ZOFRAN

Not certain why you are on it
Did you have a special nausea problem related to radiation? Most take it surrounding chemo, and are off it a few days after each dose, so your circumstances may be special.
There is no need to wean yourself of zophran. You can just stop it.

best

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Zofran was a huge help for me, i only needed it durning and after (maybe a week) having treatments. keep in mind like already said you can just stop, but if you feel bad you can start right back on it.

john

fisrpotpe said:

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Zofran was a huge help for me, i only needed it durning and after (maybe a week) having treatments. keep in mind like already said you can just stop, but if you feel bad you can start right back on it.

john

It's best taken before nausea starts
So they do suggest taking it regularly rather than in response to nausea. Most folks do not need it for more than a few weeks after chemo. Some get nausea from chemo and the Zofran can help with that. Doug had bad nausea much longer, so he was on the Zofran for a while.

I'd recommend talking to your doctor. . . he might have had a reason to have you on it for so long?

nwasen said:

Zofran
I made the mistake of waiting till I got sick to take it. Nothing like learning the hard way. I hung onto all my meds for quite sometime even tho I was no longer taking them. Maybe it's that safety net thing...
That was the only reason I was on them also.

Apologetic
Sorry for the pun, and yours is a serious question, but I tend to over
medicate a little too often.
Misguided Steve

Tagboy said:

Hopefully will be OK
I completed treatments 5 days after you did and the only nausea-like experiences I have had were from having a gag reflex to the phlegm I'm working through. And I'm pretty sure the Zofran wouldn't help that! I agree with the team - double check with the Doc, but you should be fine without it. Good luck and Godspeed!

Everyone is Different
Obviously. I had horrible nausea and vomiting throughout along with vomiting from the phlegm on top of it. My clinic told me that nausea can last for months afterwards. I have a nurse friend who went on for her Masters. She did her thesis on chemo related nausea. It is something that is real which can peak and wane for a long time.

I would check with my team if I were you. Obviously, it can't harm you to be on it and the information is correct, there is no need to wean off of this medication.

Best to you and congrats and completing treatment!

Linda

Baygal said:

Thanks to All
Thanks to everyone who has taken the time to share you knowledge and experiences in helping me navigate through this journey toward healing. I have watched my Mother, my Father, and my Sister fight and ultimately loose this battle. But I am confident that I have weathered the storm and that this disease has been conquered. Each of you deserve some of the credit. What you do is invaluable and means more than you may ever know.

you have it
you have the great positive mental attitude to kick butt and enjoy your new normal for years to come.

you go Baygal you go

john

Baygal said:

Thanks to All
Thanks to everyone who has taken the time to share you knowledge and experiences in helping me navigate through this journey toward healing. I have watched my Mother, my Father, and my Sister fight and ultimately loose this battle. But I am confident that I have weathered the storm and that this disease has been conquered. Each of you deserve some of the credit. What you do is invaluable and means more than you may ever know.

My experience with Zofran
I had some severe nausea during chemo and used Zofran when I felt a particularly bad episode coming on--especially when I needed to sleep. I was amazed at how fast and effective it was. Because I tried to be sensitive to the onset of heightened episodes, and not to use it for prevention, I just found myself needing it less and less over time--and don't recall any withdrawal problems.

As for "conquering" cancer, at least HNC/BOT, I think that many people here will say that someone can survive the disease, but will likely be dealing with some effects of the treatments for many years to come. There is a long list of things that can develop immediately or over time that are directly caused by rads and/or chemo. My own list is getting a bit longer each year and the symptoms range from minor nuisances to potentially significant problems that will never go away. No two people will develop the same effects or see them on the same time line, but now that you have cleared the first hurdle, you might want to read up on things like ORN, strictures, trismus, tinnitus, and more so you can know their signs should they occur with you. I don't mean to scare you, but do think that people with HNC/BOT need to know what they could be facing down the line.