for treatment and that is getting old. Tell me what you do with diet and lifestyle that might help me and others.
    Thanks and a big congrats!!

    Welcome praising!
    And congrats to Carlene on her continued health as a survivor. I know being in the vaccine trial is a pain but somebody has to do it, right?
  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #10
    praising said:

    Great News
    So happy for you. You give me hope. I have been on the journey for 2 1/2 yrs. Trying different chemos. Will start a different combination on Tues. What was your diet all about? Have been positive in the beginning but getting alittle discouraged at this point.
    I am a lllC also, was in the lymph nodes. Had a good PET after the first series of chemo but it was back in 3 months. Have been driving 1 hr, one way, every week for treatment and that is getting old. Tell me what you do with diet and lifestyle that might help me and others.
    Thanks and a big congrats!!

    Diet/lifestyle
    I follow an anti-inflammatory diet, similar to the one described in the book "Anti-Cancer." That is a good starting point for anyone. Organic fruits and vegetables, hormone-free, antibiotic-free, free range, grass fed AND grass finished meats, or wild caught fish. Through trial and error, I've realized that grains aren't for me, so I myself have adopted a Paleo Diet, which cuts out grains and beans. This flies in the face of some beliefs, that vegetarianism is the way to go. More recent research is showing that some meats, as long as they are healthy meats, are an integral part of an anti-cancer diet. It was not an easy transistion, but I have no problems sticking to it now.
    Livestyle involves moderate exercise and managing stress. I also take some supplements. Although I could map my whole plan out to you, it is evident that different patients require different support. I work closely with a naturopath, who is a 20 year ovarian cancer survivor, and she calls most of the shots. I also listen to my body to figure out what works for me. If you're interested in an integrative approach to this disease, I suggest you visit the Inspire discussion board. That board has a lot more information about supplements and integrative therapies. There's currently a lengthy thread that started under this same post that I put up over there that discusses a number of things that help people in your situation, including Iscador. You would have to join in order to see that particular thread. http://www.inspire.com/groups/ovarian-cancer-national-alliance/discussion/two-years-ned-2/

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